ic makes me sad...

[Tinkerbell23]

Hey all, i havent been on in awhile (sorry) i have been sooo busy with work! Anyway, just needed to vent...i went to a halloween party at a bar on sat w/ my fiance and friends. (he was jack sparrow, i did his make-up and he looked great! and i was a female pirate) it was so crowded and there was only 1 bathroom w/ 4 stalls, so picture 100 girls in costumes sharing this bathroom...after the 3rd time i waited on the crazy line to pee i decided i had to leave...i felt bad making john leave, he didnt seem to mind though and he understands that i always think and plan ahead on where bathrooms are. but it bummed me out...i miss just being normal...i know they make IC bathroom cards, but 1. i figure the snobby girls on long island would never allow me to go ahead of them and 2. if i got the card i'd be admitting to myself that there is something wrong. its weird, like i know i am sick, but there is certain things i wont give into just yet. my mom says i am too hard on myself, but i am only 25! i should be able to hold it in! I feel like the second hydrodistension i had made be better, but then made me worse. i feel like before it i wasnt peeing 27 times a day, and i know for some people that is nothing, but before i was only going 10-12. and now i cant hold anything in. i dont know, some days i am my usual "silver lining" self and others i just cant do it...thanks for listening

[Becky Boo]

You vent away dear Jenn, we're all with you & know exactly how you feel!!! It sure is hard ay!!!
Chin up, stay positive & don't dwell on it! I'm sure your fiancee didn't mind leaving with you - that's what relationships are about, standing by each other :smile tee

[ICNDonna]

:grouphug:

Donna

[SharonA]

(((Hugs)))

[Tinkerbell23]

Thanks so much!

[leelee88]

It is fine to vent! We all do have days...I know I do..(((((hugs))))))

[Maddy487]

hey! i totally understand how you feel. I'm barely 21 years old and recently was diagnosed. I do like to go out and drink with my friends and now I feel that I can't and if I do I know I won't really enjoy myself because of my frequency and urgency. It is hard to deal with but i'm sure you're fiancee understands. It doesn't mean you have to miss out on everything just maybe certain tiny bars lol :)

[Tinkerbell23]

Thanks, its just hard because my friends like to go to the trendy bars and on nights like thanksgiving eve they are so crowded, so its tough for me to have to wait on bathroom lines. my fiance just said the other say sarcastically "its nice that we base whether or not to go out on the bathroom size" some days he gets it and others i think he gets frustrated! i always say "if thats how you feel, then imagine how i feel!"

[katie87]

Ladies I am 20 ( will be 21 on xmas) and I so feel for ya! I am always having to pee, when i drink alchohol i have bad pain and bad frequency, once every drink or more. I will be wanting to celebrate my 21st but its so hard bc alchohol is a big trigger for me although i do drink it sometimes, because i figure it..... I am in bad pain 6-10 every day, so why not..... I hope u alll have a friend or partner in your life who understands and is comforting about your pain and frequency, it helps a lot . better yet... someone else who has to pee a lot so you have company!! lol

[Tinkerbell23]

hey katie,

some days i have the same attitude and i'll just eat some buffalo wings because i figure i am in pain anyway whats a little more. its so frustrating! i wasnt diagnosed until i was 22, but i totally feel for you. i find that beer doesnt irritate my bladder, but i will pee all night long even w/ just one and mixed drinks cause pain, but i dont pee 100 times...its a catch-22...try to enjoy your 21st b-day, all the b-days after this one you'll feel old...so enjoy it as much as you can!! you could water down the drinks, sometimes that helps me or i will drink a large glass of water, then my drink and then another water...that helps too...

[georgecoolname]

Praying for ya. How do you get an IC bathroom card? Some people never have to take for granted where bathrooms are and availability, etc. Lucky them. Glad you have an understanding friend. I can't even get that with my school.

[april ryan]

I had bad frequency since I was a child ( 20-25 a day).. That's why I never noticed that it was wrong. I've always just accepted it and also in queues etc, I always assumed that for the others was the same, so I didn't mind that much.

Perhaps when you are conscient that frequency is related to a nasty illness your way of perceiving it changes, giving you ansia and negative thoughts, because you are "different" from the others.

Just an idea ..

[Tinkerbell23]

Praying for ya. How do you get an IC bathroom card? Some people never have to take for granted where bathrooms are and availability, etc. Lucky them. Glad you have an understanding friend. I can't even get that with my school.

you can get it through the ICA at ichelp.org i think its only a few dollars.

[icgennifer]

Hi Jenn,

I totally hear ya.. Im 27 and some days I feel like I can conquer anything and then there are other days when I can't stop crying! We'll get through this. I am so happy you are engaged.. that gives me hope for me and my boyfriend.. who I hope to marry one day!

[Krisandra83]

Hi Jenn,

Hang in there.. I know what you are talking about. I am 25, and I with hold going out a lot... due to the fact of long bathroom lines, and sometimes friends making comments. hang in there, and vent away.
I saw you are getting married soon. CONG!! Hope your wedding plans are coming along..
Hugs, Krisandra

[Tinkerbell23]

Thanks :) i think we are all basically in the same boat here... and i am sure things will work out the way you want w/ you and your boyfriend :) communication really is the key!!!

[Lizzy1010]

Although I'm not in my 20's anymore I can totally relate. My husband is always going to work events or happy hour and I constantly take a pass. It's either too far away so I'm afraid if I have a drink or two I'll never make it home without having to stop several times to pee. Or, I just don't want to drink and be down and out for a few days while my bladder recuperates. I too just want to be normal. I long for the days of partying without having to debate in my head what to drink, how much, if I should, what's going to happen if I do. It seems ridiculous. Hang in there. I went into remission in my 20's and it lasted for a few years. I got to eat and drink whatever I wanted and it was awesome! I hold onto hope that it will happen for me again and this will all be like some sort of bad dream. Hang onto that man of yours - he sounds like a keeper:). Its hard to be in a relationship with IC in the mix. Happy wedding planning!

[Tinkerbell23]

Thanks :) Yes, he is DEF a KEEPER <3 <3 <3

And I am enjoying the wedding planning :)

Take Care!!!