Pelvic congestion syndrome

[anniepie1976]

Hi, I was told I have this today from a pelvic MRI and I'm wondering if there's anyone else out there who has this. I have all sorts of pelvic issues being IC, vestibulitis/generalized vulvodynia, rawness rectally, coccyndynia. Could this contribute to all this? Has anyone had treatment for it?

[anniepie1976]

just wanted to add in case anyone is wondering that this is vericose veins running throughout the pelvis. I was told I have a lot of dilated veins surrounding all around the uterus. I'm just concerned if this is all more of a vascular issue than a muscular like I thought originally thought with all this pelvic floor dysfunction...hence explaining why two PTs have not helped at all!

[Krisssy]

I am going to be tested for this tonight. What were your symptoms? Krisssy

[anniepie1976]

Honestly I have so many symptoms that haven't responded to any treatment yet I'm not sure what is due to the pelvic congestion. I have bladder pain, frequency, vulva rawness, burn, itch along with vaginal vestibulitis, same symptoms rectally too and tailbone pain. I am having a venogram/embolizing done to treat these veins Jan 9th. I hope it can take some of my pain if not all of it! What kind of test are they giving you? Godd luck. Keep me posted.

[Krisssy]

I am having an MRI of my pelvis. I have a lot of the same symptoms as you, but my pelvic pain feels like a throbbing in my urethra. The doc says it is coming from my bladder neck, but it feels like the urethra because of the nerve involvement. I also have urgency and frequency and have noticed itching in the vaginal area and soreness too. Krisssy