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Mothergoose
04-30-2008, 12:40 PM
My Dr. were sure I have IC, my old uroligist said I had IC after cycto and hydro but didn't treat it.

I saw a new Uroligist last week. He asked me a million questions, some I am not sure how they relate to urology but what the heck. When he was done he said he is sure I have IC, and PFD. He hsa booked me for an ultra sound and a cysto in a couple of weeks. I am a little concerned because he wants to do cysto with no anastetic, I guess I will take what meds I have before I go for it. I have had cysto with no anastetic before (that were painful) but not since IC diagnoses. He beleive previous diagnoses but whats to make sure nothing else is going on too.

He already said he wasn't to put me elimeron, I am not to sure about this I get major headaches, and have just had a three year headach end. But I will go with an open mind, I will probably try it, it may not give me a headache who knows.

I have a question do other people with IC have white stuff floating in their urine when they have a flare. I do the worse the flare the more white stuff.
I have never really thought to much about it because it is there frequently.
He wants me to bring in a urine sample with the white floaties to be tested to see what it actually is, he says it is most likely the bladder linning, but he wants to be sure. Not a problem for me it happens frequently. I have told to other Dr. about this and they said nothing. One time I was straining my urine for kidney stones and I had so much white stuff, the urine could not flow through the strainer.

So two questions do others have this, or could it be from something else?
The Dr. said that this ment advanced IC, have other who have the white been told this?

And just as an after thought, I got to my appointment and they wanted a urine sample, I ussally collect these in the morning at home, my flow is so week I can't seem to catch it in the little jars. So at home I clean all of me who knows which direction the urine is going to go, I then collect urine in a sterilze container that fits on the toilet, and then tranfer it to the jar. So I was a little concerned but they gave me a jar with a removeable white thing attached to it, so it collects the urine which ever way it goes. I thought it was pretty ingenious.

PS As an after thought for those of you who think the white stuff maybe seaman, I don't collect on mornings we have been busy.

Thanks for your anwsers in advance.

Mothergoose

SharonA
04-30-2008, 01:49 PM
There have been people who talk about seeing the white flakes in their urine. It is usually regarded as bladder lining. Interesting that the doctor want to see this stuff. Let us know what he says about it.

leelee88
04-30-2008, 02:35 PM
I had the white specks awhile back but since I have gotten my IC pretty much under control and have been watching my diet I have not seen any. I am like Sharon this will be interesting to see what the Dr says about what the specks are..

Mothergoose
04-30-2008, 03:08 PM
I think I will be able take to the clinic tomorrow am,I have had quite a bit lately. I was doing really well, but the last week my kidney has been really bothering me, and now IC symptoms are coming. My lab has to send it to the city so I don't know how long it will take to get results, he says they analize it to see what it actually is. I will let you know what it is. I have a new Dr. almost didn't tell him, he was quite surprized when I told him this, he told me it is an indicator that my IC is quite a bit worse than he thought. He already says he dosen't know how I cope as it is, or how I can follow the diet when I have a number of other food restrictions.

I told him one time I sweet alot, I have told other Dr. this and they haven\t seemed to have any idea why, when I told this guy he said of course you do it is a symptom of IC. Just knowing what something is or causes something helps.

He is a real dear he gives me a hug everytime I see him, (I should add he is a family friend). I take info into him that I read on this site he is very receptive to get it. We discuss various drug others are on etc. He asked me if I just expected him to prescribe what drugs I found on the site, I said no that I wanted to discuss them with him to see what he thinks, he knows more about drugs than me and I respect his decission. I know just because someone is taking something it may not be right for me.

Mothergoose