Hi I would like to know more people with IC

[susanwelby]

I guess these are suppossed to be pretty short and to the point. I was involved in an irodology program and that when I started to notice I was in the bathroom an awfully lot. On June 4th 2003 I had an apedectomy. It was gang green. From then in I knew I was not ok. The pain grew inside of me each day. I talked to about twelve Dr or more until I was taken seriously by a urologist in Dec 2005-Jan 2006 and was desprate enough to had a cystcopy and a hydrostention. I have seen several Dr's:confused: since. The IC diet helps me somewhat but I am still pretty miserable. I have tried many medication and they have brought other problems and little relief.:cussing::confused: I live alone and I feel my family is very disconnected from me. Yes it has been a couple of years since I have been diagnoised. But IC is so hard to live with. I have found some support in SL but that is rather far away.

[ICNDonna]

:welcome: to the IC Network. You have found a large group of people with interstitial cystitis. You will find a lot of support here.

Warm hugs,
Donna

[lisabar36]

:welcome: You have found a great place for support. You can ask all the questions you want here and also this site is full of so much information. I am glad you found us. I am sorry you haven't been feeling well. I can also remember feeling so alone for years. I never met anyone with IC. I came a long way since I found this site. Everyone is so supportive here. Are you on any meds now or just following the diet? I know you mentioned trying some meds. There are alot of treatments for IC, hopefully as you navigate through this site, you learn even more about it. I know I did. Let us know if there are any quetions you have. :) Lisa

[susanwelby]

Do you know if Neurontin is a narcotic? I have not tried it, but I have a friend that it works well for who says it slows down her speech and thoughts. How long did it take you to get used to taking it?

Your pictures are very cute. There's a picture of your fiance. When are you getting married? Congratulations.

Doctors can be really hard to work with. :headbang: With IC being very uncommon and such a personal problem, finding a support group in my vicinity has been very difficult, or others that suffer with this.

I may not reply often as I am hving computer issues, but I will check this thread when I can.

[mlasorsa]

:hi:Hi! Don't feel alone! There are somany good people on this site that share their stories and treatments. Maybe you will see a particular treatment that you have not tried. I had been seen by so many MD's before finally being diagnosed in March of this year. Now, with the bladder instillations daily, I am flare free so far. I had the cystoscopy with hydrodistention also in March at the Cleveland Clinic. It has helped! There is no localurologist here that knows about IC, but I am certainly thankful to the specialist in Cleveland, OH that saved me from the miserable pain that I had been putting up with for years.
I hope that you find the right treatment for you. I will say a prayer for you.Please know that you have a friend with IC that understands what you are feeling. :pray:

[SharonA]

susanwelby...

I can not believe that I missed your post. I am so sorry. Here is a belated but just as heart felt :welcome: to the ICN... :)

[aleet7]

At one time I was on neurontin. I was told that it is used for epilepsy or nerve problems( I had trigeminal Neuralgia). I don't believe that its a narcotic. When I took it it caused dizziness and sleepiness. I was not able to drive while on it.

Best Wishes,
Teela