Having some major problems

[SandyRN]

I didn't know where to put this because it doesn't quite fit into any category. One good thing is that I found out at my last gyno appt the other day that I had adenomyosis and that was causing my horrid periods. He said it was a good thing we took it all out just to be on the safe side. My infection where my cervix was is gone now and I'm cleared for sex....LOL If I could get rid of these bladder spasms I would be ready and willing.

Now for the bad things. I've been having some sort of hand/eye coordination problems that keep me from writing much. Everything I write I have to backspace to fix my typos. When I eat I miss my mouth and my spoon will hit my cheek. I've also had bouts of what I think are Crohn's attacks with severe abdominal pain and diarrhea. To top that off I also have a scratchy throat, am very hoarse and just feel off. I'm scared. Mostly from the hand/eye thing. The other night Tom was ready to take me to the ER because I couldn't leave the bathroom, when I did I was doubled over in pain and before, when I could still eat I was zoning out, missing my mouth withh my fork or spoon....and it still happens on occasion. Had another Crohn's attack last night and I fear that I will wind up in the hospital soon because with each attack teh pain worsens. I forget words....I used to do that a lot anyway, but I mean this is SO much worse. I'll be talking and pause and Tom will automaticaly fill my words in for me.

Fear is keeping me from the doctor. I know I must go. This can't go on. I guess I have to see the GP first for the general problems then go see the gastro next,

I owe pm's, I have a lot of people I dearly miss talking to, but I am terribly afriad right now and in my own little world. It's taking me forever to type this because of my typos.

Any words of wisdom besides going to the doctor would help because I'm thinking the worst. Tom has said more than once he think['s I'm having TIA's,l which are mini s trokes and I tend to agree with him.. It happejhs again and I will be at the ER.

Just pray for me....Ii guess I should have put this there but it didn't seem to fit anywhere when I started writing.

I miss you guys.....those of you that have my number are more than welcome to call me over the next few days as I need a friend, it's just too hard to sit here and type.

Hugs, Sandy

[dg2901]

You know what you need to do so I'll refrain from repeating the words.

Hope you start feeling better soon!
Diana

[SandyRN]

Thanks Diana! I hope things are going ok with you now since your surgery!!

Hugs, Sndy

[dyno]

Sandy, sending hugs and prayers. Now you are a very smart lady and you know you need to make that call and get seen. Please for your sake do it tomorrow and if you have a bad night, head to the ER.

[VickiB]

Ditto what Jolene said!

I'm sorry you're having to deal with this now too! I can relate to the fear keeping you from taking action because I'm the same way. Logically I know what needs to happen and yet I do nothing. I once saw a tornado on the ground and stood frozen at the window watching it go by rather than seek cover. (?)

Could what you're experiencing be a reaction to some meds you are taking I wonder?

After you get checked, please let us know how you are doing!

Vicki

[SandyRN]

My meds are the same except adding in the valium for the spasms. But, I've taken it before without any of these problems, and sometimes it happens when I've not taken any valium at all that day.:loco: I was worried that it had something to do with the surgery and the estrogen patch.....don't know what to think and believe me I've been thinking!!! I hadn't had any problems with the estrogen patch at all, so I tend to think thats not it, but I do worry there may be some sort of clot formation post op since I had so much trouble. I wish I knew. I'm calling the GP tomorrow, promise!!!

Thanks for the support, I really, really need it this time!!

Hugs girls, Sandy

[ICNDonna]

I don't have any suggestions that don't include medical help. Please make an appointment today.

Donna

[snowgirl]

I didn't know where to put this because it doesn't quite fit into any category. One good thing is that I found out at my last gyno appt the other day that I had adenomyosis and that was causing my horrid periods. He said it was a good thing we took it all out just to be on the safe side. My infection where my cervix was is gone now and I'm cleared for sex....LOL If I could get rid of these bladder spasms I would be ready and willing.

Now for the bad things. I've been having some sort of hand/eye coordination problems that keep me from writing much. Everything I write I have to backspace to fix my typos. When I eat I miss my mouth and my spoon will hit my cheek. I've also had bouts of what I think are Crohn's attacks with severe abdominal pain and diarrhea. To top that off I also have a scratchy throat, am very hoarse and just feel off. I'm scared. Mostly from the hand/eye thing. The other night Tom was ready to take me to the ER because I couldn't leave the bathroom, when I did I was doubled over in pain and before, when I could still eat I was zoning out, missing my mouth withh my fork or spoon....and it still happens on occasion. Had another Crohn's attack last night and I fear that I will wind up in the hospital soon because with each attack teh pain worsens. I forget words....I used to do that a lot anyway, but I mean this is SO much worse. I'll be talking and pause and Tom will automaticaly fill my words in for me.

Fear is keeping me from the doctor. I know I must go. This can't go on. I guess I have to see the GP first for the general problems then go see the gastro next,

I owe pm's, I have a lot of people I dearly miss talking to, but I am terribly afriad right now and in my own little world. It's taking me forever to type this because of my typos.

Any words of wisdom besides going to the doctor would help because I'm thinking the worst. Tom has said more than once he think['s I'm having TIA's,l which are mini s trokes and I tend to agree with him.. It happejhs again and I will be at the ER.

Just pray for me....Ii guess I should have put this there but it didn't seem to fit anywhere when I started writing.

I miss you guys.....those of you that have my number are more than welcome to call me over the next few days as I need a friend, it's just too hard to sit here and type.

Hugs, Sandy

Sandy, you are not going to want to hear this but as I am reading it I am thinking you have two things going on here. The first thing that comes to my mind with the eye, hand coordination is TIA. I thought it before I even read down and saw what your husband thinks.Not what you wanted to here. You need to have CT and or MRI of your head whichever your md thinks. You need to make this appt asap. I can't tell YOU the importance of this as you know. My mother had a tia a few weeks ago right while I was sitting in the tv room talking with her. It was and is scarey. If it is TIA it won't show up on tests but atleast they can rule out factors.Better get that call into your GP and get tests rolling here. Sounds like a neuro consult in order here also.

The chron's thing not my area of expertise. You know more about it then I do.

One thing at a time but you really need to call your family md asap- now how many times on this board have you told members this. Well your friend Vicky RN is telling you my friend. Take care. Let me know. Vicky

[Sally939]

I am going to resist my fist instict of what to type. I can imagin how scared you are. I hope it all has a simple explanation or atleast a non serious one. I also hope someone can be home with you as much as possible. You have had a tough time recently ,I can only pray that this too will pass or get better.

[leelee88]

Sandy, I agree with the others and am very sorry for what is going with on with you..Many prayers are headed your way hun.. :pray:

[Mel53H]

My husband had several TIAs, but he did not have trouble with hand to eye coordination. His one side would go limp and would slur his words. He would eventually go back to normal after an hour or two after going to the ER. They don't last that long. Very scary, because you don't know if it is the big stroke or not. Although, they usually are a precursor to a real stroke which happened in my husband's case.

You probably know all of this, but I just thought I would tell you my experience with TIAS.

[SandyRN]

Thanks everyone. Mel, yes, I remember the problems your husband had and that is what I am afraid of with me. I know that TIA's are possibly if not likely a precursor to a real stroke which got me on the phone today. My doctor is out of town til Monday but they said if I had any more problems that one of the other docs in the practice would see me at the hospital. They're one of the few GP's that have practicing priveleges at the hospital, so that's cool.

I go Mon at 9:45, just enough time to get ready while my kids eat breakfast and get them to school then get to the doctor. I feel a little bit better today but still not nearly normal. No problems with the possible TIA's thank God...and knock on wood. My daughter is feeling kind of funky as well so as for the sore throat, achey stuff I suspect we have a bug. She went to school, she doesn't like to miss class (what a girl I have!!!!) but we'll see how she feels over the next day or so. I just hope I make it til Monday and can stress to the doc how bad and scary this stuff is for me. He's been my doc for about 6-7 years now and he'll do just about anything for me that he can so I know he'll take care of me, and if I have anymore episodes I WILL go to the ER...I promise that. I know what this could mean and it scares me to death.

So, wish me luck. I know I'm terrible with doctors, this whole hysterectomy thing was an example of that, but I k now better than to play with these symptoms!

Hugs, Sandy

[callie0767]

hope you feel better soon.get to the doctor soon .
courtenay

[kuntrygurl78]

I just wanted to say that I hope you have a great weekend, and that you get some answers from the doctor. :pray:

[snowgirl]

you are a smart lady. Good Luck let us know. Take care of yourself. Vicky

[mary124]

I know that you are a very smart woman Sandy, so I will add my 2 cents along with everyone elses. If you haven't been to the doctors yet, please go, (being Friday - I know that if you can get in to see a doctor you're in luck, )- hate to see you suffer thru the weekend. Get well.

[ICNJess]

Ohhh Sandy...you poor thing! I, too, would like to (gently) encourage you to get to a doctor soon. Please take care!!!

Hugs,
Jess

[Grammy]

I agree with the others that you can not let this go even though you are afraid of one more thing to deal with. I was wondering if you get all of your medication from one place(many of us can send away for some of ours). The reason that I asked is because they -the computer-keeps track of drug interactions and you are taking a lot of medications that could possibly do this. I had a friend who took lyrica for instance and on the second day she could not walk a straight line. The one thing that you need to insist on however is an MRI. A CAT scan is not as good as an MRI to make sure that all is ok. And please let us know how you are. Be assurtive. Take a friend or better yet if your husband can go with you, take him. Possibly make a list that you can have, because if you are like most people you do not think to ask all the right questions. We are all hoping that this will turn out fine for you. You have enough on your plate now.

[amaranthe]

Oh sweetie! I am so sorry! I got your pm, but got sick before I could w/b and havent been back on here since then. I will be praying for you that it isnt what it looks like. I pray that it is some fluke thing that can be fixed quickly and easily and that you will be back to normal. I know you are scared. But, you have to remember that worry is the oppositie of faith. You have to trust that God is in control of all parts of your life, including this, and pray and hand this over to him to deal with and know that he has a plan for you. So, when the fears creep in, pray about them and make a prayer reqest and we will pray with you and for you. We are here for you. You know that. We all love you and hope so much that you get some answers this week and that the Dr can calm your fears.

Much love,
Amaranthe

[leelee88]

Sandy, Please let us know how your appt goes, I have been praying for you!!

[SandyRN]

I got a good hand slapping from Sharon on the phone just now and I deserve it. My days are spent sleeping for the most part because I have no energy, none...then I wake up in time for my daughter to come home from school and we have mom/daughter time. Then everyone else comes home and it's off to the store and cooking dinner and doing laundry. I've had another episode last night of the strange TIA like things but I have gone to the doctor and they drew 4 tubes of blood....too many tests to mention. I am also having my carotid arteries ultrasounded, both sides of my neck, on Tues or Thursday of this week. I need to find out which one. I'm a little afraid of the results. Yesterday after sleeping ALL night the night before, I slept all day long yesterday...then last night I kept falling asleep, and I couldn't control it. I just couldn't stay awake no matter how hard I tried. I get really stupid, for lack of a better word and say and do things that don't make sense. I guess falling asleep is better than missing my mouth with the spoon and hitting my cheek!!

So, I PROMISE that after my ultrasound I will write and let you guys know how I am. I see that a lot of people care here and I am so sorry that I haven't written. My doc is checking my thyroid again to see if I need my meds raised so that I have more energy.

As for the hysterectomy I think I am doing ok with that....no hot flashes, no mood swings, etc. I only have the problems I mentioned above.

Thank you so much for caring. I am now chastised for not updating this post, as I should have and I am SO sorry!!!

Any news and I will post it.

Wish me luck with my tests as I am terrified I am having mini strokes and it could lead to the big one.

Hugs to all, Sandy

[SandyRN]

ps...about my meds, it's not my meds. I have two pharmacy's who communicate with each other. I get my pain meds at the doctor's pharmacy building and my daily meds like my thyroid meds, etc at a commercial store. They both know what I am on, I have made sure that they were aware of the meds and possible side effects.

I know it's not my meds because it doesn't happen all the time..I take my meds every single day so it's not that. I just don't know what it IS! :(

Hugs

[snowgirl]

sounds like a good plan ultrasound of your carotid arteries. Did you have an MRI or CT with dye yet? This is good though the ultrasound in the right diagnostic tool.

While you were in the hospital did get sub-q lovenox is it now?

Hope everything turns out well for you. How many weeks had it been. Do you think you are still tired from the anethetic as well? Good Luck. Vicky

[SharonA]

(((Hugs))) ...Just don't do it again, ya hear? :tsk: :lmao:

[SandyRN]

sounds like a good plan ultrasound of your carotid arteries. Did you have an MRI or CT with dye yet? This is good though the ultrasound in the right diagnostic tool.

While you were in the hospital did get sub-q lovenox is it now?

Hope everything turns out well for you. How many weeks had it been. Do you think you are still tired from the anethetic as well? Good Luck. Vicky

No, there was no need, that we knew of, for heparin or lovenox. I did wear the mechanical hose for about 48 hours before I MADE Tom take them off of me. They drove me crazy and I was moving enough at that point that I didn't need them.

I'll ask about a CT/MRI next after the ultrasounds.

Hugs!!

[SandyRN]

(((Hugs))) ...Just don't do it again, ya hear? :tsk: :lmao:


I promise, no matter how sleepy I am during the day I will get on here and update things so nobody worries. And, if you call again leave a message! LOL

Big hugs and it was great to talk to you!

[SharonA]

Yes Ma'am. :D

[ltlmiss]

Sandy, I hope that it is something that can be easily fixed, I'll be thinking of you!!!

[leelee88]

I hope they find out what is wrong Sandy.. And glad Sharon was able to get through to you.. I know we were all worried!!!

[SandyRN]

Just popped in real quick to tell y'all that my ultrasound of my carotids is tomorrow morning at 11:30. If they tell me anything I'll let ya know. If they don't find anything I'm going to demand more tests.

Thanks guys...it just never seems to end for me and I appreciate the support SO much!

Hugs, Sandy

[TexasHoney]

:grouphug: Sandy, I'm kind of late coming to this thread. I've been away form the boards a few days. I hope you get some answers and things get better for you real soon.:pray::angel:

Hang In There

[SandyRN]

Well the tests are done. They also did an echo of my heart and aorta. Then did the carotid u/s. There was a doctor there that did it and said he didn't see anything "urgent" bit they would send it to a cardiologist to read and then my doctor would get a report sometime next week and let me know what it says.

If this comes up to be nothing, which I suspect it is nothing by the way the doctor spoke, then something else has to be done like a MRI or CT. I fall asleep sometimes in the middle of a sentence, just drop off....it'll be a relief to know nothing is wrong with my heart, but I want to know why I keep doing this because it's very scary and I'm afraid one day it'll happen while I'm driving.

I've done all sorts of tests on myself with my meds and I've found that my meds don't make a difference at all. Doesn't matter if I haven't taken them in 8 hours or more, it still happens, happens when I leave some meds out like the lyrica or the valium, still happens.

I don't know but I'm tired of all of this. I just want to be back to my old normal which looking back was pretty darn good!!!! Before this hysterectomy my bladder was pretty happy, now it's a MESS! I just can't help but wonder if somehow this surgery has something to do with these "blackouts" (for lack of a better word). I really don't believe in coincidences and this started just after my surgery.....well, about a month into my recovery.

Guess we'll find out eventually, I hope, because I can't live like this. It scares me and it scares my family terribly. Today is a good day, I can type without backspacing every word to fix the typos, I'm wide awake, no weird things happening to me, but I never,ever know when that might change.

So, I'll give it time to get through the cardiologist to my doc and see what they say.....then I suspect I'll be having more tests done.

I could use a big hug right about now. :(

[SharonA]

I am always happy to give out big (((hugs))).

I had a thought while reading this post. :idea: :lmao: Has anyone, including you, thought about narcolepsy?

[SandyRN]

Sharon, it did cross my mind but that doesn't explain the loss of motor coordination I get like the typing thing and trying to eat and missing my mouth....at least I don't think it does but now it gives me something to look up! LOL

Thanks for the idea because in reality, it could be a really good idea!!!! Gonna have to google it now! LOL

Thanks! :)