I'm having a bad Saturday

[elitynski]

Hello - it's gotten to the point in my life where this board is the only thing where I can get any support. I don't feel like talking to my parents and friends don't understand.

Yesterday and today I feel like I have strong Urethral symptoms where I'm feeling like I need to pee all the time. THe only thing I can tie this to is the fact that I ejaculated on Thursday night. This has irritated the urethra in the past and I'm guessing that it got irritated again.

I'm probably going to take a hot bath and 4 motrin (which the Dr. has had me do in the past) and just see if I can rest today.

The hard part is living alone and just feeling like I can't leave the apartment. My mom called and I just didn't want to talk - because my parents really don't understand this whole thing.

I had a lady from an IC Network tell me that my nocturia is a sign that I probably have PFD AND IC. However, the chief of URology at NW hospital in Chicago Dx'd me with PFD only.

I'm also exhausted. I don't feel like I can lay down because of the urethral symptoms, but as I'm sitting at the desk I just want to go to sleep.

The good thing is that yesterday - this symptom settled down towards the end of the day and I could fall asleep. I'm hoping for the same today.

I read the posts on here and see that so many of you are dealing with discomfort & pain - day in and day out. It's been weeks since I've had a really good weekend. The last good Saturday was a little over a month ago.

I had PT yesterday which was ok and I worked some. However, today I just feel trapped in my apartment. I'm supposed to fly home for a long fourth of July holiday - but feeling like this makes it hard to even think about that trip.

I'm tempted to go to the ER, but they will simply tell me I have Urethral irritation and send me on my way. Frankly - I would love some kind of narcotic that would knock me out.

Monday is the one year anniversary when this whole thing started. I wouldn't have thought that I'd be feeling WORSE at this point - even if I wasn't 100% I thought I would be feeling better than I had been. How wrong I was.

It makes me think that there really isn't a light at the end of the tunnel. I don't feel like eating or drinking anything which is probably some of the depression.

I sit here looking at this post not even knowing what else there is to say. Just that I'm not sure what to do at this point. I guess as long as I haven't posted I feel connected and once I hit send - I have to wait for responses - assurances, comfort, warmth.

I'm sure many of you have been where I am today and have gotten through it - for some reason today I don't feel like I can. My whole trip to Vegas was a nightmare as I didn't feel good a lot of the time. I sat in meetings where i felt uncomfortable.

Thanks for your support - it's meaningful because it connects me to other people.

[aleet7]

I'm sorry that you're having a bad day. You know that we totally understand you on this! Somedays you don't feel like explaining to family members(we know they don't understand what we're going through) why we are having a bad day. I absolutely come to this board on days like this because I don't have to explain why I'm having a bad day, or why I'm not feeling good because everyone here understands! We end up planning everything around our condition because it's basically right there staring us in the face or more so in the bladder. I hope that you get the rest that you need to feel a little better. Be encouraged, and take great care of yourself today!!!

Sending warm healing thoughts,
Aleet7

[c2miracle]

Hang in there!! I am also having a bad day today.:mad: Did not wake up (except to go pee a million times) till 10am! I am usually up at 5:30 am, for work. I had a rough night and I just can't seem to get myself motivated today because of pain. My hubby just went to refill my prescriptions, he is so supportive! I understand when you feel that other family and friends just can't comprehend what we feel with IC and how emotionally it effects us. We are all here for you! Hope your day gets a little better and Think Positive!:angel:

[Amymarieb]

I understand what you are going through. You get so tired of it all. Sometimes I avoided helping my self for years with IC because I would just get depressed about it. You feel like a burden on your family and friends and they really try to understand but just think you have an overactive bladder where you really have a oversensitive bladder..You try to get relief and the days you feel good are like gold. I just sat in my new apartment today and wept because I don't know what to do next. My new urologist prescribed me imipramine that is causing me so much pain today. I think I am not going to take it again. One time try ..ahahh.. This chronic pain can control your life. Your attitude does play a big part in your road to healing...I am really going to try to control my IC on my own and learn from the wealth of knowledge out there. I just need to believe that I can do this. I can beat this disease that paralyzes your body and spirit in so many ways. We are bigger than this disease. I will pray for you today and all the others who are suffering.
Amy

[SharonA]

Eric...Have you tried to substitute Tylenol for the Motrin? As you already know, many of us have trouble with Motrin causing bladder symptoms. I wonder if that might be cause for some of your urethra problems. :hmm: Just a thought. :)

I think you should take that trip. Sometimes the best thing to do to feel good is to get a hug from Mom. I know you don't really want to talk about your problems, but that can help, too. Mom's usually have big shoulders and really want to know about what they are just feeling about their child. Mom's seem to have a 6th sense when it comes to their babes health. I know...I am Mom to a 38 year old son who lives a long way away from me. I can hear it in his voice when we talk on the phone. It's not always what he says, but how he says it.

I hope you will get to feeling better as the day grows long so you can get a good nights rest. :)

[elitynski]

Thanks for the feedback- yeah, I'm not in pain - just that feeling in the Urethra which drives me crazy and I'm hoping it will settle down.

As far as Motrin is concerned - I think that I need an anti-inflammatory and the tylenol isn't an NSAID.

I do want to get through this - I did 2 things and I think it was the fact that I ejac (I hate even saying this) on Thursday night - and I'm guessing that's what's causing this. Hopefully it will feel better tomorrow.

I'm going for a walk today just because I know it will be good for me. Even if the weight doesn't completely solve the problem - I want all extra weight off of my bladder.

I still don't know if I have PFD or IC or what - but at any rate there is discomfort and it impacts my life.

I also went to the ORTHO and he thinks I might have inflamed my bursa in my hip when I fell on my butt but my PT isn't as convinced - either way - something is inflamed in there.

Thanks for hte good words - I look forward to a time when I will feel better again.

[Wolfe]

Sometimes it takes a long time to get a right diagnosis or to get someone who can help. I learn something every time I peruse this board. For instance, I didn't know that Motrin is an irritant. But it doesn't work for me; I've always been a Tylenol girl. I've had this for 18 years. How can I still be learning about it? But thank goodness I am.

Have you tried over-the-counter Uristat? My most irritating symptom is also that feeling in the urethrea, and Uristat helps that a lot. My uro gave me a script for Utira-C, which works even better.

AMY, I finally broke down and asked to see a psychiatrist to see if he could find an antidepressant that wouldn't bother my bladder. He put me on imipramine, saying they prescribe it for overactive bladder. It has only been 3days, but my bladder actually feels better than it has in weeks. (It will take longer to know about the depression.) My point is, maybe something else was irritating you that first day, and not the imipramine. Maybe you should give it another chance. I hope it works for you.