Just Diagnosed With IC

[pburghippie]

Ive been on here awhile and yesturday a had a Cysto/hydro. and my Dr. said that my bladder looked very positve for IC and I had all the symptoms of it. I started taking Elmiron today, I have to take it 3x a day.... Everyone I know says that their is life arounds IC and Im trying my hardest to think about that Im really scared and plus Im very afraid of loosing my hair because of Elmiron. I have a great family and are very understanding. My husband is the best thing if my life and I wouldn't be able to move on with out him. I have a hard time talking to people at work about this because one of the employees is pregnant and whenever i talk about IC she always finds away to turn my pain into her being pregnant. For example after the procedure I call my work to tell them the results and I tell her "well I have IC" and this is what she said" Well aleast your not pregers....Try pushing out a watermelon out of a pinwhole" I mean come on do I have to compair my bladder disease to her being pregnant. Im so stressed out and very much scared and I dont think i can face work and all their wonderful comments...lol
Brittiany

[Goldfinch]

There are just some people out there....they aren't mean, they are just wrapped up in themselves and can't see beyond their own nose, or in this case, belly. That woman at work sounds young and probably had an easy time getting pregnant, with no complications, so she doesn't remember how lucky she is to healthy. So it goes, there's not much any of us can do about those people who don't listen and are unable to reach out to others. It sounds like you have a good doctor and a treatment plan, and a supportive family--that's all good.

[ilovekittys]

after 9 months the baby comes out ic is forever...i have both i would rather have the baby and i was on bedrest for 5 months!

[leelee88]

Well At least you know now what you have!! And now you can concentrate on finding what treatment will work best for you.. Most ICers do not loose their hair.. And if you do it is NOT the end. I had to stop Elmiron due to hair loss but found other medicines that have helped my IC.. It has been two years since my Diagnoses and I am doing pretty good now.. I mean not the best but better..

And as far as your Co workers to be honest they will probably never GET it! So why bother.. I have learned even with family members that some just do not want to take the time to try to learn about IC..This is why I come here.. People here understand what I am dealing with and how I feel! So when I get frustrated with the outside world I come here and vent..Because I know people here can relate..

I do hope the Elmiron helps you. Many have had good success with it.. Just please note that it does take time for it to work! So try not to get to discouraged.

[wfarrell]

I just got my elmiron in the mail today so we will be starting it at the same time. :woohoo: I am worried about my hair too! Everyone on this site is here to help each other so always remember that

wendy

[dee106]

Hi, I am still new here and learning. I also am on Elmiron since November 17th, I am not sure if there is a certain period that hair will be lost/and maybe it won't happen, not sure. I am scared to. But what brings me calmness is that there are so many seasoned people here who have been going through this for so long and they are a *BIG* help. Keep writing and venting and many have a lot of good tips to help. Some people will always bring the conversation back to themselves...let it go they are who they are. I met someone at work today and through a conversation found out she also has IC, have to tell you I started to cry from joy, just nice talking to someone who understands. I'm 46 and I am still going through a *mourning* period I guess you can call it. One day I could do all of this, and the next I am eating rice and drinking water and just trying to get the feel of how my life will emerge. Hang in there and keep coming here, we will all listen to you your thoughts, fears, and whatever else you wish to talk about. It's true, it does alter your life. *HUGE* hugs.