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View Full Version : Steven's johnson syndrome??


jen74
07-03-2008, 06:13 AM
Hi ladies,
Ok, I need some info. I have a UTI right now and I am having issues with getting a antibitoic that I can tolerate. The bacteria(ecoli) is resistant to cipro. I was given macrobid but had terrible chest pain and chills after taking the second pill so my doc said to stop it. I see her later today. I know she will likely want me to take bactrim. The last time I took bactrim, I had a 14 day course. After being on it for over a week I developed a very sore mouth, tongue and like a caker sore in my throat. I was able to finish the antibitoic, since I was almost done with it anyhow. Well when I saw my PCP last month, she said I shoud not take it again due to the possibility of getting stevens johnson syndrome which is a deadly reaction to some meds, especially sulfa's. It is a skin disease that attacks the mucous membranes and it is awful from what I have read.
ANyhow, my PCP who told me this has left on long tern maternity leave and so I am seeing a new doc and this one says that steven johnson is rare and the reaction I had does not mean I would get this disease at all.
I unfortunately am running out of choices as far as the antibitoics go because I have so many reactions to them. I believe bactrim and maybe not for sure possibly one other antibitoic is left that I couls maybe try. All the others a IV and injection. I cannot afford to stay in a hospital to IV so that is out. And the way I get UTI's lets face it, I cant be getting IV meds every month or so just to treat a UTI, it is not safe and this is how resistance happens quickly. Anyone else out there have this issue and why is there only like a handful of antibitoics that treat UTI's out there? You would think there would be more. They say there is alot, but there is not. Sure there are a lot they mention, but only about 3 or 4 families. So if you are allergic to cipro, then that wipes out all the flourinoqolones(sp) in that family. What to we do in a case like this?
Jen

Krisi
07-03-2008, 07:26 AM
I am so sorry you are doing so horribly. I hope it gets better! I know the feeling I am allergic to the quinolones (cipro levaquin etc) or at least was told not to take them do to the 2 reactions I had from them. I really hope they can find a drug that you can take. It does make it difficult if you can't take one of two classes and it is resistant to the other. As far as iv antibiotics they can give you a pic line and you can give them to yourself at home or work or whatever. A coworker of mine had staph and required iv anti-bs for a long time some he received at the hospital, others he gave to himself.

http://en.wikipedia.org/wiki/Antibiotics

The website above lists all of the classes. Is it resistant to Cephalosporins? or do you have a reaction to that too? I hope this helps. Get better soon!

Krisi

cara1336
07-03-2008, 07:47 AM
i have major issues and bad reactions to antibotics also i normally cant tolorate any pill form or liquid so i go to the local hospitals infussion center for my antibotics and have them giving through an iv/picc line you only have to sit there till the meds gone then go home its easier than being inpaitent all services are on an outpatient basis (much more affordable) . I have recuring utis also and have had a picc placed so its not as bad as havin to have an IV all the time. I would talk to your doctor and see if this could work for you. Its weird because for me i cant tolorate most antis at all but some i can tolorate by IV and not orally. Just a thought Good Luck :pray::pray: pm me if any questions i love to chat