suzziy
04-13-2008, 09:22 AM
Over a year ago I had a terrible bladder infection, after many courses of antibiotics, cystcopy (ouch) xrays, MRI's, CATscans of the bladder, I finally told my urologist I think I have IC -- his smug remark was, well that's good, but there is no cure. He had put me on Enablex which I told him was making things worse, and he then increased the dose. I was in severe pain. I truly wished at the time that I would die. At the time I was also having gastro problems and had to prep and I decided to stop taking the Enablex at the time and I felt better so I stopped taking Enablex completely-- and since my symptoms have not ever been as severe. I quit going to that urologist and went to a gyn for a laparoscopy hoping that removing adhesions would help (to some degree yes). I think I've had IC since my early 30's as I had similar problems before my hysterectomy (51 now) and I went into remission maybe until that past bladder infection??
I am scared to death my symptoms are going to progressively get worse. I really am not that thrilled about doing a bladder distention (my current urologist suggested) or instillations, etc., as those seem so painful and invasive. I am currently taking Prelief but I'm not sure it helps with the acidity because I get flares even if I really watch what I eat, but I think Prelief tends to help for some reason with swelling as my stream of urine seems to be somewhat normal and for the most part has helped with urgency.
Does any one know if this is a progressive disease? I've done some research on the internet and there is a product called Waterfall - D - Manose - made in the UK that is supposed to "cure" IC by ridding the bladder of bacteria attached to the bladder that doesn't show up in a routine urine culture -- the product is supposed to flush out the bacteria instead of trying to actually kill the bacteria. Anyone heard of this?
I am scared to death my symptoms are going to progressively get worse. I really am not that thrilled about doing a bladder distention (my current urologist suggested) or instillations, etc., as those seem so painful and invasive. I am currently taking Prelief but I'm not sure it helps with the acidity because I get flares even if I really watch what I eat, but I think Prelief tends to help for some reason with swelling as my stream of urine seems to be somewhat normal and for the most part has helped with urgency.
Does any one know if this is a progressive disease? I've done some research on the internet and there is a product called Waterfall - D - Manose - made in the UK that is supposed to "cure" IC by ridding the bladder of bacteria attached to the bladder that doesn't show up in a routine urine culture -- the product is supposed to flush out the bacteria instead of trying to actually kill the bacteria. Anyone heard of this?