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kcjmom
03-28-2004, 01:28 AM
When you have the cysto w/ hydro done as treatment for IC, how much does it reduce the urgency/frequency of you going?
as I had said, when I told the Dr. I have gone less after the cysto, he is thinking I may have IC even though my cysto was normal. I go back to see him in 6 months (sooner if I have problems).
Before the cysto I did a 3 day pee journal and I peed 14 times in those 3 days. I just completed my 3 day journal yesterday and now I am going half that amount, it was 7, 7 and 6. So does that sound like a reduced amount to say I could have IC?
If so, how long can I expect this to last?

I printed out the list of foods and am trying to watch what I eat. I stopped drinking my oj in the mornings and we have been on a lemonaide kick here in the house for the last few weeks, oops.. stopped that too. I am now realizing from reading that, that last year when I was having problems, the first uro I saw kept wanting me to take 1000mg of Vit C! When I told him it burned me, but at that time I thought it was vulvodynia burning, now I realize it was probably this, he told me that the Vit C shouldn't cause burning. I refused to take it, so he wanted me to take cranberry pills, they did the same, and I refused to take them too.
I am so glad I left him.

ICNDonna
03-28-2004, 03:58 AM
A cysto in he doctor's office with no anesthetic does not usually diagnose IC. My bladder appeared to be completely healthy and normal. But when it was distended in he hospital with a spinal anesthetic, the pinpoint bleeding appeared and the ulcers were visible.

The good thing about the hydrodistention is that it eased my symptoms for several months. I have now had the procedure 35 times and each time has resulted in a great improvement in symptoms for months.

Not everyone is helped by hydrodistention, but most are diagnosed, which is also a plus.

Warm hugs,
Donna

kcjmom
03-28-2004, 11:41 AM
Donna, I did have it done in the hospital. I had general. I am sorry, I did post my story in the not yet diagnosed room. I am used to my other message boards (not ic boards) that I go to where they know me, so I assumed you all would remember who I was and my story. When I went back to the Dr. a week later He said he didn't think I had IC because I looked normal, he thought I may just have urgency.
When I told him I was going less then I was before I had the procedure he is know rethinking that I may have early stage IC. He wants to see how I do for 6 months with no medication at this point.
My question was.
I was going 14 times before the hydro and
7 times after. This is according to the 3 day journals I did for him.
Is this normal for those that ARE helped by the hydro as treatment?
I'm sorry if I wasn't clear, it was late and I was tired, I knew what I was thinking, just didn't get it written right.

sleepyangel30
03-28-2004, 01:45 PM
I had a hydrodistention a month ago, After the procedure I felt no pain, I thought I would be in pain but I wasn't, I will do the procedure again if I have to, I go to the bathroom now about every 3 or 4 hours and I get up maybe once a night and sometimes not at all. I'am taking no medications either, I was allergic to those white pills that make your hair fall out so I stop taking them a few weeks after the sugery, My recovery went fast. Sometimes my bladder feels so tight as if it's on it's way to healing - like a healing wound, I have no problem urinating now it comes right on out when I have to go. I'am glad I found out early about IC, By the way, My IC started back in oct 03, I was with a different urologist at the time, He didn't even try to find out what was wrong with me he only treated me for over active bladder - So I went to another urologist my mom was telling me about, She said he's a good urologist and he is.

ICNDonna
03-28-2004, 06:11 PM
Hydrodistention does significantly reduce my frequency. The last time I had one was in July of last year --- and with the help of monthly DMSO, I'm still doing well. I've been in a bit of a flare for the past week, but much better now. I had a DMSO on Thursday and I think that's what caused the improvement.

Warm healing thoughts,
Donna