kcjmom
03-24-2004, 06:26 PM
Well, I want to say I am so glad you all are here. I have been reading for about 2 weeks now and was really hoping I didn't have to come back after my cystoscope, but... as you can see I am still here.
My name is Tina, I am 37, I have 3 daughters and a wonderful husband.
My problems started back in Nov 02. If one of my kids woke me in the night, after I took care of them I would go to the bathroom, once in a while after going as I went back into bad, I'd feel like I had to go again. I never did get up to go, but I had that feeling. Then at one point I was on an antibotic for a sinus infection and STILL got that feeling. I then thought something was wrong, All along I guess I thought maybe I was getting a UTI, but I wasn't going to go to the Dr. unless I had this problem all the time.
I go to my PCP, and they do a urine culture, nothing grows and they don't do anything, and that feeling went away. I mention this to my gyn at my annual in Dec, and he tells me if it keeps happening I should see a urologist my gyn does a culture and nothing. The day after Christmas I get hit with bad bladder pain, try to find a Dr. the week between Christmas and New Years. HA! I finally got in with another Dr. in my PCP's group, she gives me something that starts with a L and does yet another culture, nothing. I am in a lot of pain, and I finally get in to see a uro Jan 3rd 2003.
He runs tests, a IVP, does a cysto in his office with me awake, says he sees nothing wrong, but my urethra is narrow. Now, I had problems as a 1 year old with UTI's and had my urethra dilated then, so when he said he wanted to do it, I was OK with it.
Shortly after this I started having yeast infections which turned into vulvodynia issues.
I was not having any bladder issues after this and turned my attention on the vulvodynia. I read a lot about IC, but never really thought it sounded like me.
I did pee a lot, but I always have a 24 oz water bottle with me, so, if I drink I pee, right?
Fast forward, this Jan 04, I start with more bladder issues. I go back to the uro, and I tell him I am now having problems once in a while going, I have to bear down to get it all out.
I get scared because all this stuff started last year around this time and I'm afraid I'm going to start with more problems.
So he orders an UDE test, while I am waiting for my appt for the results I get a horrible burning feeling in my urethra, I call and speak to him, and his answer was we may have to do the cystoscope and the dilation again.
I got a copy of my UDE results (already had his other records) and ran out of that office never to go back. I never felt right here, it was always filled with old men!!
I called my gyn and got a name of a group of urogyn's. ( never heard about them before!!) I saw this Dr. and after I give him my history he wants to do a cysto with hydro.
I have that done, and after the cysto, he comes in and says he didn't think I have IC, everything looked good. He also said other things but I was still groggy. So I go back today, and again he says he didn't think I had the IC, but it was *just* urgency, and was going to try me on one of the urgency drugs. Oh, he had me do a 3 day pee journal and I was going 14 times a day.
So I say to him, since having the cysto, I have not had to go as often. Uh oh, he looked real seriously at me and said, are you sure? I said yes, it has been real weird, but I really have not had to go as much.
So now he is thinking I may have early stages of IC, because one of the treatments is the hydro? And since I am now feeling better, maybe I do have it.
So now our plan is to hold off on any drugs, I have to do another 3 day journal to really see if I am going less. I see him again in 6 months to see how I am doing. Of course he said if I start to fel bad come in sooner, but that is when he wanted to see me.
WHEW!! I f you are still with me, thanks for reading my novel. I hope to learn alot over the next 6 months. thanks for listening, Tina
My name is Tina, I am 37, I have 3 daughters and a wonderful husband.
My problems started back in Nov 02. If one of my kids woke me in the night, after I took care of them I would go to the bathroom, once in a while after going as I went back into bad, I'd feel like I had to go again. I never did get up to go, but I had that feeling. Then at one point I was on an antibotic for a sinus infection and STILL got that feeling. I then thought something was wrong, All along I guess I thought maybe I was getting a UTI, but I wasn't going to go to the Dr. unless I had this problem all the time.
I go to my PCP, and they do a urine culture, nothing grows and they don't do anything, and that feeling went away. I mention this to my gyn at my annual in Dec, and he tells me if it keeps happening I should see a urologist my gyn does a culture and nothing. The day after Christmas I get hit with bad bladder pain, try to find a Dr. the week between Christmas and New Years. HA! I finally got in with another Dr. in my PCP's group, she gives me something that starts with a L and does yet another culture, nothing. I am in a lot of pain, and I finally get in to see a uro Jan 3rd 2003.
He runs tests, a IVP, does a cysto in his office with me awake, says he sees nothing wrong, but my urethra is narrow. Now, I had problems as a 1 year old with UTI's and had my urethra dilated then, so when he said he wanted to do it, I was OK with it.
Shortly after this I started having yeast infections which turned into vulvodynia issues.
I was not having any bladder issues after this and turned my attention on the vulvodynia. I read a lot about IC, but never really thought it sounded like me.
I did pee a lot, but I always have a 24 oz water bottle with me, so, if I drink I pee, right?
Fast forward, this Jan 04, I start with more bladder issues. I go back to the uro, and I tell him I am now having problems once in a while going, I have to bear down to get it all out.
I get scared because all this stuff started last year around this time and I'm afraid I'm going to start with more problems.
So he orders an UDE test, while I am waiting for my appt for the results I get a horrible burning feeling in my urethra, I call and speak to him, and his answer was we may have to do the cystoscope and the dilation again.
I got a copy of my UDE results (already had his other records) and ran out of that office never to go back. I never felt right here, it was always filled with old men!!
I called my gyn and got a name of a group of urogyn's. ( never heard about them before!!) I saw this Dr. and after I give him my history he wants to do a cysto with hydro.
I have that done, and after the cysto, he comes in and says he didn't think I have IC, everything looked good. He also said other things but I was still groggy. So I go back today, and again he says he didn't think I had the IC, but it was *just* urgency, and was going to try me on one of the urgency drugs. Oh, he had me do a 3 day pee journal and I was going 14 times a day.
So I say to him, since having the cysto, I have not had to go as often. Uh oh, he looked real seriously at me and said, are you sure? I said yes, it has been real weird, but I really have not had to go as much.
So now he is thinking I may have early stages of IC, because one of the treatments is the hydro? And since I am now feeling better, maybe I do have it.
So now our plan is to hold off on any drugs, I have to do another 3 day journal to really see if I am going less. I see him again in 6 months to see how I am doing. Of course he said if I start to fel bad come in sooner, but that is when he wanted to see me.
WHEW!! I f you are still with me, thanks for reading my novel. I hope to learn alot over the next 6 months. thanks for listening, Tina