pelvic floor

[pictures]

Is it possible to have pfd and not have IC.. I have been on elmiron for 3 weeks... When I saw the Uro a week ago he said he wanted to do a hydro distension... I think he has done things a bit backward.. The dmso treatments did not help at all, so I am thinking ,that he is thinking that maybe I do not have IC.. I did have 2 office cystos from 2 different Dr's. they both told me that my bladder was healthy .I have been in pain since last Jan.. I sure would like to believe that I do not have the IC .. My surgery is going to be on the 4th of sept.. Has anyone out there just have the pfd..?? Ellie

[leelee88]

I would think it would be VERY possible to have PFD without IC..Have you researched PFD?

[bigred]

I agree with the last post. I have pfd and IC and they seem to play off eachother sometimes.

[born2swim]

You certainly have have PFD and not IC. Elmiron can take months to help (if it does)... so hang in there with Elmiron. My uro's (I moved 3 times in the last 3 years) and each of them are not big fans of Elmiron. 2 love DMSO, one only thinks that Elmiron instillation help (oral not as much). All of my uros think that hydrodistentions are great for people with IC. It helps me a lot and they suggest getting a hydro every 6 months (due this month but won't be able to for a couple of months or at Christmas time). I have had 3 in office cysto's and it always looks healthy. The problem I have is my bladder won't expand very much while I'm awake. So, they had to do a hydro to just get a look at it (when I get 50cc's in my bladder, it becomes urgent and uncomfortable... adding more than that becomes painful). So, on a hydro, they saw, scar tissue, connective tissue abnormalities, vascular changes, and pin point bleeding. Between symptoms, the KCl test, and the hydro... it's a slam dunk for IC.

So, hang in there! Explore your options and read and research!!

Is it possible to have pfd and not have IC.. I have been on elmiron for 3 weeks... When I saw the Uro a week ago he said he wanted to do a hydro distension... I think he has done things a bit backward.. The dmso treatments did not help at all, so I am thinking ,that he is thinking that maybe I do not have IC.. I did have 2 office cystos from 2 different Dr's. they both told me that my bladder was healthy .I have been in pain since last Jan.. I sure would like to believe that I do not have the IC .. My surgery is going to be on the 4th of sept.. Has anyone out there just have the pfd..?? Ellie