Had a talk with Uro today

[waterflow]

First I asked him if he would call my GP doc and get a script for the cholesterol pill. He said sure no problem and then I asked if he could find out how much SSI I would get if I were on my own. Figured that way I know just how much I would have to work with and to see if I could own my own place. Told him it would be a trailor no mansion or anything. I found one trailer for sale in the paper. $550 down (wouldhave to save that up) then $350 a month. I don't know if there are school/city taxes on trailers like homes and then I figured there would have to be the lot rental for the trailer. Then utilities and such. Also repairs when needed. At least by knowing how much I would to work with I can figure things out once and for all. I know how much it takes for the cats each month. Saving for shots and vet bills and if need I can always dump my car. That takes a lot of money right there. Could take a cab when I needed to go somewhere which wouldn't be very often. Now all I have to do is wait until next week to find out. I did tell him I was so sorry for bothering him so much but he said it was ok. I always have him do something new and exciting and things that are a challenge instead of just having to deal with bladders all the time. :smile tee He never knows what to expect when I come. :lmao:

[leelee88]

Mary, It is great you have such a good relationship with your Dr.. Wow it would be nice if you could move and get that trailor!! I will keep my fingers crossed that you will have enough money coming in to do this!!

[ICNDonna]

Just remember that once you are on your own, you could be eligible for things like food stamps and Medicaid!

Donna

[SharonA]

I sure hope it works out for you, Mary. :)

[hdb1982]

I hope the difference would be enough you could get out of the situation you are in. Who cares if it is a trailer? It would be yours, just yours, and that is all that matters. And by doing it on your own, without any help from your family, would give you an awesome sense of achievement. Good luck, I am crossing my fingers now, so sorry for the typos..hehehe

[VickiB]

I hope this works out for you & your kitties!

Vicki

[ICNJess]

I hope everything works out for you!

[traceann]

Oh girlie that makes me soooooo happy!!!!! It just about brought happy tears to my eyes:) And like Donna said - don't forget if you are out on your own you might be eligable for food assistance & medicaid! WAY TO GO!!! And I am so happy to hear that your uro is so very willing to help you out - that right there says he thinks this could be a good thing for you and must be just as happy for you in wanting to do your own thing! WOO HOO!!!!

Hugs,
T

[dyno]

Mary, I am so proud of you for talking to your Dr. about this. It would be so good for you to get out of that situation. I am so praying this works out for you.

[mlzippy7]

Mary
I hope it all works out well for you!!

[BrittanysDance]

Oh Mary! :woohoo: I am praying things work out for you! What a terrific and huge step for you! So proud of you for taking action on your cholesterol :smile tee and other things - what an accomplishment! I knew you had it in you! :D

Lots of hugs,
Brittany

[mary124]

Mary- Hope things work out for you.... !

[waterflow]

I’ve had the Medicaid since the beginning of the IC. That has been the only way I could have things done along with taking pills and then for I don’t know how many years I was a basket case worrying I would lose that too. Family was saying waste of time and money, taxes were going up because of Medicaid costs (which I guess that was ME) and then when the heparin finally started helping (which I, my Uro and nurses were so thrilled about. I remember when the 2nd Nurse was doing the instill and she was used to me having to hold it at Uro’s and I told her I didn’t have to. I could hold it and go she was like “wow! That is so great and I thought to myself why was she so happy about it? My family wasn’t that thrilled. I still laugh to myself when I think about her doing that). Anyway, all I heard from family was I couldn’t do the heparin every week for life, it was stupid, Medicaid wouldn’t pay for it and then I threw in I was worried my Uro would dump me. For 2 years just about every time I went to have it done I asked him will Medicaid keep paying for it, will he let me come for it. He said as long as Medicaid doesn’t change they will pay for it and he didn’t care if I came every day. My family said THEY WOULDN”T pay for it and lord knows I couldn’t pay for it since I helped all of them for free so many nights I Spent crying in bed wondering and worrying about it. I don’t remember why or how I finally stopped worrying about it but I did. I do still feel guilty about having to use the Medicaid and having the SSI. Last night while waiting for the hydrolyzing to kick and fall asleep I started to worry that I would lose the SSI for “stirring thing up”. Do any of you think that would happen? I know many people who get SSI and they even travel where I don’t. I stay home unless you consider traveling is to doctors and groceries. I guess in the end I still feel like I didn’t “earn” the right to the SSI since I didn’t work for it and there is nothing wrong with me. Was also wondering last night in bed maybe it is me and my family is right? I’m just a lazy retard? It isn’t just 1 or 2 thinking that way about me but all 8. I do think it is so strange how I get along great with my Uro and staff there. The one at the window I got to laughing with so hard when I left. Long story but it was funny. One thing I did do too was ask the one nurse (I always talk to) if she would take the cats if I died. She told me nothing will happen to me and I will out live the cats but I told her you never know and I still have the chest pains (which I think is mostly due to stress) and with the cholesterol I wanted to make sure someone took them. She couldn’t keep them since she has her own pets but I told her just long enough to find them a home. She said she is going to look around and see what she finds. I thought maybe a farm way out in the woods where they could run and not get hit by a car. I am probably over reacting to it all but I worry. Think when I go to town next time I will call that add to see what all the details are that way I will know before I go to Doc’s.
You know I am tired of feeling guilty about wanting my own life and not be a maid to everyone and do what they want. Was thinking how it was always about everyone else and if I tried to do for me then they got mad at me. Why didn’t I see all of this long ago??? Some of me still tries to think none of this is happening but I imagine that is normal isn’t it?

Another thing they are doing is acting like I'm the bad guy not them> I'm the one who said bad awful things and treated the rotten. Boo hoo for them and they are the nice ones who have treated me like a queen. They even told me "they let me buy things". Of course then I start to feel guilty and think maybe I am the bad guy. Guess that is how it works mind wise?

[ICNDonna]

I'm so happy that you are beginning to see that you deserve to have a life of your own. I hope this all works out for you.

Warm hugs,
Donna

[VickiB]

Boy, it sure sounds like your family causes you a good deal of stress & worry. It wouldn't surprise me if you get out on your own and find your health improves significantly!

Vicki

[BrittanysDance]

I agree with Donna and Vicky :). I'm so happy you're finally seeing what you should have been seeing Mary - and no, you're not what they say you are, so keep on pushing forward, getting healthy and making your OWN way in this wide wonderful world! You CAN do it!

Hugs,
Brittany