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Megs
03-18-2004, 08:51 AM
does anyone has toruble wearing pants. the crouch affects me and i'm not sure if its due to vulvodynia, PFD, IC or combo of both. if you ahve trouble, have you had success with anything?

classics
03-18-2004, 09:39 AM
I suggest trying all cotton sweat pants. Don't wear any underpants underneath. Of course you probably will only want to do this when at home. Also, wear nightgowns (not P.J.'s) without underpants. Or you can sleep nude.

When I was really uncomforable, I used to get under a blanket on the couch when watching TV. I would lower my pants. No one in the family can see anything, so this works well. Don't wear any pantyhose, get the thigh- highs when wearing dresses and skirts and use all cotton underpants, if you feel you must have something on underneath.

Sandy N.
03-20-2004, 11:40 AM
There are some days that I just shed tears wearing underwear. If I sleep in pajamax after a cople of hours I wake up and the bottoms leave. It is especially hard when you have to work..Take care and know you are not alone:)

ljl765
04-10-2004, 05:25 AM
Until I found low rider jeans, I was restricted to skirts too, The lower jeans don't touch my stomach, I think it's v v that hurts and burns as much as IC..it's outside..But I can't stand nothing..and w/everyone around can't go naked...Cotton anything helps your body breath..and that's healthier anyway. me thinks :-)

grammalady
04-11-2004, 12:14 PM
I just registered today, after reading through a few posts and discovering the same symptoms and methods of coping!

Thanks for making me feel "normal", when everyone I know around me in my immediate circle seems totally unaffected by these annoyances!

I found all your tips helpful and reassuring!!!

God bless!
Nita:kiss:

Audrey Rose
04-11-2004, 01:50 PM
:welcome: Nita!! Glad you joined the family!! :D

You will definitely be understood here...and find a lot of info, support and encouragement!! And sometimes get a good laugh too!! :biglaugh:
I now wear baggy pants and always use a Thermacare or Bodi-heat pad on my slightly loose underwear during the day. I am usually pretty comfortable. I agree, ice really helps on those days that you really burn. Also, I use the neosporin with the numbing medication. Or the walgreens version of it. And that helps when I am going somewhere and can't be bothered with the burning.

Hope to see ya around!!

Hugs,

Sarojini
04-11-2004, 02:20 PM
Hi Nita,

I replied to your other post under "What do you think causes IC?", but just wanted to :welcome: you again :)

I wear looser pants now too. And on days when I'm feeling ok I can get away with wearing stretch jeans... although waistbands can poke me in the lower abdomen and this often makes the pressure and desire to urinate worse for me. It is especially bad when I try to drive.

Anyway, sweatpants are my friends --- I bought lots of soft ones at Target in all different colors--and also I have some looser pants and skirts that are dressier too. And I have a love-hate relationship with my denim overalls... they are big and baggy, and soooo comfy, but it is a pain in the bum to have to fuss with them every time I have to urinate (which can reach 20 times or more on a bad day).

Jen

Audrey Rose
04-11-2004, 02:37 PM
Yeah Jen, overalls are soooo comfy but such a pain to take up and down all day. I have had a few "accidents". :( I have tried to think of a way to have some "quick release" attachments. But couldn't think of anything. I think velcro would be too risky. I could see turning the wrong way and having them drop to the floor in public...NAW, I don't think that will work. :yikes:
Wouldn't a "quick release" system be great though!!! Maybe Jill will find a designer for her IC friendly clothing line and maybe they could think of a good idea...

Sarojini
04-11-2004, 03:06 PM
Hey Audrey Rose,
That would be SO awesome if there were some IC-friendly overalls!!! :) I haven't had any accidents while wearing mine yet, but it has come VERY close a couple of times... quick release things would be ideal.

Jen

creatingkarma
04-11-2004, 05:20 PM
Yes! I agree! Quick release overalls! How about child seat latches - like the ones you use to buckle your kids into shopping carts? Who do we call about having some made?

My ob/gyn prescribes a cream for my burning & itching. It works wonderfully & is called Nystatin. It's mainly prescribed for yeast infections of the skin, but helps with this as well. I've also used vaseline. If nothing else, it keeps the urine away from my sensitive skin.

Karma

ICNDonna
04-12-2004, 02:51 AM
I like to wear Erika elastic waist pants --- they are 100% cotton and nice and wonderfully loose. I hadn't thought of them for a while, but got some summer things out this weekend and they are sooooo comfy.

:toosh:
also easy to pull up and down....

Donna

Audrey Rose
04-12-2004, 05:21 AM
Hee, Hee,hee,haa, haa, HA!!
Donna, that smilie goes PERFECTLY with your post!!! :D

I love these new smilies!!!! :thumbsup:

Hugs to all!!!

ljl765
04-12-2004, 06:19 AM
To spite that I have had dxed IC for over 11+ years, I only resently found the burning an issue that's so painful, I use Lidocaine 2% but even w/Ice packs (gell) this sometimes isn;t enough. Heat is my enemy "there"..the burning is awful.. like today..I was interested to hear about "itching"...I never had yeast and assumed it was that?? But now that I see this..maybe it's not?? No wonder Monistat burned so much and didn't help!! SO So SO happy this board is here..
.I'm beginning to wonder if IC and Vulvardynia are not from the nerves becoming inflamed every time I flare..any one know?? I wanted to say I am SO grateful to each and everyone of you who write in here, for your positive input..(even on those cranky days I get) and for understanding and not screaming at me when I do feel cranky due to pain..I think this subject is really helpful and should be explored more.:kiss:

grammalady
04-12-2004, 07:44 AM
And thanks Audrey Rose and Jen and ljl for welcoming and offering helpful suggestions!:hi:


I felt so relieved to read what some of you do.....like: getting rid of pj bottoms midway through the night, using ice paks, elastic waist pants.......NO underpants some days....etc. I was doing all that just grasping for some comfort. I guess "misery loves company", eh??? :D But no kidding, there were times I felt like I was either "losing it" or "over-reacting" or something!

My poor husband tries so hard to be understanding......I know I'm blessed with this man! But I'm sick and tired of this thing "ruling my life"!!!

Has anyone ever bought one of those special seat cushions? I saw them and thought they made sense, but would be a bit embarrassed to carry the thing everywhere!

Recently I bought the book: " Solving the Interstitial Cystitis Puzzle: A Guide to Natural Healing", but Amrit K. Willis. I'm still trying to wade through all the chemical analysis to get to the "good part"!!! Has anyone read it, or any other book that really helped?

Hope you are all having a good day! It's spring.......which stands for hope and renewal, right?!!!!

Take care.

God bless.
Nita :kiss:

ICchell
04-12-2004, 08:09 AM
Hello and Welcome Nita.


I love gospel music too
Michelle

grammalady
04-12-2004, 08:35 AM
Hi Michell!!

Thanks for the post! Glad you like gospel music! You're one of the "younger generation" of fans! That's great. :thumbsup:
Do you ever watch the Gaither Homecoming on tv or video??? I think ole' Bill has done more the spread southern gospel music than anyone! I grew up with it.....WAY back there!

Where are you located? Massachusetts??? You are WAY up in Yankee territory. We are too....IL ....just not quite as far north or scenic! I'd LOVE to take a trip some day, up the eastern coast!
My daughter lives in Brooklyn, NY now, so maybe we could start there!

Hope you're having a good day! It's spring here, but it's still cold!
Only 31 degrees this morning. My daffodils are drooping!!!

Take care.

God bless.
Nita

:kiss:

Iris
04-12-2004, 10:18 AM
Hi Nita, I did get one of the cushions and it works really great, I use it in the car mostly because of the vibration and it works really well. Loved your post Donna, with the smilies hilarious. I find I am always happier with looser type of pants, sometimes I wear the tighter jeans and can get away with it. Love overalls and have some, but like the gals said it takes a while to unhook everything with those. Thermacare pads work great and so do the bodi heat patches, it all helps. Take care and stay cool:toosh: :wink: :woohoo: hugs Iris. :hi:

grammalady
04-12-2004, 10:39 AM
Thanks Iris. Nothing like a personal recommendation. I think I'll order one! Do you ever look around you when you're seated somewhere in a large group, and wonder "why aren't these other women "squirming" in their seats??!!! It's nice to know I'm not really the only one!!

Take care.

Nita

:kiss: :thumbsup:

Sarojini
04-12-2004, 11:23 AM
Hi Nita,

I have a cushion too (because, for one thing, Iris recommended it to me too ;) ) and I use it mostly in the car. It really helps! I have used it on other chairs too, when my symptoms are flaring up, and it is pretty comfy then too. It can't hurt to try! I hope it works for you!!

Jen :grouphug:

kadi
04-12-2004, 02:25 PM
Yes, I have one of those special seat cushions. I thought it would be embarrassing because it's at my desk in my classroom (I teach high school kids). One day one of the kids sat at my desk & flipped it up against the back of the chair. I guess she thought it was a back support that fell over!!!

No one's ever commented or noticed it... And it sure makes my prep period easier:) Now I just need one the right thickness for the car... hmmm

ICchell
04-13-2004, 08:12 PM
Hi Nita,
No I never have heard of that show.I live on cape cod.

Good thing spring is finally here,maybe those daffodils will come back to life.


Take Care:grouphug: