cystoprotek success

[rupunzel]

Hi there, After two years of ic and anti deps to control it, I have been off all pain meds and anti deps for 6 weeks. A few months ago I started cystoprotek and after taking it a few weeks I had an improvement in my symptoms, pain, frequency and urgency. Six weeks ago I stopped my anti dep.
I still have to stick to that awful ic diet but the only tablet I take is cystoprotek. I am so glad to be off pain meds.

[allipal]

Wow- that would be awesome to just be on one otc med for this. I haven't done much research about that med, but will look into it now. I don't like having to take this many meds all the time either... bad for my system and bad for my wallet!!!

[tangerine3]

that's great to hear. i might have to start cystoprotek if i can't find heparin for my instills at the end of dec.

[Julie B]

I like CystoProtek also. I even gave it to my daughter for her eczema after meeting Dr. Theo at a meeting and it calmed down her skin. She can have raw skin at times, even at 27 years old. The only problem for her was the capsule made her tummy sick. (She has that problem with any capsules, gel or otherwise). I am really convinced that mast cells, at least for me, are a big issue.

Glad you are doing so well!

[ICNDonna]

Cystoprotek is available in the ICN Shop if you're interested in giving it a try.

Donna

[rupunzel]

I was on it for quite a few months ( about 8) before I realized that it was helping. After many months of uncertainty, I realized that if I didn't take it or I didn't take enough, then my symptoms would return. That proved that it was working for me. Also, you are right about having stomach upsets with cystoprotek. I always have it with some food, then it doesn't bother me.

[sully02]

I just started cystoprotek about 2 1/2 weeks ago so don't know if it is helping yet of course. In fact, with all the pain I am having I am sure it has not taken effect yet. But, I wanted to try it instead of elmiron for two reasons, it is natural and it is way cheaper. At our support meeting they suggested storing it in the freezer, which is what I do. And taking it with food, but I have not noticed it bothering me at all. And I do have a very sensitive stomach.

Does anyone know if peanut butter is on the no list? I am a vegetarian and I eat a lot of soy which is on the no list so I was using peanut butter for some protein. I swear all the food I like to eat is on the no list. I love fresh fruits and veggies and yogurt and cheese, and on and on. I know I am not alone with these problems. Being new to all this, I find it to be overwhelming. I just can't do the social things I used to do. I have no energy, is that something others have also? I go from the washer to the couch to the sink to the couch to the dryer to the couch, etc .

Thanks for listening.
Sandy

[tesschron]

I was unable to tolerate Cystoprotek; when I started it, I was in low flare anyway, took for a week, week and a half and forgot after that - 2 weeks later, realized as I was taking the BC pill, that I was in the guaranteed flareup dates - with no flareup. Only change had been the Cysto, so I took it that night - and mild flare - over within 24 hours. So, I took the list of ingredients off the back and experimented with info from this board. Turns out I can't tolerate chondroitin - but glucosamine sulfate, minimum 1000 mg per day, eliminated the regular flareups. I have since added quercetin with no negative effects - don't know if it is adding anything, but since it also helps with allergies, can't hurt. So if the whole supplement isn't working, or causes discomfort, do try the components, one at a time. I now swear by it. The irony is, I should have known to use glucosamine, I was giving it to my cat with IC (yes, I have a matching pet), it is known to work on cat bladders, which are considered similar to human....

terry

[SharonA]

Sandy...Since peanuts are in the Usually Problematic section, I assume that peanut butter could be on that list, also. I do fine with peanuts and peanut butter, but I am not that diet sensitive. If you want to try it, use just a little the first time and make sure you are not adding anything else to your okay list. Wait for a couple of days and try it again, but with a little more. Keep doing this until you either find it is a problem or that you can tolerate it.

[anglico2024]

I ordered the tablet kind of CystoProtek. But my mom cannot take it in a pill form. Is there a cream. :bow: Can anybody help me. Thank you very much. I'm still trying to help my mother but she's so stubborn. She doesn't need to suffer, but she's scared because of her allergies.:toilet:

[Taramc]

I started CystoProtek when a member here sent me her leftovers after giving up on it. I noticed an improvement, but was too afraid to run out so I was only taking 1 capsule a day.

I finally found a little financial support from my dad 2 weeks ago and have started taking it as directed: 4 capsules a day. He says it improves the "mucin" film, which is what the GAG layer is made up of (right?).

I'm seeing some improvements, especially in my ability to get to sleep at night without having to pee 12 times first to relieve whatever I'm flaring from (usually my dinner or meds). It's worth the money!

And I, too, have had symptoms get worse when I quit taking CystoProtek. Same with Cysta-Q. I have to budget around these two meds. Though I'll never be able to afford all that Desert Harvest Aloe!

[CystoDeb]

I am the product manager for CystoProtek. I'm so glad to hear the product is working for most of you!

I want to clarify the subject on keeping CystoPrtoek in the freezer. The manufacturer recommends that you do not keep the entire bottle in the freezer as the continuous low temperature could compromise the integrity of the product. You can keep the bottle in the refrigerater as long as you keep the cap secure so that no moisture gets into the bottle.

What we recommend concerning the freezer is that you put ONLY the capsules you are about to take in the freezer for about 30 minutes before you take them. This cools the outside of the capsules down enough so that they pass through your stomach before the ingredients are released into your system, helping to avoid any potential stomach upset.

I also want to emphasize to Sandy to be patient. As rupunzel points out, it may take several months before you begin to feel relief. Daily compliance and patience are truly the keys to success with CystoProtek.

Good luck to all!

[ksr727580]

I found for me that cystoprotek and heparin instillations only worked together, if I drop one I get some symptoms back. It did take about 2 months before I really noticed improvement.