CharlotteY
10-03-2008, 04:47 PM
After being misdiagnosed with IC for a year, I was recently correctly diagnosed with Pudendal Neuralgia. From the beginning I suspected PN but was thrown off following this path since my main symptom is lower, one-sided pelvic pain when sitting. (The pain is right where my left ovary is.) I do not have any pain in the traditional places involving the perineum, rectum, clitoral or other area- only in the left, lower pelvic area in one spot. I have never read anything that is consistent with pain in that place and PN. My pudendal nerve physician (one of the few US specialists) has told me that he has had other PN patients whose only complaint of pain has also been in the lower pelvic area when sitting.
I just wanted to point that out because had I known this a year ago it would have saved me a year of useless treatment for IC.
The physician also told me that my pudendal neuralgia was caused by an initial genital herpes infection. I always suspected that my pelvic pain was related to the Herpes infection but had never read anything that link the two. In fact, I had 2 urologists and my family doctor tell me that they too have never heard of an association between the two. My pelvic pain (pudendal neuralgia) started on the VERY DAY that I started having post-herpetic neuralgia type symptoms, about 5 days after my initial out-break. The PN doctor told me that I am the 3rd patient he has had where he can link a genital herpes infection as the cause of pudendal neuralgia.
Again, I am sharing this information in the hopes that it helps others find a correct diagnosis of PN to explain their non-traditional PN symptoms. To sum it up: you can have pudendal neuralgia caused by a genital herpes infection that can manifest itself with lower, unilateral pelvic pain felt only when sitting down.
I just wanted to point that out because had I known this a year ago it would have saved me a year of useless treatment for IC.
The physician also told me that my pudendal neuralgia was caused by an initial genital herpes infection. I always suspected that my pelvic pain was related to the Herpes infection but had never read anything that link the two. In fact, I had 2 urologists and my family doctor tell me that they too have never heard of an association between the two. My pelvic pain (pudendal neuralgia) started on the VERY DAY that I started having post-herpetic neuralgia type symptoms, about 5 days after my initial out-break. The PN doctor told me that I am the 3rd patient he has had where he can link a genital herpes infection as the cause of pudendal neuralgia.
Again, I am sharing this information in the hopes that it helps others find a correct diagnosis of PN to explain their non-traditional PN symptoms. To sum it up: you can have pudendal neuralgia caused by a genital herpes infection that can manifest itself with lower, unilateral pelvic pain felt only when sitting down.