Peggi
04-11-2008, 02:23 AM
Thank you to Lori, IcyAngel, and the many others that have shared their experiences with cyclosporine. I think I have read just about every post in this Support Forum, as well as everyone else; sympathizing, learning and sharing all of our experiences. Although I have not exhausted 'all' the treatments for IC, I have tried my share; with the exception of neuromodulation (which I feel would not help me, as I suffer mostly from the pain (along with urgency and frequency). They put me on 50mcg Fentanyl patch for the past month and it's barely touching the pain; after Oxycontin, Morphine, Vicodine, Soma, Valium, etc. were not working. I have had 2 hydro's; for which the second increased my symptoms by 60%. I have had instills; which were horrible...and of course, have tried Elmiron, Vistaril, Elavil, Detrol LA, etc. I also live by the IC diet and have tried many of the "natural" therapies (with no luck). So...I started reading all the posts (and researching the web) on CyA. I printed all the documentation Lori (and Jill) had posted ("thanks so much") and met with my doctor yesterday. He has agreed to administer the drug; although, he wanted to take my file and the documentation home with him (as well as do some research on his own) to familiarize himself with the use of CyA for I.C. So I am to start next week. I am very nervous but staying positive and, as always, have put my "faith" in the Lord's Hands.
If anyone has any advice and/or helpful words, I would be forever grateful.
I will keep you posted as to my experience with CyA; hopefully, it will be positive!
If anyone has any advice and/or helpful words, I would be forever grateful.
I will keep you posted as to my experience with CyA; hopefully, it will be positive!