Hunners Ulcers

[SandraCT]

I was just told (after never knowing) that I have Hunner's Ulcers all over my bladder and the surrounding walls/tissue. This was confirmed at my new Urologist's office after she read the report of my hyrdo 9 years ago. I don't really understand what this means except that I'm guessing my bladder is a mess and pretty severe. I have gone years feelilng good with IC so I'm wondering if by having these ulcers, it means that my IC is more severe than others that don't have them. I never had a lot of pain except for in the past couple years, I now have been dealing with very bad pain in my legs/groin/hip and horrible neuropathy issues. I just can't imagine that it's related to IC but my Neurologist said he does not know what's causing this pain. Just wondering if any of you have these hunner ulcers all over and around the bladder like I was told I do. This is all so draining at times....Thanks for your help.
Sandy

[ICNDonna]

I have hunner's ulcers, but I feel good most of the time so I'm not sure that they make any difference for me.

Donna

[lisabar36]

I also have hunners ulcers. I don't know that they make a difference as to pain because IC in general is painful, and alot of people have pain that don't have ulcers to. When I was diagnosed with IC, I was diagnosed with IC and hunners ulcers and the hydro really helped me for about a year or so. I would not say my bladder is worse, I think the PFD is whats making my symptoms worse, as long as I take my meds and follow the diet, I feel I am protecting my bladder. I know the Elmiron is helping because I always had alot of blood in my urine when they check it, and now unless I am flaring, I only have a trace verses a large amount. Did they suggest Elmiron or anything for treatment? Bladder instills? :) Lisa