Starting Treatments

[ChristineW]

Hi All....I went today to my urologist for my follow up after the cyst
o/hydro I had 2 weeks ago that confirmed I had IC. I was started on Elmiron today and Ultracet for pain. I am starting my Bladder Installations either tomorrow or beginning next week for the next 6 weeks. They are doing the bladder instillations with Sodium Bicarbonate , Linocaine among other things as well...anyone have that kind of bladder instil and whats the differnec of them all? Im in such sever agony every day...so Im hoping this will all work. Any advice, comments or anything on this will help!
THANKS
Christine

[Dixiefireball]

i'm sure all doctor use diff types of dmso i do the heparin and marcaine but they don't do it at the office any more i do them at home one to three times a day they was a new study that came out that said it was safe to do it that many times if needed before that study i could only do them i think it was two or three times a week.
i did however when i first was dx with ic went threw the six weeks of dmso they did try diff ones on me I'm not sure which they was but i do know the heparin and marcaine has been a god sent to me.
i hope these help you and you feel better soon
'sending you hugs and prayers
Rhonda

[ChristineW]

Thanks so much for your reply...I do apreciate everything I can learn. Im in pain and have been for years and just hope for some relief.

THANKS AGAIN.:p
Christine

[Sesheta]

I started with DMSO with linocaine. Linocaine is used to numb your uretha so it won't hurt as much, but I found it also numb my bladder for a short while. Kind of an "ahhhhhhhhhhhhh, that feels good." I couldn't tolerate the side effects of DMSO: I smelled like garlic. It was real yukky. So, then I switched to Herparin and Linocaine. This worked well also. My regular gynecologist was doing the instills, but now I don't have anyone who will do the instillations. I can't do them myself because I'm unstable. My uro-gynecologist's office will gladly do them, but they're 5 hours from where I live. Bummer. But it's my understanding that the instillations are the number one defense against IC. I also have someone recommend to me a long time ago to ask the doctor to use a pediatric catheter as it is smaller and may not hurt as much. My instillations didn't hurt, so it wasn't an issue with me. And I also looked forward to the short relief of pain!!! I have been reading how some patients are receiving "cocktail" instillations, but I have never had one. Can anyone give us feedback on the cocktail instillations?

Blessings, Sesheta