MomRN
05-31-2008, 06:45 PM
Oh this is frustrating.
I'm not being "treated" for IC.
I'm being treated for "urethritis" via antibiotic/steroid combo to compound the urethral suppositories. Not my first choice but my second choice was "urethral injections". Gag. I couldn't wrap my mind around that choice.
I still hurt... everyday. Worse with my cycle. No heavy bleeding but gyne and Reprod Endo (just went to Reprod Endo for endometriosis expertise) both MDs believe I have adenomyosis.
The pain is definitely affecting my life although I am able to function for the most part.
No sex life whatsoever. Way too painful. Intercourse isn't half the pain... the big O causes horrible pain. I told DH we could try a couple weeks ago. I felt badly b/c I don't want my DH to feel "guilty". Then I feel guilty b/c I just cannot do it. He doesn't put pressure on me so why do I still feel badly? Probably b/c it isn't supposed to be this way.
It just SUCKS that it affects so much of life.
So.... "trigonitis". MD did NOT say "trigonitis" in the office. He said "urethritis". My in-office cystoscopy was at the end of March. I've been on these suppositories for nearly 8 weeks.
Not much relief.
I'm 36 and used to playing and being active. I loved being on the go go go. Now I don't wanna. I'm tall and small frame. Sometimes wonder if my body proportions have anything to do with this.
By the time late afternoon/evening come, my pain seems exacerbated simply by the passing of time being awake and up.
I'm looking to get 2nd opinion. I think my Uro/Gyn MD is a smart fella BUT I have serious trust issues. He said my cysto would be "fun" and "really won't be bad". I had the lidocaine jelly before cath insertion. My cysto sucked. It hurt and I was ticked that he made it out to be "cake". And he doesn't have a nurse. I am a nurse and want my physician to have a nurse.
It's late and this might not even make much sense.
I posted an earlier update this week that another doc recommends a hysteretomy.
Decisions. Overwhelming stuff.
I'm not being "treated" for IC.
I'm being treated for "urethritis" via antibiotic/steroid combo to compound the urethral suppositories. Not my first choice but my second choice was "urethral injections". Gag. I couldn't wrap my mind around that choice.
I still hurt... everyday. Worse with my cycle. No heavy bleeding but gyne and Reprod Endo (just went to Reprod Endo for endometriosis expertise) both MDs believe I have adenomyosis.
The pain is definitely affecting my life although I am able to function for the most part.
No sex life whatsoever. Way too painful. Intercourse isn't half the pain... the big O causes horrible pain. I told DH we could try a couple weeks ago. I felt badly b/c I don't want my DH to feel "guilty". Then I feel guilty b/c I just cannot do it. He doesn't put pressure on me so why do I still feel badly? Probably b/c it isn't supposed to be this way.
It just SUCKS that it affects so much of life.
So.... "trigonitis". MD did NOT say "trigonitis" in the office. He said "urethritis". My in-office cystoscopy was at the end of March. I've been on these suppositories for nearly 8 weeks.
Not much relief.
I'm 36 and used to playing and being active. I loved being on the go go go. Now I don't wanna. I'm tall and small frame. Sometimes wonder if my body proportions have anything to do with this.
By the time late afternoon/evening come, my pain seems exacerbated simply by the passing of time being awake and up.
I'm looking to get 2nd opinion. I think my Uro/Gyn MD is a smart fella BUT I have serious trust issues. He said my cysto would be "fun" and "really won't be bad". I had the lidocaine jelly before cath insertion. My cysto sucked. It hurt and I was ticked that he made it out to be "cake". And he doesn't have a nurse. I am a nurse and want my physician to have a nurse.
It's late and this might not even make much sense.
I posted an earlier update this week that another doc recommends a hysteretomy.
Decisions. Overwhelming stuff.