rosiera
03-28-2004, 01:27 AM
:hi:
Hello
I have been diagnosed with IC for 1 ½ years now. I have a wonderful urologist and gynecologist. I just could not bear the pain any longer and my family doc. Referred me to a good gyn who when examining me by ultra sound found a cyst the size of a grapefruit which engulfed my ovary and tubes on one side. He wanted to make sure that there was nothing else wrong because some of my symptoms were not related to the tumor. He then referred me to my urologist. the urologist tested me and said most definitely I had ic and the tumor was pressing on the bladder making the pain magnified. So on aug. 25 2002 both docs operated on me at the same time. One removed the tumor with the loss of my left ovary and tube. My urologist looked at my bladder and saw holes and cracks in the walls. At first I was very depressed with the diagnosis and the news that I would never bear children harden the blow. But knowing what the cause of my constant pain for years, and multiple embarrassing moments of loosing my bladder on accident had a name and a cure brought some relief.
I lost control of my bladder when I was 18 on a date in my boyfriend’s car less than 1 mile from a service station, I wet his leather seat, crying my eyes out. All I could say was im so sorry. As a teenager wetting the bed, not sure if it was me or my 4 yr old sister who shared my bed. I also have IBS which I can see a pattern that the 2 may play hand in hand. The good part of this history is that after my 6 month on treatments my doc saw such a change in me. I got on the internet researched what was good and bad for ic stuck to a strict diet (by the way the diet is now a way of life) took my meds on an empty stomach. Which helps in the healing?
I was chatting with a co-worker and sug. That she see my doc and she did and she does have ic also. But now she is on the road to recovery. My doc says I should be the poster child for ic. I was in such bad shape. He offered me pain pills to deal with the pains of every day living with ic. I choose to not take anything stronger than loratab and also used ultram a lot in that 1st year. My doctor thought I would not be able to keep my job. I work in retail and every day I am picking up 20-30 lbs boxes. But with a positive out look. And the need to whip this I strove and never lost my job. I still have a lot of IC pains And I can tell when I’ve done too much. But the fact that my doc was surprised so much by my successes gave me more strength to carry on. Now after my last 3 month check up my doc thought I had control of things and felt we could go 1 year without a check up appt. and he took me off of elavil. (But to be honest it’s been a hard week and half since I stopped the Elavil. The urgency is back and 2 times a night i'm up again.
Over all I am Happy again because I see light at the end of my tunnel and the music is sweet.
Good luck to all and best of health to you too.
Rosie
Hello
I have been diagnosed with IC for 1 ½ years now. I have a wonderful urologist and gynecologist. I just could not bear the pain any longer and my family doc. Referred me to a good gyn who when examining me by ultra sound found a cyst the size of a grapefruit which engulfed my ovary and tubes on one side. He wanted to make sure that there was nothing else wrong because some of my symptoms were not related to the tumor. He then referred me to my urologist. the urologist tested me and said most definitely I had ic and the tumor was pressing on the bladder making the pain magnified. So on aug. 25 2002 both docs operated on me at the same time. One removed the tumor with the loss of my left ovary and tube. My urologist looked at my bladder and saw holes and cracks in the walls. At first I was very depressed with the diagnosis and the news that I would never bear children harden the blow. But knowing what the cause of my constant pain for years, and multiple embarrassing moments of loosing my bladder on accident had a name and a cure brought some relief.
I lost control of my bladder when I was 18 on a date in my boyfriend’s car less than 1 mile from a service station, I wet his leather seat, crying my eyes out. All I could say was im so sorry. As a teenager wetting the bed, not sure if it was me or my 4 yr old sister who shared my bed. I also have IBS which I can see a pattern that the 2 may play hand in hand. The good part of this history is that after my 6 month on treatments my doc saw such a change in me. I got on the internet researched what was good and bad for ic stuck to a strict diet (by the way the diet is now a way of life) took my meds on an empty stomach. Which helps in the healing?
I was chatting with a co-worker and sug. That she see my doc and she did and she does have ic also. But now she is on the road to recovery. My doc says I should be the poster child for ic. I was in such bad shape. He offered me pain pills to deal with the pains of every day living with ic. I choose to not take anything stronger than loratab and also used ultram a lot in that 1st year. My doctor thought I would not be able to keep my job. I work in retail and every day I am picking up 20-30 lbs boxes. But with a positive out look. And the need to whip this I strove and never lost my job. I still have a lot of IC pains And I can tell when I’ve done too much. But the fact that my doc was surprised so much by my successes gave me more strength to carry on. Now after my last 3 month check up my doc thought I had control of things and felt we could go 1 year without a check up appt. and he took me off of elavil. (But to be honest it’s been a hard week and half since I stopped the Elavil. The urgency is back and 2 times a night i'm up again.
Over all I am Happy again because I see light at the end of my tunnel and the music is sweet.
Good luck to all and best of health to you too.
Rosie