Cause of flare?

[KarenAnne]

I'm asking yet another question. Thank you all for always helping. My meds were switched two weeks ago, doing strict diet. I have not been able to figure out why I'm more uncomfortable than usual. I just found out from one of you that stress is a biggie. But, I just received my Cystoprotek a few days ago in the mail & started it. I just realized that about an hour & a half after taking it with my bland little IC dinner, my symptoms all get worse. Has anyone experienced a flare up of symptoms from Cystoprotek? I am so tired of switching meds. I can't resume elmiron until after my colonoscopy on 12/9.
Could Cystoprotek actually cause problems? I'll call my dr. tomorrow but I'm curious.

[leelee88]

Anything is possible with medicines, I know I tried it and could not take it.. Think it was the quercetin that does not agree with me..But it does help Many! So it could just be something you ate or drank even the water you drink can cause a flare. Hormones is another thing that can cause a flare, and yes like you said stress is a big factor!!
So you might want to give it a few more days and just see, and if you are still flaring then stop it and see if the flare goes away..And yes I it would be a good idea to put that call into your Dr! I hope this passes soon..

[kadi]

I flared horribly & got a migraine the one dose of Cystoprotek I took. But, I found out in allergy testing later that I am allergic to shellfish, so that is probably why.

Hope you feel better soon,

[ICNDonna]

How long have you been off elmiron for the colonoscopy?

Donna

[KarenAnne]

Donna, I was put on elmiron by my diagnosing urologist on 10/23, post cystoscopy. I sought a second opinion with another urologist because the first was rude & annoyed when my husband & I asked to explain my diagnosis.
I saw the second urologist who kept me on elmiron & added sanctura. I developed laryngo pharyngeal reflux from the sanctura & had to stop that. Then 3 wks. ago I had rectal bleeding & called the new urologist. His nurse told me he said to stop it until after my colonoscopy on 12/9. Two weeks ago I saw Dr. Whitmore's NP who put me on the cystoprotek. I had to wait for it in the mail, that's why I just started it this week. But today, I went for my follow up to this urologist & he put me back on the elmiron. He said he does not think the elmiron caused the rectal bleeding (I get polyps). I gave him a copy of Dr. Whitmore's medical plan for me & explained that I went to see her NP two wks. ago. (I see Dr. Whitmore 1/21) I was very annoyed he had his nurse pull me off it, only to put me back on it. But there was no point in telling him this & getting more upset. This urologist was glad I was seeing Dr. Whitmore because he said she specializes in IC, while he only treats a few patients with it. The rest of my meds are hydroxyzine 10mgs., levsin sublingual prn, prelief w/ meals, estradiol/atropine cream & valium/traumed suppositories vaginally, ativan 0.5mgs. prn, nexium & diovan. So I am starting the elmiron back up today. This is probably much more info than you wanted. Thank you.

[i3luebyrd]

Regarding the Elmiron...

All the doctors I have seen have assured me that Elmiron does not cause this side effect, but I am POSITIVE that it messes with my digestive system. I'm not sure what caused the bleeding, but be careful and pay attention to your symptoms while on it. I'm still taking Elmiron, by the way, I just lowered the dose a little. The side effects, I decided, were worth it for me. I hope it all works out and you feel better soon!