almost 21 here wants to talk

[katie87]

I will be 21 on xmas, I have a 2 yr old , i am a recently single mom who works and goes to school, i also have horrible horrible IC. just ridiculously awful. sex causes spasms and 9/10 level pain, constant urge to urinate and urtethral burning for at least 3 days. as does drinking more than 2 drinks, (alchohol) but I do drink anyway at times because I am in pain every day, it never dips below a 6 , if it does it is because I have been taking opiates round the clock. (perscribed). I recently found out I have bad pelvic floor disfunction, as well as scoliosis and back spasms. To top it alll off i have daily migraines and joint and muscle pain and IBS (self diagnosed). No one has an anser for the joint/muscle pain or the mirgaines, i was pretty much blown off. With my bladder pain being so severe i have pretty much just ignored myother problems. I am also on amityrip. 40 mg, elmiron 400 mg gabapentin 600mg percocet 5mg tramadol 50 mg and a topical cream with bacolfen and amitrip. i also have a tens unit and go to PT once a week, I also get bladder instills every 2 weeks. I have been on the meds 9 months, my pain is still a 8 most days, a constant throbbing and buring in the bladder with urethral burning and muscle tighness in my crotch butt and pelvic floor.

what should i do??? am i doomed ?? why arent these meds helping after 9 months???????????

i just want someone mty age to talk to, please someone respond who is interested in talking, i could PM you my # and you could call me.. i dont know anyone who has IC and I want tot alk with a girl my age.....

[katie87]

i just dont understand with all these meds, the tens unit, the PT and the instills how can my daily pain level be so high?????????????

[ellenjb]

I know how you feel. I am only 28 and have been dealing with this for four years, and also have one child and one on the way. It's very important that you cut out any drinking, smoking (horrible for the bladder), etc. otherwise your meds will not have the chance to work. Just because you are on meds does not mean you can give in to such temptations. Believe me, I know how you feel....sometimes (ok, a lot of times), I just want a beer or margarita, etc. but the reality is that it will only keep you in pain. Soooo....try to cut it all out of your diet, and follow the food portion of the diet strictly, and see if maybe that helps...and give it an honest try. I hope you start to feel better!

[samanthalacey]

hey! i just turned 21 in December, too, and I know how horribly awful everything is! On my birthday I went to Florida, and my birthday night I only had three drinks because I didn't want to flare while on vacation :( But my friends were there and really supportive. Like you, I usually drink anyway and just load up on the Prosed and Elmiron and usually I'm okay... I'm the worst with coffee and tomatoes (I can't go near those) and the like. This past Thanksgiving I accidentally had something with tomatoes in it and I was literally peeing blood and chunks of flesh for three days. It was so bad my doctors thought it must've been a UTI so they prescribed me antibiotics, but when the results came back it turned out it was just an IC flare. SO BAD!! Let me know if you ever need to talk... I'm not really a phone person (drives my friends crazy, but I just hate being on the phone) but I'd be happy to email or facebook or something. Hang in there and know that you aren't alone!!!

[Krisandra83]

Hi there,

I am sorry to hear you are going through so much, and having to care for your child at the same time.. you have a lot on your plate.
I am 25, and on medical leave from work.. I not only have IC.. but endo..
Sometimes my period will last a month... which causes way more pain...
On top of the IC... it seems like the only thing that helps are the pain meds, and heating pad.. I am stating to bladder instills at home... which I am nervous about..

I would cut out all drinking.. but I know what you mean.. when you feel a little bit better.. you drink.. and it takes any pain away that you may have.. but then we pay for it dearly the next day.
I am on myspace.. or feel free to email me anytime.

Hang in there.. I hope things start looking up.
:grouphug: