Frequent mouth ulcers

[april ryan]

I get very frequently nasty ulcers in my mouth, they are quite painful... sometimes on the tongue too.

Is this a common symptom in IC patients?

[ICNDonna]

I used to get them frequently, but I found it was caused at least partly by the mouthwash I was using. I honestly don't think it's related to my IC since I haven't had any for quite some time.

Donna

[jen74]

I get these often as well. I know I especially get them when I take certain medications. I am guessing they are canker sores. They are very painful. There is that stuff you can get over the counter called Kanka. It is a liquid you put on the sore to help the pain.
Jen

[april ryan]

I got some similar products in Uk... sometimes they last like 10 days or more though!

How nasty!

At least I can come in this forum and complain, complain, complain. :)

:toilet:

[Claredale]

I have gotten them all my life. It's related to acid as well. My son used to eat strawberries by the handful and always ended up with sores in his mouth. I have also found that using warm salt water will help. It sometimes burns at first, but I have found it allows the healing process to speed up.

[april ryan]

Thanks Tracey, I didn't know that!

So I hope that with Ic diet that will improve as well!

:)

[Want2BPainFree]

Canker sores can indicate low iron levels due to heavy bleeding.

Also, they could be cold sores inside the mouth from herpes.

In addition, some toothpastes and mouthwashes that contain sodium lauryl sulfate can irritate gums and tongue intensely enough to cause sores.

If they are coming a lot, I'd see a physician and have them cultured to make sure they aren't viral or your not anemic. Then again, if they are, there are meds to help control that.

Oh, I forgot to add that Lipitor is sometimes a culprit behind these.

[april ryan]

oh thanks.

I have beta-thalassemia (mild) as well so I do have anemia. It makes sense.
xx
April

[Mothergoose]

I get these often not really canker sore though, I have a script call orabase, you buy it over the counter in some places, it is a sticky paste that I put on at night, it stays on all night and ussally clears up sore over night. My doc said these were for stomach acids backing up into my month, I have GERD.
I may have spelt this wrong PM if anyone needs the name of this I can go find the tube and give you the correct name and spelling.

[Tinkerbell23]

I get very frequently nasty ulcers in my mouth, they are quite painful... sometimes on the tongue too.

Is this a common symptom in IC patients?

I have read that this is common w/ IC patients but, i have had canker sores my whole life. also i was taking lyrica which causes canker sores. so it could also be a side effect from a med you are on.

[ICtampa]

I just saw this old thread and was curious...does anyone else on here get frequent cold sores with IC? I have had them my whole life off and on but lately it is really frequent...and I'm not tough enough to not be embarassed about it :( can I get a break from something please!? I've been trying home remedies instead of more pills on top of my ic meds!!

Anyone have this problem..help?! so annoyed...

thank you!!

[Diamic65]

I use to get them really bad. So bad I would have to go to the DR. I still get them but on the side of my tongue. I'm wondering if its do to dry mouth???
My DR gave me a mouth wash called MAry's magic mouth wash. It helped a lot.

DIAMIC65 (Diane Davis)

[nottoc4]

I get frequent canker sores in my mouth and have always gotten them,long before IC. I have full dentures so that contributes to it. Bite down on something wrong and makes a sore spot in my mouth. A canker sore will show up after that. I use OTC Orabase in a tube and it really numbs it.

[Angeles]

For sores insde the mouth, canker sores, I do gargles with warm water and salt.

For cold sores or herpes - normally outside the mouth on the lips -you can get them if you are very stressed out (crying a lot etc...and yeah one can do thta with IC), cold weather also... for that you can take Famvir or Valtrex. If you are getting them frequently you can have a precription ready at home when the symptoms start you can suppress it. Be careful not to spread it to other parts of your body!
Do not use salt gargles with Cold Sores!

[purpletomorrow]

I did some research and learned that my frequent mouth ulcers were a bad reaction to the SLS in the toothpaste.

SLS is a foaming agent, sodium laurel sulfate, that has no place in toothpaste. It's what make your laundry detergent foamy!

I bought Biotene toothpaste and mouthwash and used it regularly. Now, about a year later, I get one or two mouth ulcers a year instead of almost weekly.

Please consider this solution. Many doctors think that SLS abrades the lining of the mouth and makes it more susceptible to ulceration. Which HURTS!

Hope this helps.

[ICtampa]

thanks everyone! I hardly every get canker sores but cold sores, yep. I just got back from picking up denavir cream and valtrex pills to try and curve this outbreak. It's no fun feeling yucky on new years!! I actually thought I had a refill from the last time I had a really bad outbreak about a year ago and when I called my pharmacy they said I didn't so I panicked. But I have a refill on the ones I got today for that very reason!

oh I also use biotene mouthwash, it's the only soothing thing for me when I get cold sores. It makes my mouth feel clean. Also, my sister mentioned using zicam's cold sore gel stick things...says they worked for her! I might try that next time!

thanks again!!!

[amaranthe]

Oh yeah, I get them too. SOOO painful! I did finally notice a connection between them and one of the meds I take occasionally, Provigil. I only take it maybe 2-3 times a month, but I finally noticed that I always get them like a day or two after I take it. So, I am definately done with THAT med!

Hope that yours pass soon. It hurts so much to eat, brush your teeth, and even talk when you have them! Hopefully your Dr. can r/x you some of the Lidocaine mouthwash or something to give you some relief.

Sending hugs,
Amaranthe

[Packy]

...does anyone else on here get frequent cold sores with IC? I have had them my whole life off and on but lately it is really frequent...

( can I get a break from something please!?


Hi there I can relate well.

I was told to take natural LYSINE.

It seems the chronic stress really triggers mine and this Lysine helps to keep me calm and works in other ways I can't quite explain but surely others could.

[curlycue]

valtrex is what has worked for me. I have dealth with them all my life 39yrs, they have ruined some moments in my life that the cold sores should have not? like traveling places and you have to deal with these annoying mouth sores cant even enjoy myself, you know what I mean?

[fmcbride]

I too have mouth ulsers. I have had them throughout my life. I think they are from acid foods. Although I am not eating any acid foods now. I am interested in the SLS mentioned in the earlier post.

I sometimes take a suppliment called Lysine to counteract them. This is supposed to be for fever blisters also.
I have read where frequent sucking on candy can cause an outbreak because of the sugar. This might be true for me.

[Lesleyjoy]

Hiya, after reading a few posts on this forum it's easy to see that many people suffering from IC have got other autoimmune stuff going on as well. Unfortunately AI 's like to travel in packs!!

People with autoimmune condidtions are more likely to be affected by IC, which I would also classify as an autoimmune disease!!

A few that spring to mind are:

CFS, Fibromyalgia, MS, Sjogrens Syndrome, Lupus, Sacoidosis, RA, Thyroid (Graves of Hasimotos), Celiac, Type 1 Diabetes, Chrons etc

The problem arises when you are sero-negative(like me) ie nothing shows up in the blood work so it's difficult to make a diagnosis!!
Immunosuppressants are often given to people with AI disease, plaquineil is the usual starter. Some specialists will treat patients with just symptoms...

I'm seeing mine in May to ask if I can start on some med that will cut down on flares...not just IC but others too.

Good searching,
Lesley (New Zealand)

[Kay Kane]

Hi everyone, I'm new to the forum and pretty recently diagnosed with IC. I honestly don't think I've had a sore in my mouth - ever, not even a cold sore but since the problems with IC (about 6 months), whenever I have a flare-up my mouth has sores so I honestly believe they are related. Nothing else is new, no new meds. Stressed about the flare-ups though...