diagnosed with PNE

[CGrace]

Hi! I have had IC, VVD, PFD,etc. for about 5 years. I've been seeing a wonderful doctor for about a year now. I've made some progress with my IC (meds. and instillations) and PFD (PT). Seeing where my progress has been, and what symptoms I am left with-where my burning pain is, how it hurts when I sit, gets better when I stand etc., my doc. says I have pudendal neuralgia. I'm going to start CT scan guided pudendal nerve blocks-every six weeks, three times. My doc said it will be diagnostic, and if it is PN, hopefully therapeutic. I am excited (not about the needle going into my butt!) because I'm having some progress with my other conditions, but my worse pain now is the burning when I sit. It can drive you crazy! Anyways, I am really hoping this works. I am not finished reading all the posts in the PN/PNE section, I'm sure I'll learn more. My doc gave me a 5-page handout on the subject that also explained treatment options so that was helpful. Have others had the nerve blocks work? Did it hurt a lot to have done? Thanks!

[Kara29]

From one PNE patient to another, the blocks ended up not being theraputic for me but I'm a very complicated case. I will be having the PNE Decompression Surgery next Spring. I hope the blocks are successful for you. At least your Doctor knows about what it is. Most Doctors are not informed at all. I see the NH Doc and I love him!

Well Wishes,

Kara

[lostindiapers]

I have heard from a lot of people that the nerve blocks do not work. I was going to ask my doctor about it but it seems almost pointless now.

[Kara29]

I guess it could be worth the try if you are willing and have the resources to do them. You never know, some people may get help and never have to come here again to post so that is a good thing! :smile tee

Kara