Post op urge

[Wrinkles]

Hello everyone...I had a urostomy in April for bladder woes...Ihad radiation damage to thebladder for which my urologist told me was now treated as IC....he tried everything and finally removed thebladder...all was well for about two weeks then a feeling of fullbladder came back...not the strong urge but just like you need a pee when your bladder is full.....I thought maybe phantom pain...but 6 months on I still have it and the urologist said last week that he didn't know what causes that and sort of swept it aside...I have seen a pain doc too who put me on a small dose of anti depressant pill for pain...which ithelped but not the urge...he also tried Botox into that area...which helped slightly with pain but still have this slight urge...

I read Karas story with great interest as she went thru similar stuff....and would dearly love toknow if she found relief in the end and with what....
But there is not way of contacting her...

I wnder if anyone else has had this and could tell me what they did to help....

Awful to go thru that surgery and still have things left....

Thanks for listening..
Lizzy

[SharonA]

Kara is still here and very active on the boards. When she logs on and sees your post, I am sure she will respond.

BTW...:welcome: to the ICN... I am so sorry you are going through so much. I hope you and your doctors are able to figure out what is happening and why.

(((Hugs)))

[monica78]

You might want to search for her other posts to threads or just pm her. I know she would be glad to help you out with some info. Her posts are always so helpful!

[Wrinkles]

Thank you for answering...can you tell me how to get in touch with Kara please...

Lizzy