The good, the bad and the very, very ugly!

[SandyRN]

Well, Friday morning started out easy enough and the nurses were kind. Then came Hans, the most gorgeous Norwegian like man/God I have ever seen. He was the CRNA and would be assisting my surgery. The other anesthesiologist had determined that I did not and would not need a central line in the juglular so I was very happy. Hans' job was to start the IV. He spoke with that accent and made me wish I was younger and not getting a hyster that day! LOL OMG! Tom laughs because of Hans....so anyway, he starts a nice IV and was convinced it would last thru the post op period as well.

They wheel me into surgery, after a very tearful goodbye to Tom, who I think had tears of his own in his eyes. I got an epidural that the first anesthesia doc said he didn't think would work, but we would try. It really didn't hurt that much...then I remember being strapped to that table and starting to get panicy. They (Hans, dear Hans) put the mask over my face and I just automatically started fighting him to get it off me. I'm claustrophobic...bigtime. Anyway, he won, and they did the surgery.

I woke up literally screaming in the recovery room. There was an angel there too. Her name was Chelly (said Shelly) and she came over to me to tell me I had to stop screaming because I was waking up the kids in the RR. I cried to her I didn't want to scare the kids, I just didn't want to hurt so much. That pain was something I really can't describe. I expected to sleep much of the RR time and the entire time in my room. They tell me anesthesia doesn't work that way now, it's more fast acting and leaves the body more quickly as well....my loss!! Anyway, I am writhing in the bed, crying loudly making sure I didn't scream.....Chelly was talking to me trying to calm me down. The anesthesiologist came over and asked the nurse what SHE thought they should do, so they did something, I don't know what, but it didn't work. Eventually I heard them talking about doing yet another epidural, higher up, and they put marcaine in it which was the closest thing to heaven I have yet experienced. The pain was gone but so was my blood pressure, so they had to back off the med. In pain I was again, crying...so they tried to find a happy medium. I was still not happy, not at all. I wasn't screaming but I was still crying. Chelly kept holding my hand, told me it was ok for nurses to hurt, she'd read my history and knew I had worked in the hospital....just kept talking to me, like right in my face where I could look at her because I was in such agony I couldn't focus on anything unless it was right in my face.

They eventually had to take me to the floor....I was out of surgery by about 8:15 and it took til after 2 pm for me to get into my room!!! This is unheard of with a hysterectomy. I knew it was my bladder, at least part of it, but my insides hurt, like in my vagina and of course the incision. They get me a bed on the med surg unit that I used to float to, not the lush, plush women's center because I was too high risk with the epidural going. :( At that point I didn't care because I was just in agony...keep saying that but that is all it was, pure agony and I felt like I was going to go out of my mind if I didn't get rid of it, but it just wouldn't stop.

I got nurse Ratchett as my admission nurse and I begged her to up the marcaine in the epidural as it was the only thing that worked. She had also brought me some meds and at that point I don't know what t hey were, I just took em. Finally, after knowing she was not listening I grabbed her arm, hard, told her to look at herself, she was still working, she didn't live EVERY SINGLE day of her life in pain and that it took more to help me have a reasonable pain level. She told me she "wasn't going to come in there throwing pills at me willy nilly just because I hurt. She was going to do it her way and make sure I continued to breathe." I HATED her, strong word, but I did. I was so happy when it was shift change. They were better and I got used to the nurses over the weekend....Thank God that old bat didn't come back in my room because I would have hit her, literally. I hated her right then and there and don't have fond feelings of her now.

So we get thur night shift and the pain is still bad, and I didn't sleep at all that night. The nurse was kind, friendly and worried about my pain level. She gave me what she could and got me my toradol that was heaven in a bottle for 2 days...thats all they can give it for without risking complications. I kept having bladder spasms that made me just about scream in pain....hours of them that just didn't stop.

The next day the GAS kicked in and with the bladder spasms I thought I would lose my mind. They didn't take anything away from me that day, left the foley in because I was in no shape to get up to pee or do anything. I did sit in the chair but it was just all so miserable....it makes me cry thinking about it. Saturday I had a nice, bald guy as my nurse who smelled like old spice or something I know I'd smelled before! LOL..funny what you remember. I liked the way he smelled and he was a cool nurse, laid back, not so darn freaked out on rules, and he DID turn up my epidural marcaine for me!! I loved him right then.

Saturday night the night shift comes on, poor woman....because I spent about 2 hours in bladder/gas spasms together that drove me to the brink of sanity. I was never comfortable......The pain might have been less, but never enough to be comfortable. It was another horrible night. Plus all that crying and screaming how much pain I was in freaked poor Tom out, again. Poor guy went thru hell watching me.

Sunday they took out my foley, smell good nurse did it, had no problem peeing, was moving a bit better, passing plenty of gas and walking. STILL had bouts with the bladder spasms but they weren't as bad, but later in the day they were terrible, got an order for a uro consult and the guy orders me ditropan which I have to refuse because it gives me retention. Anyway, after voiding in the bucket they had to see how much was left in my bladder, which, even with technology that could estimate how much was in there still meant cathing!!! I went, t hought I was empty, and had **700** in my bladder....gee, no wonder I hurt. So he drained me...the guy nurse cathed me. It was funny, he asked me if I was ok with it and I told him yeah, I didn't think he'd get funny with me considering I had on no makeup and had just had a hyster! LOL He thought I was funny and we clicked....just like the night shift nurse, we clicked too. As long as nurse ratchett stayed away I was fine.

Monday my uro came in, orderd prosed (whoop de do) and said I needed to come see him soon.....yeah, it's been a year or so.

Anyway, after that I decided I wanted my own home, my own bed, my own dogs, etc. Packed up as fast as we could, got the iv adapter yanked outta my arm and we were gone!!!!!!!!!!!!!!

I called and gave props to Chelly for helping me so much in the recovery room. It's THOSE types of people that give nursing a good name, and she was a kind, kind woman. I also called her nurse manager and said the same thing. I don't know how I would have made it at all without her.

So, after all that, you can see why I am glad to be home. I hurt, a lot, but I have pain meds that my pain doc ok'd for the gyno to give me. I'm healing, still having bladder spasms, still having gas pains that take my breath away but I'm home.....Oh, and I have my Vivelle dot patch of 0.1mg and I haven't had a menopause sx yet!

If you read all that you must be crosseyed! Thanks for the calls, the notes, the prayers, everything you guys have done to support me. Your support helped me get through some very sleepless nights.....and thank you to sandymarie who listened to me in a drunken stupor on Saturday night! I don't know why I called her and have no idea what I said, but she listened to me! LOL God love ya sweetie!

Hugs to all....

Sandy

[snowgirl]

Sandy


Glad you are at home. It's better to take care of yourself and out of that environment.
Sounds like you had some really good RN's and they were the male RN's.
That was so rude of nurse Hatchett.

I knew that pain managment was going to be your biggest battle. I am glad though that you got the continous epidural with marcaine. If you did not have the continous epidural you would have never made it with IVP q2-3h prn

They never let you have any b-o's? ?Hope you have some at home. One of my bladder surgeries when I got cut open I had PCA- MS. HOwever, I used th b-o's more then the pain pump with MS.

Everyday will get better. I wish you the best. If you get gas real bad I know you know to walk of course. However, I am also going to tell you to buy gax x soft gels only no chewable those gas x pills will help you so much trust me on that one little trick.

Get some rest. I have always had good RN's in recovery room except this last time. She was too busy on the computer and not watching me pain. Plus the hospital had no b-os's period. My last 3 hyrdos I have had no b-o as they had none. Usually, I get them in the OR so when I awake in pacu they are working.

I will keep in touch with you.

Vicky

[stef000]

glad you are home...
i am sorry you had horrid bladder spasms though...
i hope you recover quickly and things settle down soon
take it easy and keep us updated ;)
:pray::pray::grouphug::grouphug:

[Cillajane]

Sandy-
When I had my hysterectomy they offered me the usual gas x treatment and it didn't help me much but they then offered me Dulcolax (sp) suppositories. That got the gi track moving and the gas moved out. You might check to see if your doc would approve you using that if the gas x doesn't work for you.

Also, when the big event happens in the bathroom,if it hasn't already, use a pillow to your abdomen but am sure you already know that.

So glad you have this much over with and now just compare your improvement week by week NOT day by day. You will slowly realize you are able to do a little more each week. Keep improving!!!

Hugs to you and your furkids,:angel:

Lucia Cassity
Lexington, KY

[mlzippy7]

Hi Sandy
Glad to hear you are home! Wow what an experience!! I am so sorry!!
I wish you the best in your recovery!!
Take care:angel::angel::angel:

[monica78]

I am so glad you got to come home!! I hate that you had such a time with pain control. I hope you are feeling better soon.

[ICNDonna]

I still remember how painful I was after my hysterectomy --- I had one of those belly button to pelvic bone incisions. It sounds like you got good care --- and it won't be long before you'll feel much better.

Hugs,
Donna

[VickiB]

Wow! What an ordeal! I can really see where a good nurse can make all the difference in the world, and a bad one,...well,...sounds like you met her!

I bet it feels good to be home!

Vicki

[leelee88]

Wow, sounds like you went through heck! Scares me so bad just thinking I will prob have to have one soon.. I hope you start feeling better soon..((((hugs))))

[vm]

Sounds like Hans should be making some aftercare home visits, too. Whaddya think? ;)

[Mel53H]

God love ya, Sandy! You went through hell!! Everyday you will get better and better. No more Periods!!! Yipeeee!

[lisabar36]

I am so glad your home and its all over. I remember the HORRIBLE bladder pain like it was yesterday and I also was crying when I woke up because my badder hurt so bad. They said they were not used to people having hysterectomys and waking up crying there bladder hurt. I hope you feel better and better each day. :pray: Hugs

[Bessie]

Hey Sandy,
So glad you are finally at home. Sorry you had to go through so much pain. It is horrible to be hurting like that but hopefully the pain will go away soon and every day will get a little better. I use Gas-X for gas and heartburn and it works really well. I buy the chewable cherry flavor. The soft gels did not work for me. I guess maybe because I am such an impatient person and the chewables work instantly :)
I will keep you in my prayers and I pray that you will be all better real soon :pray::pray::pray:

[SandyRN]

I wasn't prepared for this...not one bit. I can't believe how uncomfortable I am, how miserable I am and how weak I am. I started bleeding yesterday out of the blue, after having NONE at all til 5 days post op. I called the doctor when it was just spotting and she said it was nothing to worry about, but then I soaked a whole pad within a couple hours. It stopped, again, out of the blue, just stopped. Then today it started up again and it's pretty heavy. If it hasn't stopped by tomorrow I am calling the gyno so I don't have to worry about who's on call over the weekend.

I just hurt, so BAD. I cry when I have to get out of my bed that's high off the floor, I cry when I try and lean back on the couch....I am nowhere near being able to cut back on the meds the gyno gave me for pain and fear I may need a refill.

Tomorrow my kids come back and while that is good I don't want them to worry about me. I plan on showering and putting on some makeup, first time in about 2 weeks! And doing my hair....they know I hurt and don't feel good as we've talked every day. Tom is going to try and work 4 hour days going in late next week so he can make sure they get off to school and that he can get them home from their after school activities, etc. I know I'm not allowed to drive yet and even if I was I couldn't do it as I am too weak.

I feel like such a weenie, but I am in PAIN. This HURTS badly. I did use a suppository yesterday and had a bm so I got rid of a lot of that gas and felt a little more comfortable but I am still having bladder spasms that the prosed, nor anything else is working on.

I look like a mess......I've showered since I've been home but that exhausts me so much I hesitate to do it very often.

Tom has been so good to me...he's waited on me hand and foot and I can't even thank him enough. I'm so scared for him to go back to work, even half days next week. I have depended on him for so much and I am lucky to have him.

Lord, when does this end??? Or, when does it EASE UP????

[SandyRN]

vm,yes, homecare visits from Hans would probably be just the trick to make me feel better! LOL!!!! It hurts to laugh, so no making me laugh! LOL

[Briza]

vm,yes, homecare visits from Hans would probably be just the trick to make me feel better! LOL!!!! It hurts to laugh, so no making me laugh! LOL

Ok Sandy, I was going to say same thing about Hans but you said no laughing allowed so I will say one thing that I know is NOT funny and that I am sure you are very thankful for...that you did not have to get the NG tube...for that you should be forever greatful to your bowels and thank them kindly! :) With all the rest you had going on I'm glad it went as VickyVale said that she didn't think you were going to need one and you didn't.:bow::bow:Been there done that, and it is definitely NOT funny!:)

[aleet7]

OMG Sandy! I'm so sorry that you had to go through that! You said that pain control would be the main issue. I pray that everyday you feel better and better. Baby yourself as much as possible!
Teela

[amaranthe]

Glad to hear your home and Tom and the kiddos will be around to help you. I remember i was really hurting there for a while. Hopefully, it will ease up for ou soon. I agree that if you have any B and O's, they would probobly work the best right now. I didnt have any after my surgery, but i can definately see where they'd be helpful for this.

Hope you feel better soon!

[stef000]

sorry you are feeling so bad....i hope you recover real quick....but you gotta remember that you have had major surgery so you gotta try and take care of yourself too....
i really hope you recover quickly :pray::pray::pray:
:grouphug::grouphug::grouphug:

[vm]

I feel like such a weenie, but I am in PAIN.

You are in no way, shape or form a weenie. You are a tough, tough woman who has just been through one hell of an experience. We know you are a fighter and most certainly not a weenie so stop that right now, young lady. ;)

Be gentle with you while you are in pain and we will all be praying that your medical team continues to give you the pain medication/relief you need. :kissing:

[mary124]

Sorry you are in pain, you know you can always call the nurses station and ask for Hans.... I'm sure just hearing his voice will help you... (I know it would helped me!!) take care and get better.

[SandyRN]

I don't think I mentioned this but on day 5 post op I sneezed/coughed/farted all at the same time....sorry, tmi but have to explain. It caused so much pressure I wet myself. Then the bleeding started, at first just a bit of spotting, then it got really heavy. I called the doctor and the nurse told me just to watch the pads and if it got worse to call back.

Called again this morning and talked to the DOCTOR himself....god love that man. Anyway, he said he thinks I had a hematoma up near the cervix and that is what is causing the bleeding and that the draining of it is good because if it didn't drain it could get infected. He said if I bleed out one pad an hour for 2 consecutive hours to call and I'd have to be seen.

So, I am scared outta my mind. I don't want to go back to that torture chamber!!! I'm watching the bleeding....sometimes it even stops, but most of the time it's a steady flow.

I know it's common to have bleeding post op, but starting on day 5 just blew my mind and of course with the sneeze/combo going on it scared me even more.

My children come home today and while I can't wait to see them I am so exhausted that I will probably sleep most of the rest of the day away. They'll understand that.

Tom got it worked out so that he will only work a 4 hour day all next week, going in after the kids get off to school, then coming home before they get home so that he can pick up Megan at school because 3 days a week she's got things she's got to be picked up for. So, God love that man too! He's taking good care of me and since I know he'll read this we'll let is slide that the kitchen is just not exactly how I left it! :)

So, that's the update for the day...hystersisters has been a Godsend to me!! That place is next in line to this place for compassion and caring. I go there with what I think is a stupid question and find out that many others have the same question. Kinda like here! :)

Thanks to all of you who have reached out to me. I really appreciate it. This has been harder on me than I expected it to be really. But I know I will get better, one WEEK at a time, not one day at a time! :) See, I DO listen.

Sandy

[waterflow]

I knew someone who had a hysto and she thought it was going to be a breeze. Figured it would be the same kind of pain when she had a c-section. When she woke up she was crying for days and days because she wasn't expecting that much pain either. Then after finally getting home 2 days later she did something stupid. She was feeling better so she drove her kid to the doctors. Wasn't anything important but right after that she started feeling really awful again and throwing up. Went back to the hospital and found out she had bleeding filling up somewhere and they had to drain it. She was there for another 2 days. So take it easy. Just lay around, watch tv, catch up on the soaps if you watch them or read a good book. Pretend you are a queen and everyone must bring you your food, jammies and anything else you want. You had major major surgery and your body needs time to just get over that. Oh, the lady I knew was really tired too weeks after and the doc gave her some hormone stuff. Don't know what it was. They had on Opera where the doctor showed what the parts looked like that are taken out for a hysto and I've wondered since the parts are so small why so much pain but then having a tooth pulled is painful.
Hope you get to feeling better soon and just think. No more visits each month. Oh, what will you do with the extra time?? Another thing spend the "monthly supply" money on something fun for yourself now. Just think you don't have to buy anymore of those things too. :)

[SharonA]

Sandy...Of course you are hurting. You just had a lot of stuff removed from your body. Don't try to rush yourself. Let the body heal. However long it takes...that's how long it takes. You will get better, day by day. Yeah, I know...I already told you that. But it is true.

I gotta give you a hug. Don't worry, I will be gentle...(((hug))). See...That didn't hurt now, did it. :):):)

[Bessie]

:grouphug:

[sandymarie]

Hey sandy,

I had no idea that you would start back bleeding. I thought I sent you a pm yesterday and I remember writing to you. LOL I ask what the doctor said about you. I hope you are much better today, I just checked this thread and saw what you found out from the gyn,. Hope you are much better this morning. Hugs,

JJ:pray::pray::pray:

[SandyRN]

This is yuck, that's all I can say. I was a tampon girl for a REASON.....only times I've worn pads was with 3 childbirths, and now this.

Anyway, I haven't soaked a pad an hour for 2 hours, but I have come close and this scares me. I don't WANT TO GO BACK TO THE HOSPITAL!!!!!

It's got an odor too now...sorry, tmi again, but I can't help it. It smells like infection. I'm giving it another day or so and watching to see if it stops or goes about the limit then I'm calling the gyno, but really I'd rather wait till Monday when my kids are in school as I have already talked to their father about the possibility of my going back into that place again....

I just want to stay home and take some abx or maybe have an office visit to fix this.

Why can't anything just go smoothly?

:(

Don't stop the prayers, I need em right now.

Sandy

[Briza]

Sandy, I wish you would call your dr and see if he will prescribe some antibiotics. I got a foul smell down there after a chryo-surgery (sp?) of my cervix and it was an infection and I had to go on antibiotics longer than I should have because I didn't let the dr know right away. (((hugs)))
Oh, and I ran into Hans the other day and he said to send you this :kissing: and to feel better soon.:)

[SharonA]

Sandy...Please call your doctor today. Don't wait until Monday. The fact that you are still bleeding and that there is an odor concerns me. Please don't wait. Do it today. (((Hugs)))

[monica78]

:pray::pray:

[VickiB]

I too would call my doctor if I was experiencing what you are. Making that call may just help keep you out of the torture chamber again.

I have to ask, what does "tmi" mean?

Vicki

[monica78]

Too much information is tmi.
I am thankful for the tmi because if i ever have to go through this I will know what to expect and not just depend on the doctors account. Hey Sandy I was wondering if the bleeding is any better yet. Just thinking of ya.:pray:

[SandyRN]

I don't know for sure, but when I took a shower today my flow was slower and the blood was dark brown which means it's old blood. This is such a good sign!!! I hope and pray that it stays this way. It does still have an icky odor to it and I know I will be calling the doctor about that in the very least in the morning. I think I might be brewing a UTI also because even the prosed doesn't help my VERY unhappy bladder.

My bladder has just given me fits since this surgery.....it was the cause of most of my post op pain in the recovery room, and the cause of it since I've been home too. I expect to have pain but the bladder spasms only make it worse.

So, lets hope that I am on the mend!!! I can handle a trip to the doc's office, in fact it might be nice to get out for a while! LOL I'm sort of having cabin fever. I go outside to let the dogs out and realize it's FALL here.....when I went in the hospital it was still very much Summer. So odd......like I've been in a cave or something.

Steri strips are off, came off in the shower, that is a big relief as they bugged me to no end....

So, again, let's hope this may resolve itself without the exploratory lap I had talked myself into!!

Sandy

[snowgirl]

Hope you feel better and stronger everyday. Those walks to the mailbox everyday are good for you keep them going on. Sure hope you don't have a UTI. Vicky

[Bessie]

Sending a big old hug your way :grouphug:
I pray that you get well real soon :pray:

[stef000]

i hope you start feeling better and better and now without those nasty periods things will settle out...
i hope that bleeding that you did have ends and things will start getting real good for ya :pray::pray:
we are all here for ya :smile tee
:grouphug::grouphug::kiss:

[SandyRN]

Thanks so much!!!!!!!!!

I think I have good news....well, some anyway, and some I deserve a slap on the hand for. The good is that the bleeding is continuing to slow, and I believe the odor is from it being old blood. It's dark brown in color so that is a major plus from the heavy bright red it was.

The slap on the hand I need comes from deciding that after being up for about 6 hour, up meaning sitting on the couch, being with my kids, dogs and Tom, I decided to empty the dishwasher myself then put a load of my clothes (gowns) in the laundry. I thought I was ok til all of a sudden I wasn't and had to sit down. I even put on makeup today and did my hair!!! I felt normal for a while until the pain meds wore off and then I was reminded of how naughty I was being.

Tomorrow will be my first day alone. Not the whole day but part of it anyway. I'm not sure how long Tom is working but he is taking the kids to school for me and cooking, bringing down the heavy laundry, etc....and getting on to me for doing too much. My body lets me know!!!

So, things are on the mend. My incision burns and itches sometimes and I figure that is the nerves mending and the skin mending as well. I have become obsessed with looking at it in the mirror after what Tom went through with that open wound he had with his bowel resection. I wouldn't look at the incision for the longest time and now I check every time I go in the bathroom! So much for being a nurse, eh?

I look back on this whole thing and am hopeful about the future. I went through agony, really horrific pain with the incision and my bladder that went literally insane on me....I don't think I would do it again if I had the chance to change things. I don't know how I handled all that pain. There were several times I was screaming in pain.....makes me shudder to think about it.

That's in the past, and the future is going to bring me better health and make me feel better as a whole...As soon as my bladder stops freaking out I think I will be a lot better. It STILL is not happy and I am living on pyridium and prosed. BTW, I think pyridium, which is cheap is doing better for the spasms and pain than the expensive prosed. So, lets cheer this unhappy bladder onto better health as well. I'm also peeing more times a day than I can count.

So, slap me on the hand, but I'm trying to get back in the swing of things.

I told Tom today, in a real teary voice, that I didn't realize how much I did do around here til I wasn't doing any of it. I guess I do make a difference even though I am disabled and living on SSDI. It gave me something to think about.

Enough.....just thank you to all of you for putting up with neurotic me. I love all of you like sisters!

Hugs, Sandy

[VickiB]

It sounds like things have taken a definite turn for the better! So glad to hear it!

Vicki

[vm]

That's in the past, and the future is going to bring me better health and make me feel better as a whole...As soon as my bladder stops freaking out I think I will be a lot better.

I don't think we could even put into words how happy we are for you. Relief is hopefully on its way soon - and you sure DESERVE it. :kissing:

[SharonA]

Day by day, Sandy...Day by day. (((Hugs)))

[mary124]

Sandy: just because you think you feel good - it doesn't mean that you can get up and do things, found that out when I had mine a handful of years ago. Just take it easy and things will get done by the family... of course, not exactly the way that you want it!!!
Glad things are looking up.

[SandyRN]

Today was the day to change my Vivelle dot patch.....and boy am I nauseated. Had the dry heaves today which did wonders for the pain in my incisioin!!!!!!!!!!!!!!!!!!!!!!!!!!! OMG! NOT FUN. Then I had my first real hot flash this evening. I really don't care to do that again. I suspect all of this is because of the decrease in hormones from the patch change and I hope I feel better tomorrow. I put my laundry away today and did a few other things around the house....so I thought I was feeling better, but I sure do get tired easy and sleep very well at night.

I hate this nausea though....I'd rather be sick and get it over with than be nauseated multiple times during the day....ya know?

One day at a time! I keep telling myself this.

Oh, and I have the best man in the world helping me through this...in case y'all didn't know that. He's been cooking dinner for me every night since I came home from the hospital and tonight has been the bearer of wet, cold rags for my neck when the nausea strikes. I'm very lucky!!!

One day I'm gonna say I feel just fine!!!!!!! I'm optimistic about the fibro pain...it seems to be better with the patch on. My bladder on the other hand is still NOT behaving at all.....I'm waiting on a day where I can say I've had no trouble from it at all....really can't wait for that day. The prosed ds does nothing for me really....the cheap pyridium works much better and I'm taking that a couple times a day now and can't live without it.

Thanks for the help!

Hugs, Sandy

[aleet7]

Hi Sandy!
I'm glad to hear that you sleep pretty good at night. I'm sorry to hear that you're going throught this nausea thing and hot flashes! I've seen ladies go from dry to wrenching wet with hot flashes and it's not a pretty thing. I hope you don't suffer much with that long.
I'm glad that you're optimistic. We have to have something to hang on to or to look forward to or else we will give up. One day you will feel great! I'm looking forward to the day when I feel like jogging or taking the kids to the park (that's what I'm looking forward to). Oh....and give Tom a hug from all of us for taking such good care of our sister!
Take it easy sweetie!
Teela

[mary124]

Hot flashes are no fun!! Been having Hot flashes for the past year, usually at night, I am so drenched its not funny. I have to more or less laugh though, I start out on my side of the bed, and after changing gowns/drying off I'll sleep on my husband side--he inturn when he sees me sleeping there will just turn around and go to the den and sleep on the couch.

[aleet7]

Mary,
my mom and dad had to sleep in different rooms because of her hot flashes! Mom would have the windows open in the dead of winter(Michigan) while dad would have the furnace blasting because he gets cold easily. I hated to see them both sleep in different rooms but they had to do it that way because of the flashes. I'm glad that dad was so understanding (like your hubby is).
Best Wishes,
Teela

[SandyRN]

So far no more hot flashes. I am emotional though and am still having the stinky discharge. I've found a way to cover that odor though by putting baby powder in my pad. It's mild, has no major things added for scent, and makes me have some peace of mind that nobody smells that odor. Thanks to hystersisters I've decided that my discharge is normal as long as no fever is present.

However, my bladder is BAD.....was ok yesterday and we even went to the drug store and to the grocery store. I was so THRILLED to be out of this house but when we got home I was worn out! I think my bladder is paying for our little road trip.

I read, just today, about this woman who had a TAH but kept her ovaries, and she's talking about doing LAPS in the pool and power walking. LMAO! OMG.....I felt excited about walking part of the grocery store! Ya know? I know she doesn't have the extra things wrong with her that I do, but it's still depressing, and she only had her surgery one day before me. ONE DAY!

So....anyway, otherwise I am doing ok. It's this blasted bladder that I really can't keep happy no matter what. I had a good bladder day yesterday but when I pee, it hurrrrrrrrrrrrrrrrts.....that last little bit of the stream causes terrible urethral and bladder spasms. I don't believe it's a UTI because it's been there since my surgery and I've got no fever, no spreading to the back, etc. It's just so incredibly painful and I'm back to my regular pain meds now. I am having to double up on the dilaudid just to get minor relief and am going to have to talk to the pain doc about this as I am going to run out early. I had Demerol that I got from they GYN and they lasted a while, but not long enough...what I really need is another RX of that.

I have ups, I have downs, but what is constant is that bladder! Oh, and the incision is healing so it itches, burns, stabs, etc, but that I can live with.

We're going to Rooms to Go tonight to buy some new family room furniture and I WILL manage to walk around. We know what we want....leather reclining sofa and loveseat with the middle seat in the sofa bends down to form a table like thing. It's so pretty. We just have to decide on coffee and end tables. I can't WAIT. I justified it because right now, the way our furniture is in there I don't have room for a Christmas tree, so talked Tom into going to get the furniture now! LOL The old stuff in the living room is going to someone free!!! That's how bad I wanna get rid of that stuff!!!

So wish me luck!! I need it. At least I can sit down in Rooms to Go!

[ICNDonna]

Did I understand you to say that someone who had a major surgery less than a month ago is swimming laps? When I had my hyst, I was told to take it easy for at least six to eight weeks to avoid future problems.

Donna

[sandymarie]

I am so happy that you had a good time in the store last night, but sorry that you are paying for it now. That is the way I do, I enjoy one day, I pay for it the next. Not a good thing. Does it ever end My Gp told me to go down on my hormones each month and try to get off of them. But I am older than you are , so I don't know what to do , but to mind him. I am having hot flashes too and I am tempted to go take another one right now. I woke up this morning with my gown wet and very uncomfortable.

BTW If you throw away a recliner, throw it toward me. We have got to get the mula to get a new one for Bill. The one we have now is not working for his digenerative disc. disease. I would love to have a new house full of furniture, Ours is getting old. It is people loungers and it is supposed to have a life time warrenty on the working mechanisms , but I can't find their website and how to get in touch with them. It still looks good, but doesn't recline like it is supposed to. UGGG. If I could get someone to fix it, it would be fine. It has been a good set though except for the reclineing.

Oh well, I will stop and let you go pick out something pretty for your house. I hope you and your family have a great time and that tomorrow you will still be doing good.'Hoping that the bladder will not get mad. But at least you will get to lie down on a new couch. AHHHH.



JJ:pray:

[SandyRN]

Did I understand you to say that someone who had a major surgery less than a month ago is swimming laps? When I had my hyst, I was told to take it easy for at least six to eight weeks to avoid future problems.

Donna


Yup....amazing isn't it? Almost TOO amazing!

[SandyRN]

I am so happy that you had a good time in the store last night, but sorry that you are paying for it now. That is the way I do, I enjoy one day, I pay for it the next. Not a good thing. Does it ever end My Gp told me to go down on my hormones each month and try to get off of them. But I am older than you are , so I don't know what to do , but to mind him. I am having hot flashes too and I am tempted to go take another one right now. I woke up this morning with my gown wet and very uncomfortable.

BTW If you throw away a recliner, throw it toward me. We have got to get the mula to get a new one for Bill. The one we have now is not working for his digenerative disc. disease. I would love to have a new house full of furniture, Ours is getting old. It is people loungers and it is supposed to have a life time warrenty on the working mechanisms , but I can't find their website and how to get in touch with them. It still looks good, but doesn't recline like it is supposed to. UGGG. If I could get someone to fix it, it would be fine. It has been a good set though except for the reclineing.

Oh well, I will stop and let you go pick out something pretty for your house. I hope you and your family have a great time and that tomorrow you will still be doing good.'Hoping that the bladder will not get mad. But at least you will get to lie down on a new couch. AHHHH.



JJ:pray:

No recliners sweetie, sorry...just a HUGE sectional that I bought for my townhouse many years ago when I left the ex. I was so proud of that furniture!!! It was very nice back then, now it's just too big and we get to put our good furniture in the living room and we get the recliners we want in a SOFA...how cool is that?

I just hope I can make it for an hour or so in the store. I'm tired now.

I'll call ya in the next few days!!!!!!

Love ya bunches! :)

[Briza]

Did I understand you to say that someone who had a major surgery less than a month ago is swimming laps? When I had my hyst, I was told to take it easy for at least six to eight weeks to avoid future problems.

Donna

That's what I have heard, too, from friends who have had hystos like yours, Sandy...take it easy for min six weeks! And you are out shopping....I hope you used the little motorized cart to get around at the grocery! I know one of my friends did. Gosh, you are making me WORRY!
As for the powder, I have heard that the baby powder w/ cornstarch is best for women when using it down there...can't remember the medical reasoning behind it, but read it somewhere a long time ago.
Did you ever discuss the odor w/ your dr? I can understand about the old blood and it being dark, but the odor is what concerns me b/c it seems regardless the cause, odor like you describe and I have experienced that after a cervical surgery like I said before, and I also had bleeding w/ the dark dark blood, and it WAS one nasty infection that lasted for weeks. Odors down there in my experience = infection, and sad to say, I have had more than my share of infections of various kinds.
I know you're the nurse here:) so I won't even pretend that I can second guess you on this, but I would feel so much more comfortable if you discussed this with your doctor and got some antibiotic treatment :grouphug: I know you have always had tons of get up and go, but please at least the next time you go to the supermarket or Walmart, please use the motorized cart because you are worrying the heck out of us, sweetie!:tsk:

[SandyRN]

When I say shopping I mean we picked up a few things....not actual grocery shopping. There is NO way I could do that. All we did tonight was go in Rooms to Go and say , "this, this and this in this color with this rug and these lamps"...we'd done the shopping online and only wanted to sit in the sofa and loveseat to be sure it was as nice as it looked. I am not functional to do any more. I just wanted out of the house for a bit.

I can't imagine in my WILDEST dreams going to the gym, doing laps, heck, even a LAP! LOL

No, I am in no shape for actual grocery shopping, nor am I in shape for real furniture shopping, we'd planned ahead and basically had to just pay for it. It was just nice to get out of the house.

I get tired just making dinner which I have done ONCE since I have been home from the hospital.

I'm behaving....I promise.....I really do. Ask sandymarie, she knows I'm not in shape to be doing anything else. And, she'd come up here and beat me silly if I did do anything more than that. I still haven't driven either. Makin me stir crazy! But I'm following rules..

Hugs...and have a little faith in me. :)

[SandyRN]

oh, and I'll post a link to the furniture tomorrow....We got a sofa, loveseat, coffee and two end tables, two lamps and a rug. Sooooooooooo nice. Leather, reclines with massagers in the sofa, with a pull down in the middle seat with seat holders. The loveseat rocks when not in the recline position....really pretty tables, love the rug and lamps. I'm spoiled!!!

Now we have to get rid of the big sectional in our living room, move the furniture we use in the family room to the living room and get rid of the secional on Craig's List or something. I'm willing to give it away! Then my FAMILY will have to clean the carpets for me. See, I AM behaving because I have no intentions of even cleaning the carpets a week from now...

Odor...it's really better than it was and the bleeding is better too. When I say better I mean compared to what it was. Any odor bugs me.....and I HATE those pads, period. I just want to heal.

Briza, where did ya think I had get up and go? LOL....really? Are you talking about me? :)

[Briza]

Hey, Sandy, ok, I know JJ and she will keep you inline;)...obviously I have NO control over your behavior:biglaugh: So I will keep the faith, and having much respect for your background in nursing, that you know what is going on and will do what you have to do if need be! Just me, I have little get up and go lol, so I'd be lounging in that new leather recliner and taking the moto cart whenever I could!
I just want you to heal well and fast and hopefully this whole ordeal will solve some of your pain issues:pray: After all you've been through get in that leather sofa recliner, kick up your heels, and let everyone wait on you!! I didn't catch if you were able to bring the new furniture home already, or if you are waiting for delivery. I HATE waiting for new furniture...I want it NOW!:)
Take care, best wishes that you continue to feel better and better!
Luv, Bri
PS Laps in the pool?:loco:hmmm I don't even want to do one lap in a pool and I am in remission! Now THAT gal has some get up and go! :lmao:

[SandyRN]

Briza, we're having it delivered. It won't be here til Oct 7th. Good thing as the way I'm feeling I won't be surprised if I don't wind up in the hospital again.

I woke up at 4 am or so when the dog was barking to go out....and felt like someone socked me in the gut, hard. When I woke up this again later it was SO much worse, so much pain I was in tears and have been in tears on and of all day long. There is something MAJOR wrong with my bladder as I can't stand the thought of peeing much less going. If this is a UTI I've never had one so painful.

When I get to the end of the stream it literally makes me cry every time. Everything in there spasms so bad it sucks the wind outta me. My incision hurts, my whole insides hurt, for lack of a better description. I know something is wrong, really wrong.

I've been a good girl, I've obeyed all the rules and the worst I did was spend a little time in the drug store and the grocery store, then 30 minutes in Rooms to Go last night just to get the order in.

I feel sick....took some tylenol before I thought to take my temperature....that was stupid of me, but I'll take it soon. I just feel sick, with a huge pit of fire in the bottom of my belly.

I didn't hurt this bad when I came home from the hospital.

I'll be in touch.....if I wind up in the hospital again JJ will know about it. Please send me your prayers and thoughts. God I'm in tears now.....I can't be paying for a little walking around. I was SUPPOSED to walk....now I can't even stand up straight.

I have to admit I'm scared. I was worried about this discharge before and it's ironic that it's almost STOPPED and I feel terrible.

:(

[SandyRN]

I called the GYN on call and talked to her. She said I could go on to the ER and wait or call the office first thing after they open in the morning and they'd squeeze me in, check my urine and that discharge I've had since day 5.

I'm running a fever too.....and I feel really sick, not to mention the pain I am in all the time, then the pain I have when I pee......which is so bad I don't even want to go pee...

My sweet friend JJ will let y'all know what's going on if I wind up in the hospital. Hopefully they'll send me home with some abx and I'll be fine!

Wish me luck....and pat me on the head. I called the doctor!!! :)

[Briza]

Not only a pat on the head and back, but also THANK THE LORD! I am so happy to hear you contacted your dr, Sandy. Makes me feel much better, and most likely it will make you feel much better, too!:):):):smile tee

[SandyRN]

Just checking in before bed. I'm feeling so sick....like a mack truck ran me over a couple times but the pain in my abdomen is like it's on fire, the whole lower abdomen. I seem to be getting a rash, one that is in a straight line on my butt cheek that I suspect may be shingles. I've had them before and they're looking and feeling like them. I seem to get them when I'm very sick.

I'm off to bed...well, I've been in bed except when I ate a few bites of dinner because I don't feel like getting out of it....and I especially don't want to get up and pee!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Wish me luck that I have a decent night. I don't want to be up all night in pain. I took pain meds with my muscle relaxers and a sleeping pill, so I hope that knocks me out...don't worry, they're all prescribed for bedtime! :)

Talk to everyone tomorrow...and thanks again to everyone who's reached out to me! My IC sisters!!!!!!!!!!!!!!!

Hugs, Sandy

[monica78]

Sending you many:pray::pray:

[SandyRN]

and he thinks I have/had a hematoma that got infected hence the reason I am still spotting smelly discharge....sorry for that graphic. The discharge was full of bacteria.... Anyway, I came home with a RX for Cipro, they drew my blood, did a CBC and are going to call me this afternoon with the results. If my white count is crazy then I will have to have an ultrasound done and possibly go back in the hospital. Depends on my white count today.

My urine was clean which is UNBELIEVABLE to me, but it is. So, it's the IC acting up along with an infection it seems.

He hurt me badly during the exam...he didn't mean to of course but my bladder is on fire, spasming like crazy and my entire pelvic region, incision, and just my insides hurt. I spent a sleepless night last night and I am going to lay down til sometime this afternoon as I am exhausted and I want the pain to go away for a while.

He did refill my demerol rx for me which was very kind of him....so, pray, wish me luck, whatever you do because I do not want my white count to make me have an ultrasound because the results really can't be good if I have a raging infection in there.

I'm too exhausted to be scared right now and I just want my bed.

I'll check in later and update with the white count.

Thanks to all of you who have stuck by me thru this.

Sandy

[dg2901]

Hopefully this setback will resolve on its own!
With any luck the Cipro will kick in and provide you with some relief.

Diana

[aleet7]

Hi Sandy!
How are you feeling today? Do you have shingles or infection? I'm praying for you sweetie! I'm glad that you called the doc. Please let us know how you're doing!
HUGS
Teela

[aleet7]

Sandy,
I just read your latest update and I'm sorry about the infection!!!! I'm praying about your white blood count as I write. Please try and rest with all of this going on. Your body needs as much rest as possible!
Hugs,
Teela

[SandyRN]

No shingles..it was just a rash that is better after a dose of prednisone last night...thankfully.

My lab results came back and he said my white count wasn't bad and that it seems to be a localized infection. The doctor himself called me again this afternoon to deliver lab results!!!!!!!!!!! Isn't that amazing? So, he said that the Cipro should start to work soon and I should hopefully feel better soon! So... :woohoo:

I still feel like crud, extremely tired from not sleeping last night, and feel as if my insides have been twisted around in a knot several times, but I'm relieved as all get out.

I swear, I REALLY wouldn't have done this if I knew how hard and painful the whole thing was going to be. I guess time will tell if it helps my bladder in the long run, and I know I won't be having my monthly visits anymore, so that's good too. I guess I just want to feel well again, or at least back to MY normal. I didn't realize how well I used to feel til I had this surgery done and I also didn't know how under control my IC was til this surgery.....now it's come back in a VERY big way.

So, that's my day......I have a lot to be thankful for.

[snowgirl]

and he thinks I have/had a hematoma that got infected hence the reason I am still spotting smelly discharge....sorry for that graphic. The discharge was full of bacteria.... Anyway, I came home with a RX for Cipro, they drew my blood, did a CBC and are going to call me this afternoon with the results. If my white count is crazy then I will have to have an ultrasound done and possibly go back in the hospital. Depends on my white count today.

My urine was clean which is UNBELIEVABLE to me, but it is. So, it's the IC acting up along with an infection it seems.

He hurt me badly during the exam...he didn't mean to of course but my bladder is on fire, spasming like crazy and my entire pelvic region, incision, and just my insides hurt. I spent a sleepless night last night and I am going to lay down til sometime this afternoon as I am exhausted and I want the pain to go away for a while.

He did refill my demerol rx for me which was very kind of him....so, pray, wish me luck, whatever you do because I do not want my white count to make me have an ultrasound because the results really can't be good if I have a raging infection in there.

I'm too exhausted to be scared right now and I just want my bed.

I'll check in later and update with the white count.

Thanks to all of you who have stuck by me thru this.

Sandy
sandy just read the latest with you sorry you have possible hematoma with infection going on. I just had a regular pelvic annual exam and my bladder is still screaming a week later . I can only imagine how painful that pelvic was.
Is the po Demero working? My Dad can only have allergy wise demerol or dilauid po. Seems thought they always order the po demerol dose so low. Hope it is helping. Let us know about the cbc.. I won't ask anymore questions you have enough on your plate. Take care. Your friend. Vicky RN

[aleet7]

Sandy,
Yay for not having shingles! I'm just totally sorry that you are going through so much since the surgery. I'm praying for healing and happy bladder days ahead!
Take Care Sandy,
Teela

[SandyRN]

Vicky, I posted about the CBC, my white count was ok, and he said it was just a localized infection. It's good that we caught it now or it would have been systemic! I'm lucky I didn't procrastinate any longer. I'm not so good at this stuff....

Thanks everyone. I am feeling the slightest bit better today...have a tiny bit more umph in my step, so I guess the abx are working. Don't get me wrong, I still feel rotten, but not quite AS rotten! :) Baby steps....I keep wanting to take giant leaps....never one was much for patience.

Hopefully I will have no more drama to post any time soon!

[stef000]

I am glad you are starting to get better...
that would have been so scary to see blood when there isn't anything to bleed and also an infection on top of that....
I am glad you are recovering more now...:smile tee
incidentally, i have to take cipro now too since i have another infection...
rrrrrrrr:bonk::cussing:
anyway i hope you get better real quick now that you have the infection clearing up n stuff...
take care
:pray::pray::grouphug::grouphug:

[SandyRN]

Steph, I just wrote you on your post. I hope things work out soon for you as well.

Take care, Sandy

[SharonA]

Sandy...I am so sorry you have been going through so much. I have been off line for a few days and will be again starting this Friday. I hope this issue clears up so you can get down to the process of recovering from the surgery instead of all the other things you have been experiencing.

(((Hugs))) coming at you, my friend. :)

[aleet7]

Sandy.....where are you?
How are you feeling today? You were on my mind and I just wanted to say hi and I hope that today is a good day for you!
Hugs,
Teela

[SandyRN]

I'm here. I overdid it before and after our new furniture arrived. I know I was bad...I deserve a major slap on the hand. Before the furniture got here I was busy posting our old sectional on Craig's list, and finally got someone here to pick it up. When the big thing was moved I saw a mess in the spot where the sofa had been...I wound up vacumming and using the steam cleaner in that room. Then I cleaned both sets of wooden blinds in that room just because I couldn't stand to put new furniture in a dirty room. Tom was there helping me and so were my kids. I knew, as did everyone else, that I was doing too much and they'd make me stop and sit down, lay down, just get out of that room....so I would rest, but then I'd get right back up and tackle something else. Now I am left with another messy room because we switched our main rooms so things got moved around in the other room as well. We have one room that looks like it comes out of house and garden and the other out of the trash barrel. We have nice furniture in there but since things have been moved the floor is dirty in parts and clean in others and it's making me nuts. I've vowed to wait til my kids come home from their father's tomorrow and we'll work together this weekend to get that other room settled. Tom has been a huge help and took the day off the day the furniture arrived....I couldn't have done it without him because even though I did a lot I didn't ever lift anything heavy...I just pushed the vacuum and the cleaner....bad enough I know.

So now I am suffering with all over body pain and incisional pain. Below and above my incision is very painful, like a bad bruise almost, so I have to watch what kind of waistband I wear. I set myself back a week probably doing all I did. I know better, but you all can yell at me if you like. I deserve it!

I have either been so busy and exhausted or in pain and exhausted to get on here. I thank everyone for all the pm's! I'm sorry I just disappeared!

I'll be fine and I learned a lesson. Even when you think you are all better, at 3 weeks post op you are NOT anywhere close to all better!!! The thing is I would have yelled at ANYONE who asked my opinion of all the work I did, but I did it anyway knowing it was wrong......

At least I have one clean room to suffer in! And, I have the greatest bf in the world who has been cooking for me again because of all of this! I really don't know how to thank him enough for all of his help!

Hugs, Sandy

[SandyRN]

I STILL am having major bladder spasms. I swear I don't know what to do about this as it's ruling my life. I don't have them as regular as I was having them, but I still have them every time I pee, and they are painful. I dread having to pee so much I was beginning to watch how much I was drinking.

I see my pain doc soon and hope he might give me something else....my uro here isn't all that helpful with IC and I don't want to make a trip to Greensboro to see Dr. Evans. I haven't seen him in over a year and they won't call in anything for me til I see him again. I just can't believe how my bladder has reacted to this surgery!!!!!!!!!!!!! It's by far the worst thing I've suffered with in my recovery!

[SharonA]

Sandy...*She says as she is tapping her foot impatiently at you*...:tsk: Do we all have to come over to your house and tie you down to make you rest and recover??? :lmao::lmao::lmao:

[stef000]

i am happy to hear from you and :tsk::tsk: to that overdoing stuff..
i hope that you will rest and recover more and more...
please keep us posted....
we need good stories to keep us going...:smile tee
take care
:pray::pray:
:grouphug::grouphug::kiss:

[aleet7]

OMG Sandy,
you've been a naughty girl! All that cleaning was a no no! Please take it easy so that you can get better. I so so sorry that your bladder is still acting up!
Hugs,
Teela

[SandyRN]

I went to the gyno for my one month checkup...can't believe it's been a month!!! Anyway, I still have an infection of the vaginal cuff, which is what he made when he took my cervix out. I knew I was feeling funky again and was beginning to feel bad that I was feeling bad, if that makes sense. I just figured by now I would be almost back to normal....not totally, but closer than I am. He said it's still very much infected and gave me another 7 days on Cipro. I am so depressed! I just want to be healed!!!!!!!!!!!! So, I go back in another 2 weeks to be poked and prodded with that stupid speculum that makes my already unhappy bladder turn to fire.

He did give me 50 5 mg Valium for my spasms. He said maybe I should go see my Uro, but I told him my uro is more into prostates than IC and I need to find another one I guess. I asked for the valium, told him it works as a smooth muscle relaxer. I'm literally praying it helps the spasms. I have been going through he*l with these spasms. Every time I pee it KILLS me. I wind up crying or choking back a sob so my family doesn't know how bad it really hurts me to pee.

I've really had enough of this hysterectomy stuff. The only positive I can say is that the vivelle dot patch I'm on for estrogen replacement really seems to be working because I've only had 1 or 2 hot flashes and otherwise, at least estrogen wise I am doing good...my nails are even growing strong and long again! So there IS some benefit! LOL

Seriously, I've had enough! It's been a month in he*l and I'm tired of it. I want it to end, and I just want to be normal again and I'm soooooo afraid that I've traded one problem for another....meaning that I had my IC under control for the most part and now it's raging again. I'm so scared because I don't want to have to deal with this bladder pain all over again. I thought I'd had that taken care of....now I don't....so I don't have a period but I have raging IC again....which is worse?

So, forgive me for ranting but I can't take much more of this. It's been one thing after another since I woke up in the recovery room!

:(

[aleet7]

Awwwww Sandy!
You still need time to heal especially with another infection! And...unfortunately the IC is taking the healing process to a another level. I'm guessing that as soon as the infections are under control maybe the spasms will subside? I wished that you could see my little upside down mouth, I'm pouting because I want to see you get better. This time will you please please take it easy(no more carpet cleaning and moving furniture for you missy)? Will you let the cipro take hold, take a valium, put on some soothing music, take a deep breath and try to think relaxing thoughts( I know that's next to impossible with a spasming bladder but try to use mind over matter). I feel so bad for you because I can read the desperation in your post, I know you want to be back to normal (as much as normal is with IC). It's taking longer than expected but you will get there soon.... I promise!:-(
Hugs,
Teela

[SandyRN]

Oh, you can believe I won't be cleaning carpet. The house is settled, the kids can clean the kitchen, etc, and I will be lounging on the new couch! I'm terribly depressed.....so much so all I want to do is sleep and cry. I'm so scared I really did trade the periods for the bladder pain/agony! I'm sooooooooooo afraid of that. It hurts so bad. I can't wait to get the valium and I've been told people insert it vaginally so it melts and works near the intended area. I'll stand on my head and spin in circles at this point if it would help heal me!!!!!!!!!

Thank you so much for your support....you've been such a dear to me and I appreciate it so much. Thank you, and thank all of you that have supported me thru this ordeal!!

Hugs, Sandy

[Mel53H]

My doctor gave me valium for my horrible bladder spasms after I had my surgery last month and it helped along with taking some Detrol La.

Those spasms are killers!! The Valium did the Job!!!:woohoo: I hope and pray it helps you too! I took it orally by the way.

[Mothergoose]

Hi just a note to say sorry to hear you are still having problems, hold in time will heal. I think you IC will get back under control when you have heels completely.

[stef000]

I really hope that your IC dies down....probably just because of the infection and just had major surgery and i know even with an angiogram my IC raged even before i was diagnosed so if they have been mucking around in there and stuff then its going to bug the bladder but i am sure once you start really healing and getting rid of that nasty infection you will be fine...:smile tee
just remember we are all here for ya
i really hope you start feeling better....
but i really think your bladder is spasming because of the major surgery and infection....
keep us updated k?
take it easy ok??? remember sure its been a month but you had major surgery so you gotta take it easy so then you heal faster that way ok??
lots of hugs n positive thoughts and healing thoughts too
take care
:pray::pray::grouphug::grouphug:

[SandyRN]

Thanks guys. The valium is helping somewhat....it does make me groggy/loopy which is strange since most meds don't do this to me. Anyway, those bladder spasms when I pee are not quite as bad as they were. I still have them though. I was going to ask...somewhere I read about inserting them in the vagina so they worked better...has anyone actually done this and if you have does it work? I talked to my gyno yesterday and his response was, "whatever works"! He knows about IC but isn't as advanced as I need at this point.

I was a good girl today and rested on the couch ALL day long except when I picked up my daughter after school! So, for once nobody has to slap my hand! :)