Adding Elmiron to Instills = big difference!

[Taramc]

Hey out there,

I read online somewhere that when you take Elmiron orally, very little of it makes it into your bladder. I also read you can add it to your instill coctails to get it directly to where it's needed.

I started doing that in April. BUT, I use size 7 pediatric intermittent catheters for my instills, and couldn't get more than 1 Elmiron into them because it stops up the cath.

Then just two weeks ago I decided to add another 5cc's of liquid to my instills (Sodium Bicarb 8.4 percent) and I'm now able to get 2 emptied Elmirons into my instills.

I'm three instills in with the new recipe, and it's making a big difference! I noticed a little difference with the 1 Elmiron (started being able to eat small amounts of citric acid) and now with the 2 Elmirons I'm able to get away with blueberries, chocolate ice cream, and sugary sodas!

I flare so easily from diet mistakes, so I can attest to this REALLY REALLY making a HUGE difference for me. Everyone should try it :)

[jen74]

I am glad it is working for you. I tried the elmiron in my instills, but I ended up getting much worse pain so stopped after a month of doing it. Now I am not even doing my instills becuase I keep getting UTI's and am inable to take most antibiotics.

Jen

[justice4j]

I will try adding a little more bicarb. I had the same problem as you with the syringe getting clogged with it.

Thanks!

[donnagant]

I can also attest to that! My doctor has put two Elmiron in my bladder for all of my instillations and it has worked great. In three months, I am back to chocolate ice cream, chocolate milk, some mixed cocktail drinks, fresh tomatoes, even a little vinegar or a little lemon juice in my salads. I don't need to worry about preservatives or artificial coloring either!!:woohoo:

[SharonA]

I am really happy that this is helping you. :)