Introducing the new moderator

[Judith]

Hi, I just wanted to introduce myself. My name is Judith, I am 46 years old, married with two grown sons. I also work part time. I currently have a continent urostomy which I have had for 10 years, prior to that I had an ileal conduit for 6 years and I also had an augmentation cystoplasty. I am also a certified ostomy visitor, Just wanted to let you all know that I have experience with the main bladder surgeries that are being done and would be happy to answer any questions. Judith

[Teri]

Even tho this topic doesn't apply to me, I'd like to say welcome biggrin.gif There is a GREAT need for someone like you on the site and I am sooooooooo glad that we got you <img src="graemlins/hi.gif" border="0" alt="[hi]" />

[Lauren]

Dear Judith -
WELCOME, Judith!! It will be great to have you on the Board.....sending HUGS, Lauren smile.gif <img src="graemlins/hi.gif" border="0" alt="[hi]" /> smile.gif

[Judith]

Thanks Teri and Lauren,
I have coming here and posting every so often for the past couple of years. I hope through some of my experiences I will be able to help others. Judith <img src="graemlins/bunny.gif" border="0" alt="[bunny]" />

[Kara]

JUDITH!!!!!!!

Thank You!!!


I will be on here quite often workig with you to help support cystectomy patients. What you are doing is wonderful and I am so glad to have you here as moderator!


Kara

[Kelli]

HI Judith,

Just wanted to take a minute to welcome you as our newest moderator.

[Judith]

Thank you Kara and Kelli! Judith

[Yvonne]

<img src="graemlins/hi.gif" border="0" alt="[hi]" /> <img src="graemlins/hi.gif" border="0" alt="[hi]" /> Judith,

I would like to welcome you as the moderator to this great site. Appreciate all of your efforts. I will try to help as much as I can also in between the horrendous flares I am having.

I have a question for you, I also had an augmentation and now have an ileo conduit. Was just wondering why you ended up with a continent urostomy and are you happy with it more so than the ileo conduit?? I wish I would have opted for a neobladder but unfortunately my urethra was so diseased with IC so that wasn't an option. Thanks for all of your help, God Bless you. <img src="graemlins/kissing.gif" border="0" alt="[kissing]" /> <img src="graemlins/angel.gif" border="0" alt="[angel]" />

[Judith]

Yvonne, to answer your question the reason I converted was because my conduit was not functioning properly. The urine was sitting in there and pooling and then growing bacteria. For some reason there was minimal peristalsis sso I needed a revision and my surgeon told me I had the option of getting a continent urostomy. I jumped at the chance! I love it!!!!!!! I find it easier to care for as well as having fewer skin problems. It is also cheaper to maintain. Judith

[Yvonne]

Hi Judith,

Thanks for answering my question, appreciate your answer. I am sure a continent urostomy would be a lot better.
I have another question for you, can't remember if I asked you or not, are you still having pain??

God Bless <img src="graemlins/kissing.gif" border="0" alt="[kissing]" />

[Judith]

Yvonne, I never really had much IC pain. Towards the end I did have urethral pain, but once they removed my urethra the pain was gone. I do have chronic abdominal pain from adhesions, which I keep controlled by taking Darvocet or Percocet (which I break in half). My doctor does not want me to take any NSAIDS because I have history of ulcers, so that is why I take those prescription pain killers, cause lets face it,Tylenol just doesn't cut it, LOL! Judith smile.gif