Feeling better BUT...

[serendipity]

I started Elmiron one month ago. I think it's working cause overall my bad days are not as bad and my good days are more often. However...sex has become more painful than it has in a long time. I was so happy thinking since I was feeling better that sex wouldn't hurt. It hurts in the inside of the vaginal wall and deep inside to to left (ovary area). I had sex last night and the usual positions that never hurt before did so now I am very freaked out as to what is causing this. I was put on Topamax (for migraines) but was told it might help IC but I had to stop it because for one...I had excruciating back pain right after I started it and wasn't sure if that was contributing to it..and for two...it made me a basket case. I was so emotional, moody and fogged out. So Elimiron, heading pads and (trying) to watch what I eat is my only treatment right now.

If I'm feeling better...why the increase in painful sex and what medicines would/might help with that pain?

[lisabar36]

Hi, I am sorry that your having pain with sex. I wish I had an answer for you. I have some times with not so much pain and other times I have pain. I have had less pain since using the ky warming liquid with pure and gentle ingredients. I am also in Therapy for help with that. I have alot of PFD issues and I have a ways to go in therapy. My therapist deals alot with sex pain, so I hope when I am done, it helps me with that. She has found my areas that cause alot of my pain with sex and we are working on that. I have had problems for as long as I have had IC but this is my first time getting therapy.

[serendipity]

I went for PT for 2 months when they didn't even think I had IC. At that time they thought it was more PFD related. Ironically...when I was going to PT I wasn't having much problems with pain during sex and she could never find the "trigger" points that would mimic the pains I was feeling. She actually thought I needed to see my urologist again because she thought it could be IC and not PFD or both. Anyway...I learned some exercises to do...my boyfriend came one day and learned how to do the internal massages. Which he will be doing on a nightly basis once we move in together next week. So I am hoping maybe that will help.

I just always have that lingering fear in my mind of "am I getting worse?" so anything new, different or worse symptoms wise freaks me out.

[leelee88]

hope you got back on the flexeril? Also I know taking one of those before sex really helps..

[serendipity]

I did start taking the flexeril again. My overall pelvic pain seems better (plus not sure if stopping the Topamax contribiuted to that as well). I am still trying to figure out what it is I feel when I have symptoms. Like whether its coming from the bladder, nerves, muscles..etc... this pain last night felt like bladder pain. It felt like the pain I feel when my doc does an internal exam and presses on the bladder. So I am confused because I thought I was feeling better bladderwise.

The only think I can think of is that for lunch yesterday I had a BLT and normally I didn't think bacon bothered me but about an hour or so after I got alot of my left sided pain and burning but it went away as the day went on. Maybe though, my bladder was a bit irritated from that? So confused.

[leelee88]

If you had a BTL and ate tomatoes I am betting it was the tomatoe..And not the bacon that caused the flare..

[serendipity]

If you had a BTL and ate tomatoes I am betting it was the tomatoe..And not the bacon that caused the flare..

Yeah it had tomato but I took most of it off. So maybe be bladder was a little sensitive to last night and hence the pain? I'm hoping that's all it is.

[Mothergoose]

serendipity

Hi just a sugestion. I recently saw a PT for PFD, mostly becasue of the amount of pain sex caused me. Ussally not during but the next day it is really bad. I live quite far away and can not get to PT very often. She said I should buy the book yoga for dummies and start doing it. I just got the book so I haven't even opened it yet. When I saw the PT she was checking for trigger points and said I was so sore she didn't think she could work on me to try yoga for a awhile and deep breathing exercises. I do plan to do this to see if it will help.
Just thought I would tell you, it is relativly inexpensive and I don't think it can hurt to try it.

Mothergoose