question on my hydro

[charmedx3]

I had my Hydro back in june 07. My uro said I did not have the "normal IC Bladder".
I Just saw my Gp today. He mentioned he hadn't heard from my uro since last year. I asked for a copy:::
This is what I would like help on:::
---------------------------------------------------------------------------------------------------------
Urodynamics study in 9-06 showed frequency& urgency with small bladder capacity of 200ml.
Bladder Hydrodistention 6-07="no evidence of any ulcers within the bladder and very mild hypervascularity in the bladder. Random bladder biopsies did not show any carcinoma, only evidence of some chronic inflammation."

---------------------------------------------------------------------------------------------------------No mention of what was burned off of my bladder in 2 spots.

I like the "some chronic inflammation"

To me this just confirms even more for me. So I guess I am asking for your input. Thanks!

[snowgirl]

I had my Hydro back in june 07. My uro said I did not have the "normal IC Bladder".
I Just saw my Gp today. He mentioned he hadn't heard from my uro since last year. I asked for a copy:::
This is what I would like help on:::
---------------------------------------------------------------------------------------------------------
Urodynamics study in 9-06 showed frequency& urgency with small bladder capacity of 200ml.
Bladder Hydrodistention 6-07="no evidence of any ulcers within the bladder and very mild hypervascularity in the bladder. Random bladder biopsies did not show any carcinoma, only evidence of some chronic inflammation."

---------------------------------------------------------------------------------------------------------No mention of what was burned off of my bladder in 2 spots.

I like the "some chronic inflammation"

To me this just confirms even more for me. So I guess I am asking for your input. Thanks!
Cant tell you an MD this is his role his education. The uro needs to explain it to you. I am an RN and I would not even begin to explain this to you. An MD needs to do this. Sorry Vicy

[ICNDonna]

Sounds like IC is a definite possibility. What does your doctor say?

Donna

[charmedx3]

She said that my bladder was not the normal IC bladder but that didn't mean that it wasn't. to me the chronic inflammation sealed the deal for me. but just wanted feedback.

[snowgirl]

I had my Hydro back in june 07. My uro said I did not have the "normal IC Bladder".
I Just saw my Gp today. He mentioned he hadn't heard from my uro since last year. I asked for a copy:::
This is what I would like help on:::
---------------------------------------------------------------------------------------------------------
Urodynamics study in 9-06 showed frequency& urgency with small bladder capacity of 200ml.
Bladder Hydrodistention 6-07="no evidence of any ulcers within the bladder and very mild hypervascularity in the bladder. Random bladder biopsies did not show any carcinoma, only evidence of some chronic inflammation."

---------------------------------------------------------------------------------------------------------No mention of what was burned off of my bladder in 2 spots.

I like the "some chronic inflammation"

To me this just confirms even more for me. So I guess I am asking for your input. Thanks!
If I had to give you an educated response very mild hypervascularity in the bldder and only evidence of some chronic inflammatin...... I would say mild case of IC . Or did this uro try to tell your GP you don't have IC ? I can see where he would say no ic or a very mild case based on that report you just posted. I would say the small bladder capacity of 200cc would be your ticket here to the diagnosis of IC that is a very small capacity. Where those urodynamics done while you were asleep in the OR or awake doing them? VIcky

[pingpong]

I wonder what your uro means by a "normal IC bladder". There are so many degrees of IC, so what's "normal"? I bet you couldn't find 2 people on these boards with identical bladders or IC symptoms! But "chronic inflammation" points to IC, if you ask me.

[marcasite_queen]

They may be referring to a "normal IC bladder" as one with Hunner's ulcers that are typically seen on Cysto. I am a nurse as well and as i understand it, that is what typically drives the diagnosis along with hematuria (blood in the urine with no infection present), bladder capacity diminished, frequent urination, pelvic floor pain, etc. You can have inflammation in the form of cystitis or minimal infection without having Interstitial Cystitis. Cystitis in the bladder is very very common. Hope this helps.

[Briza]

Charmed:hi:
Hunner's ulcers were found and removed during my hydro, my bladder photos showed an inflamed bladder and those glom (sp?) thingies, and inflammation was found in the biopsies which the path report said was "indicative of IC." I was diagnosed with "mild interstitial cystitis," but let me tell you at the time my pain and other symptoms were by no means "mild." I was in some serious chronic pain and in the RR up to 40 times a day for a good year before that hydro and for some months afterwards as I was going thru the trial and error with meds and diet. My symptoms started 2003 and the hydro was a year later in 2004.
Charmed...I'm not familiar with the severity of your symptoms and what your symptoms are but I can definitely say that what is found and described from a hydro and biopsies does not, at least in my case, correspond directly with the severity of your symptoms. If I were to diagnosis myself based on the symptoms alone that I was having at that time, I would say that I had mod-severe IC.
Luckily things have improved greatly with time, treatment, diet, rest and I am going on a 2 month complete remission, no meds.
I wish you the best :) and hope that you are getting at least adequate treatment for your IC, or whatever your doctor wants to call it!:hmm: :shake:

[charmedx3]

Thank You All! I knew if I bounced stuff off you it would help me understand it. Maybe the "normal IC bladder" means it has huuners ulcers. I know that I did have 2 things she did burn off--not ulcers possibly glomerulations.
My urodynamics was able to show my bladder holds only 200ml. for my hydro my bladder was stretched to 500ml. I was of course awake for my urodynamics but asleep for my hydro.

I have only had 2 UTI's -- 1988 & 1999 both during my pregnancies with my boys. I always have trace amounts of blood in my urine.

Briza-- It feels like more then mild to me also!!

[Briza]

Thank You All! I knew if I bounced stuff off you it would help me understand it. Maybe the "normal IC bladder" means it has huuners ulcers. I know that I did have 2 things she did burn off--not ulcers possibly glomerulations.
My urodynamics was able to show my bladder holds only 200ml. for my hydro my bladder was stretched to 500ml. I was of course awake for my urodynamics but asleep for my hydro.

I have only had 2 UTI's -- 1988 & 1999 both during my pregnancies with my boys. I always have trace amounts of blood in my urine.

Briza-- It feels like more then mild to me also!!

Charmed,
Actually only a small percentage, I think I've read 10%?, of ICers have Hunners ulcers, and while that may make for more pain for some of those who have them, it is definitely does not make for a "normal" IC bladder, since most don't have the ulcers. I would ask what it was that was burned off and a copy of your path and surgical reports and a full detailed explanation of what is written on those reports. If nothing else than for your full understanding of them.

I have also only ever had 2 UTIs, and those were YEARS before I got IC. I've only had blood in urine once, during my first year, b/f dx, but no infection.

I haven't had the urodynamics test, but I must have one big bladder, b/c during my hydro I was distended to 1275 ml! But I still have suffered seriously from frequency,urgency, and pain. Personally I think my uro went overboard on the distention, since all the years I've been reading this board I've never seen that anyone was distended that much. I had complications after my hydro, a weeks hospital stay and a very long recovery...I've often thought that the EXCESSIVE distention played a part in my complications but will never know for sure. But even that shows that large bladder capacity doesn't negate an IC diagnosis.

So really, who knows what is a normal IC bladder. Obviously our bladders are not normal in some way or another, otherwise we wouldn't be here. Just what is normal IC bladder for one person is not normal IC bladder for another. As is repeated so often here, everyone of us is different in our symptoms, capacity, etc, even if the diagnosis is the same....IC.

Keep us posted on how things go. If you respond to any of the IC protocol or other treatments, that's what is most important and the goal...to find the right combo that lets you live as normal and comfortable a life as possible.

Best wishes,
Bri