ICNDonna
11-06-2008, 02:12 AM
Yesterday, 07:37 PM #19
fruitc88
ICN Member
Join Date: Oct 2008
Posts: 1 Lost in TO (Toronto)
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Hi Cindy Lu, hi everyone,
This is my first post and I still feel a bit reticent about going public - for now. I am not sure where to start - even the diets are conficting in different sites. Hence I started to navigate. Came across your Cindy Lu's name on the Canadian chat site first, and then others. I was looking for a IC specialist in Toronto who could help with this constant pelvic pressure, lower back throbbing and pain down the leg, urgency - inability to sleep. I hope you were able to find a good one and have been feeing better.
I was diagnosed a week ago from a cystocopy under a general anaesthetic, with a bladder and urethral distention. I had a very nice urologist - but really unfamiliar with IC- I have been using diet only to manage but as I don't cook - it's been rough. I want to know best probiotic, best meds (i have a reaction to codeine that limits my use and am prone to drug side effects). I had lost a pregnancy after trying fertility treatments for a year ( I am on my own/no previous attempts to conceive prior to trying all last year, late bloomer, fyi ) and repeatedly had to take hormones to help "hold on to the pregnancy at my advanced age". I thought that loss was devastating enough to deal with - and I am still reeling from the possiblity/reality of giving up my long held dream .
For me, bladder "infections" characterized the last few weeks of the pregnancy / first trimester prior to being told there was no heartbeat. The D & C was recommended and then 3 different courses of antibiotic -to address the apparent "bladder infections" ( i.e. white and red blood cells) - but ultimately no bacteria found at the last urinanalysis, red blood cells only 3 weeks after the antibiotics were out of my system - yet the IC -like symptoms have been unrelenting/debilitating for the last 3+ months.
I am so tired, must continue to work to pay the bills, and am really hungry, lol!!I just had a birthday Sunday but really had to limit/cancel celebrating.
Hoping you/anyone can provide help re: Toronto support/next steps/ a process perhaps, to priortize as early intervention nis my best chance. I am unsure if I should take meds or go naturopathic. Food has become such a difficult area to avigate that I can see I prefer to stay away from food, lest I incute another attack. This is a lousy coping strategy!!I want to make better choices in that regard. I know I would welcome thoughts or insights or advice on diet and meds - its' just too overwhelming to navigate alone and family support is limited as most live out of town/country. Am trying to stay positive.
Many thanks!
fruitc88
ICN Member
Join Date: Oct 2008
Posts: 1 Lost in TO (Toronto)
--------------------------------------------------------------------------------
Hi Cindy Lu, hi everyone,
This is my first post and I still feel a bit reticent about going public - for now. I am not sure where to start - even the diets are conficting in different sites. Hence I started to navigate. Came across your Cindy Lu's name on the Canadian chat site first, and then others. I was looking for a IC specialist in Toronto who could help with this constant pelvic pressure, lower back throbbing and pain down the leg, urgency - inability to sleep. I hope you were able to find a good one and have been feeing better.
I was diagnosed a week ago from a cystocopy under a general anaesthetic, with a bladder and urethral distention. I had a very nice urologist - but really unfamiliar with IC- I have been using diet only to manage but as I don't cook - it's been rough. I want to know best probiotic, best meds (i have a reaction to codeine that limits my use and am prone to drug side effects). I had lost a pregnancy after trying fertility treatments for a year ( I am on my own/no previous attempts to conceive prior to trying all last year, late bloomer, fyi ) and repeatedly had to take hormones to help "hold on to the pregnancy at my advanced age". I thought that loss was devastating enough to deal with - and I am still reeling from the possiblity/reality of giving up my long held dream .
For me, bladder "infections" characterized the last few weeks of the pregnancy / first trimester prior to being told there was no heartbeat. The D & C was recommended and then 3 different courses of antibiotic -to address the apparent "bladder infections" ( i.e. white and red blood cells) - but ultimately no bacteria found at the last urinanalysis, red blood cells only 3 weeks after the antibiotics were out of my system - yet the IC -like symptoms have been unrelenting/debilitating for the last 3+ months.
I am so tired, must continue to work to pay the bills, and am really hungry, lol!!I just had a birthday Sunday but really had to limit/cancel celebrating.
Hoping you/anyone can provide help re: Toronto support/next steps/ a process perhaps, to priortize as early intervention nis my best chance. I am unsure if I should take meds or go naturopathic. Food has become such a difficult area to avigate that I can see I prefer to stay away from food, lest I incute another attack. This is a lousy coping strategy!!I want to make better choices in that regard. I know I would welcome thoughts or insights or advice on diet and meds - its' just too overwhelming to navigate alone and family support is limited as most live out of town/country. Am trying to stay positive.
Many thanks!