newicer
08-31-2008, 02:52 AM
HI,
Has anyone ever gotten sick after doing an Elmiron bladder instill at home? I've been doing them at home once a week since about April. Before that I was having them done in the Dr.'s office for almost a year (I had to get the courage up to try them at home). I've been doing ok (good days & bad) seeing an improvement with my IC. This is the only treatment I am on except for taking pain meds when necessary. I always space the instills apart about every 7 - 8 days...10 max. When I do that I've even been experiencing some pain free days! A week ago I started not to feel good and even tho it had only been 5 days span since my last instill (my Aunt died and was feeling anxiety) I felt I needed to do the instill. Ever since then I've had pain....cramping....feeling a little nausea. Just feeling yucky. I feel like the instill didn't help. One of the hardest things I find about having IC is tryint to diagnosis yourself with what's going on. Could I have a UTI? Not sure. Azo test strip was negative for nitrates, but positive for WBC (which I always seem to have show up due to the IC). I don't want to do another instill until at least 8 - 10 days so I'm riding this out, but I return to work on Tuesday (work in a school) and I don't know what to do or think about this?
Any advice is greatly appreciated. I don't know what I would do w/o the support and concern I receive from all of you here.
Thank you.
Joanne
Has anyone ever gotten sick after doing an Elmiron bladder instill at home? I've been doing them at home once a week since about April. Before that I was having them done in the Dr.'s office for almost a year (I had to get the courage up to try them at home). I've been doing ok (good days & bad) seeing an improvement with my IC. This is the only treatment I am on except for taking pain meds when necessary. I always space the instills apart about every 7 - 8 days...10 max. When I do that I've even been experiencing some pain free days! A week ago I started not to feel good and even tho it had only been 5 days span since my last instill (my Aunt died and was feeling anxiety) I felt I needed to do the instill. Ever since then I've had pain....cramping....feeling a little nausea. Just feeling yucky. I feel like the instill didn't help. One of the hardest things I find about having IC is tryint to diagnosis yourself with what's going on. Could I have a UTI? Not sure. Azo test strip was negative for nitrates, but positive for WBC (which I always seem to have show up due to the IC). I don't want to do another instill until at least 8 - 10 days so I'm riding this out, but I return to work on Tuesday (work in a school) and I don't know what to do or think about this?
Any advice is greatly appreciated. I don't know what I would do w/o the support and concern I receive from all of you here.
Thank you.
Joanne