Feeling Hopeless and Depressed today

[Shamay]

I just had my 1st visit with my new naturalpath who specializes in Baldder issues.

I am about to do a food elimination diet for two weeks and then start adding things back. This seems like a great idea but a huge undertaking as I won't be able to eat any wheat products and that's mostly what I eat.

She also said that I have PFD and that I will need to go to physical therapy....

I'm now also on Cysta-Q, I hope it helps and wonder how long before I will notice a difference if at all.

I am tired of hurting, tired of peeing all of the time, tired of hurting, tired of watching what I eat and drink, tired of not being able to eat the things I love, tired of taking so much medication, tired of not getting any sleep and having to go to work anyways and just plain tired. I want a vacation from my body.

This disorder is greatly affecting my relationship with my boyfriend as well....

And I'm afraid I'm going to loose my job at some point from all of the doctor's appointments that are coming up.

Having a hard time keeping my chin up today. I want to crawl back into bed and not come out.

Is this really MY life, really?

:(

bleh.

[leelee88]

Shamay,

DEEP BREATH!!! Ok now please listen, THERE IS LIFE WITH IC!!!
So many of us have been RIGHT where you are at!! And I agree it feels hopeless!! But it really can get better. I have severe IC and I am having really good days with my bladder. I just had to get on the right combo of meds and watch my diet. No it is not any fun having to stop eating the things I use to enjoy. But look at Diebetics and people with High Cholesterol and people who are Lactose Intorence. I am sure they do not like folowing a diet either, but sometimes in life we just have to accept these changes. And in time you will be able to do this also. It is really not that bad once you learn what your body will react to and what is ok.
But please know YOU ARE NOT ALONE! And you will get through this! If you need anything just let us know.

((((hugs))))))

[ABliske]

I feel bad for you. I can relate to what you said about the job and boyfriend. It's so hard to get anybody to understand.
I was just in the natural foods section of a grocery store yesterday and I saw wheat free cereal or something like that - a product you wouldn't think would be wheat free. I hope you can find enough to eat. I almost gave up eating wheat for a while when I was diagnosed with endometriosis. Something I read said that diet could help.
At that point, I didn't know I had IC. I don't think endo was my problem. The Dr. didn't find much of it.
Anyway, almost everything has wheat. So, I wish you the best and hopefully that isn't one of your triggers.

[kjd]

Oh honi I am so sorry you feel like this. the scary thing is I feel exactly the same! In fact when I started to read your post I had to check and stop it wasnt something I had written as it describes how I feel right this minute.
Fed up to dealth of constantly needing a pee, having to life with this endless pain and feeling tierd from no sleep!!!
I woke up this morning to go to work and just though how long can I go on like this dragging myself up everymorning feeling so crap!!!!
I just wish I could pass this on to someone else just for one hour to give me a break right?!
I wish I could cheer you up but with me feeling the same I guess I am not quite the right person to put a positive feedback on here.

Well I do know that however crap we feel today, we wont feel like this forever. It does pass and you might start to pick up abit and feel better about life. I guess there are worst things we could have right and people are worse off than us. I would just try to take each day as it comes and take a deep breath.
I guess I have been flaring quite alot recently and have this constant urge which seems to always be there and I cant get away from it...sound familar to anyone? I just want to be able to empty my bladder and have some relief "sigh".

i hope you are feeling better tomorrow and I am sure your boyfriend loves and understands what you are goinig through xx

[Agape]

I really don't think anyone understands how we feel unless they also have IC. Most people think it is a matter to joke about (going so often to the bathroom, especially when you are older...like me). It's not!!! Also, knowing that there are other people dealing with bad health issues doesn't really help when you are in pain and suffering yourself. I know, because I have had many "pity parties". Thankfully with much prayer and the right meds etc. I am doing much better and I know you will too. It's hard at first, but hang in there and just know things will get better with time!!!

[Shamay]

Thank you everyone for responding.

Most days I think I do a pretty fair job of haning in there but today is just one of those days where I just feel overwhelmed, beat down and tired, so my spirit is kinda broken.

With my new uro and natural path I'm am sure things will improve. It just may take a while and I'm just feeling like I want results today or better yet yesterday...

I just need to be patient and relax and which neither are my strong suit heh.

Thanks again, it really helps to be able to connect with people who understand.

[SharonA]

Sending you lots of (((hugs))). It can get better. It really can. :)

[lisabar36]

I am so sorry your feeling that way. I remember them feelings all to well. I still have days when I am down but I can say it does get better. It can be so frustrating and take time. I have such a strict diet cause I am so diet sensitive, I also have a severe case, but I got used to it and the more I started to feel better with meds and diet, the more happy I was because I felt better and to me even though it can be so hard, feeling better was worth it. Back in September I was feeling alot like you, I was up all night peeing, I was peeing all day, I was in pain and once I found the right combo of meds, I started to feel better. I am still battling with meds now that I have fibro but I am having some side effects, but I am still alot better then I was and I remember all the tears I shed and as I started to feel better, I started to see the bright side of things. What I do now, when I have a good day, I run with it, so on my bad days I can relax. I love to watch movies so I found things I can do while I am relaxing and when I feel good then I am out and about with my kids. I hope you start to feel better soon. Hang in there.

[TexasHoney]

:grouphug: Shamay, I hope things get better for you real soon. Good luck in finding a treatment plan. You are not alone in feeling frustrated with this disease. We all know and understand what you're going through.

Hang In There:pray::angel:
TexasHoney

[mlzippy7]

Shamay I hope things get better for you soon! I can all be so overwhelming. Just try to take one day at a time. I had to give up wheat and I know at first it seemed so hard to do but once you figure out the things you can have it will get better.
Take care and I hope things get better for you soon!

[omarito]

hey ..i think everyone of us felt like you one day, plz try to never get defeated, i am feeling , i am talking to myself as well as you, when u feel u need to rest, do so, don't overwhelme yourself try to keep going, i am sure God wants what is best for us & he'll help us cope with our painas he is most merciful...hope u'll get well soon

[ICNDonna]

Hang in there. Once you find out which foods and drinks are a problem for you, you should feel better. It can take a little time, but it's definitely well worth the effort.

Warm hugs,
Donna

[Shamay]

Thank you so much.

This has been so overwhelming. It has made my head spin and spin.

I understand the elimiation diet is a good thing and so is the P/T, meds and all, but it just seems like SO much to handle/juggle.

I'm sure once I get things down it will be a lot different, but darn this is sooo much to deal with.....

Thanks again.