Beverly's Bladder Removal Surgery Updates [Archive] - ICN Support Forum - Interstitial Cystitis, Overactive Bladder, Pelvic Floor Dysfunction

Michelle Marie

04-12-2003, 11:31 PM

Well Mom had her bladder removed on April 10. We had her at the hospital by 5:45am and they came and got her about 6:15. We did not see the doctor until 5:00pm. The update was great he said that he had no problems at all and everything went very well.... We got to see her around 6:20pm and she was already awake and talking and eating ice chips.... The did not have a room for her in ICU so she spent the night in recovery... The next morning she got moved to a regular surgical ward. The doctors said that she is recovering extraordinarily well... Her stoma is very small and collecting urine... For the first time in years my mom has no urgency.. she could not believe it when she woke up and realized she did not have to go to the bathroom. You would not believe how well she looks, it has been a very long time since I have seen her look so good. Yesterday (Saturday) she got up and took a walk in the hallway, she did very well and enjoys sitting up on the side of the bed and in the chair...She would give just about anything for a ice cold sip of coke. She is so thirsty, but she cannot eat or drink yet due to the NG tube going to her stomach. We are all hoping that they will take it out today or Monday. Well I will keep you all updated when I can. I have been spending most of my waking hours at the hospital so I will update again soon.... Thank you all for your prayers and thoughts I will be sure that I let Mom know....

Michelle

ICNDonna

04-13-2003, 03:40 AM

Thank you for letting us know. I've been thinking of your Mom and hoping everything went well. Give her a big hug for us.

Warm thoughts to both of you,
Donna

auntiedeb

04-13-2003, 08:31 AM

Thankyou so much. I have been praying for her and thinking about her. what a wonderful daughter you are. Mom sounds so good. I am glad that she is feeling better. Please give her a hug from us. Hang in there.There is hope. Dont' forget to take care of you.

Judith

04-13-2003, 11:04 AM

I am thrilled that she is doing so well. She will feel even better once that NG tube is out! I hate having those things, but they do the job in keeping the stomach empty. Hopefully her bowels will wake up soon so they can take it out. Send her my best. Judith

Michelle Marie

04-18-2003, 12:58 AM

Hello all.... I am so sorry that I have not posted anything in a while.... But no news is good news. Mom is supposed to come home today, she is on solid foods and holding everything down. She has all but one of her drainage tubes out and her ileal conduit is draining perfectly. She is doing wonderful. I did not realize how strong she was. She never even complained once about anything. I cannot wait to have her home, it seems so empty around this big house without her. And I know that she is anxious to come home also. Her incision is about 6-8 inches in length and healing beautifully. Anyway just wanted to give you a quick update... I will let you know when she comes home. She asks me all the time about you guys... Take care and thanks for all your prayers again...

Michelle

auntiedeb

04-18-2003, 01:31 AM

That is great news that your Mom will be coming home soon. :) Prayers headed her way. We all miss her. Hang in there. There is hope. :)

Michelle Marie

04-18-2003, 10:22 AM

Momma is home and doing wonderful.... Having the usual surgical pain but other than that she is doing great.... I am sure she will be back on the message boards and chat rooms very soon... She is one strong lady...

Michelle :D

Judith

04-18-2003, 11:12 AM

Glad to hear she is home. With time the inscision pain will get better as you know. How is she doing with changing her appliance? If she is not happy with what they gave her most ostomy companies will send free samples to try out. A wonderful web all about ostomies is www.ostomates.org (http://www.ostomates.org) She will find lots of answers to any questions she may have and the people who frequent it are great! I have even met some of them in person. Judith bunny

Dixiefireball

04-18-2003, 11:14 AM

I'm so thankful your mom is doing great! You are one special daughter. Give her a hug wishing her a quick recovery. :) grouphug angel

tigger_gal

04-19-2003, 02:31 AM

I am so glad Bev is doing so well... Thanks for letting us know how she is, you are such a wonderful daughter to keep us all informed...
grouphug brat

deborah b.

04-22-2003, 01:42 AM

I AM SO HAPPY THAT YOUR MOM IS DOING SO GOOD AND HAVE BEEN THINKING ABOUT HER. I HAVE BEEN TAKING WITH HER IN THE CHAT ROOM. TELL HER I SAID HI AND GO BY RED IN THE CHAT ROOM. GIVE HER ALOT OF GENTLE HUGS FOR ME. DEBORAH

julesb44

04-22-2003, 02:30 PM

I'm thrilled that your mom's surgery went so well! Things will be downhill from here! My bladder was removed in Dec. I am feeling wonderful. I'm free of pain and able to eat what I want and do what I want. Tell your mom that all the prayers really help. She is lucky to have you supporting her. Thanks for the updates. I will keep her in my prayers.
Take care, Julie angel

Michelle Marie

04-25-2003, 01:00 AM

Asking for prayers for my mom she is in critical condition in UMASS hospital.... Do not have time to write about it now... but will later... Just please pray for her...Has a GI bleed and a serious infection...

Michelle

poetgirl

04-25-2003, 01:37 AM

Michelle,

Praying for your mom to recover quickly. Sending all good thoughts and wishes to you and your family.

grouphug

SharonA

04-25-2003, 03:02 AM

Michelle...

Prayers said for your mom, your family and you...Sharon kissing

deborah b.

04-25-2003, 07:22 AM

MICHELLE I WILL BE PRAYING FOR YOUR MOM THAT SHE HAS A SPEEDING RECOVERY!!!! DEBORAH kissing

Judith

04-25-2003, 01:58 PM

Michelle, your mom is in my thoughts. UMASS is a good hospital,I hope they can get things under control quickly. Judith

auntiedeb

04-26-2003, 02:30 AM

{{{{{{{{Micheele]****************************praying for your mom. UsMass is a good hospital. they will do everything and try their best. Praying for you. Hang in there. There is hope. We all love your Mom, she will come around. Praying for you too and your family.

Michelle Marie

04-26-2003, 11:45 AM

Mom is out of ICU and she is doing great.... Thank you for all your prayers and thoughts... She was in serious condition thought, when they cut her small intestine she had some feces in it and it spread into her pelvic cavity they had to go into her back and drain it out and insert a catheter to drain it... She also had a perforated stomach during all this and her abdomen blew up to look like she was 9 months pregnant.. they went in and fixed it... so basically she had three surgeries. But the good news is that her ileal loop is working well... her stoma is functioning well and everything is going good for her now... We are just keeping our fingers crossed... Well going to go to bed and try to get some sleep.... Thanks again for everything....

Michelle

Judith

04-26-2003, 01:55 PM

Wow, what a relief that she is going to be okay. She really has had a time of it. Hopefully now this will be the end of all her troubles. Judith

auntiedeb

04-27-2003, 12:53 AM

Thankyou God for answerin gour prayers. I am so glad that your Mom is ok to be ok. You know what i mean. Hang n there and there is hope. tell Mom we are praying for her please. Yougetsome sleep and you take care of you. Gentle hugs to both of you.

julesb44

04-27-2003, 07:56 AM

Hi Michelle,
I'm glad your mom is doing so much better now. I had my bladder out in Dec. I had a few problems too and ended up with 2 extra drains. Now it is almost 5 months and I am doing great! No more pain or frequency or urgency and my ic belly is finally going away. Your mom will be amazed at how fast she will recover now. It's just those first few weeks that are tough. She is lucky to have you around until she gets her strength back. Best wishes!!
Take care, Julie

Kelli

04-27-2003, 02:51 PM

Hi Michelle,
Glad to hear your mother is doing ok now. I will keep her in my prayers for a speedy recovery. I truly hope that this brings her pain free days and that she can get back to being her normal self again.

grouphug kissing

Kelli angel

Teri

04-27-2003, 05:21 PM

When things happen like this, I know that it's God working in our lives and He's sure been spending some over time with your mom.

Our prayers will definately be continued and I'm sure the Big Guy's gona keep doing His part....We had a saying in AA, "God didn't get me this far to drop me on my a$$" a perfect saying for your mom right now.

sending bunches of kissing

deborah b.

04-28-2003, 03:24 AM

I AM SO GLAD THAT YOUR MOTHER IS DOING SO MUCH BETTER!! YOU AND YOUR MOM WILL STILL BE IN MY PRAYERS AND HOPE SHE KEEPS IMPROVING AND GET HOME WILL SOON. DEBORAH kissing

songbird7

04-30-2003, 03:07 PM

I haven't seen this until tonight. Your mom has my prayers for gentle healing for sure.
hugs,
Songbird grouphug

Michelle Marie

05-08-2003, 01:15 AM

Well Mom is still in the hospital but she is doing much better... THey still have not given her anything to eat or drink for 28 days. Her Pancreas is elevated so they are watching that very closely, but her stoma is working great and her kidneys are functioning better than ever... The dr. say that she could be there for another 10 days to 5 weeks.... Keep the prayers coming and thanks for all your support....

Michelle wink

deborah b.

05-08-2003, 02:18 AM

I AM SO HAPPY THAT YOUR MOM IS DOING BETTER. I HAVE BEEN THINKING ABOUT HER AND HOW SHE WAS DOING. I WILL KEEP IN MY PRAYERS FOR YOUR MOTHER AND YOU AND HOPE SHE GETS HOME SOON. DEBORAH kissing

tigger_gal

05-08-2003, 03:17 AM

Michelle,
thanks for all your wonderful thoughtfullness of letting us know how Bev is :) kissing
I am so glad that she is doing well, prayers to you and your family, and hope mom gets to come home soon.
Brat

auntiedeb

05-08-2003, 07:36 AM

Michille, I feel for MOM nothing to eat, the longest I have gone is 3 days. do they have her on clear liquids I hope. I am praying for you and Mom and hope she gets to come home soon. I live in Medway, MA, I see Mom is from MA, what part of MA? I was wondering if I could send her a card to the hospital if she would like that? Please ask her and if she says no, that will be ok. Hang in there. There is hope. Hugs to both of you.

Melanie R

05-08-2003, 08:13 AM

It is so great to hear that your mom is recovering so well!!! I hope she is going to have such an amazing new bladder experience. She deserves the best!!!!!! :) grouphug

julesb44

05-08-2003, 12:35 PM

Michelle,
I am so sorry your mom is having such problems. I was in the hospital for 14 days and I thought that was a long time! Is this all because of her pancreas? What are they doing for her? I hope she doesn't still have the ng tube too. That is so miserable! I'm praying for her to get out of there soon. Hospitals are no fun. I hope her pain is under control. Sending happy, healing thoughts to your family!
Take care, Julie angel

Michelle Marie

05-08-2003, 01:52 PM

Mom is at UMass hospital is Worcester... University Campus and she is in room 303 Full name is Beverly Bayer and she would love cards... Thank you so much for thinking of that......

Michelle

auntiedeb

05-09-2003, 07:59 AM

Thankyou so much Michelle for the address and I will be sending her a card in a few days. Tell her I said hello please, Give her a hug for me. Thanks so much and hang in there. There is hope. What an awesome daughter that you are. :_)

Judith

05-10-2003, 12:57 PM

Michelle, please tell your mom I am so sorry that she is going through so many problems, but it sounds at least that the urostomy is functioning well. I do hope that she somehow rounds the corner and can get home quicker that they predict. Judith

Kara

05-20-2003, 11:10 PM

Michelle,

You are in my prayers. I have had my new bladder for about a year now and I absolutley love not having to feel the urgency and frequency and pain every day of my life! I am doing well exept for some urinary tract infections. I am still keeping you and your mom in my prayers. If you have any questions regarding her surgery and recovery please feel free to email me.

Love and Hugs! grouphug

kenzycodi

05-27-2003, 11:11 AM

I hope your mom is doing better. she is in my thoughts and prayers. Tell her I'm new and can't wait to meet her. I hear she's a remarkable woman.

Kenzy

Michelle Marie

05-30-2003, 07:12 AM

Hello everyone... I am so sorry that I have not written in a while. Mom came home May 21st. She is still having complications but she is definately recovering... Just recovering slower than we would like. She is still not allowed to eat on account of some of her complications. They want her body to heal naturally without anything aggravating it. She is on total parental nutrition at the house. So her body is getting everything it needs, but it will be wonderful when she is able to eat. She is such an amazing person, I would not be able to deal with all that she has dealt with. She is 100% my hero.... I cannot wait until she is her normal self... But the good news is that she has no more frequency or urgency and no more back pain like she was having before her cystectomy... Her ileostomy is working wonderfully.... thank you all for your wonderful thoughts and prayers... I am sure that she will be back on the computer soon..............Thanks again Michelle grouphug

Teri

05-30-2003, 07:19 AM

Your amazing mother has an amazing daughter.

tons of love and prayer for you both kissing

auntiedeb

05-30-2003, 07:20 AM

Thankyou for the update on your Mom. That is good news that she is home. I am praying for her. Please tell her I hope she feels better every day. Hang in there. There is hope.

Judith

05-30-2003, 01:31 PM

So glad your mom home and doing better. I have been on TPN many times and it is not fun, but at least we have it as an option. I do want to clarify something for you though. Even though they used ileum to make your mom's ileal conduit, it is called a urostomy. An ileostomy is for stool. If either of you have any ostomy related questions I would be happy to answer them. Judith bunny

Kelli

05-31-2003, 08:16 AM

Michelle,
Thanks for the update on your mom. She is truly an angel for having dealt with so much and now this. I can truly see why she is such an inspiration to you. I dont know if I could go through all she has been through these last 6 weeks. But she is strong and will overcome. Remember, God doesn't give us anything we can't handle, it just seems like the load is a little heavier at times. I will continue to keep your mom in my prayers that she continues to heal and will be able to eat on her own again.
Hugs and lots of Love,

Kelli grouphug

Michelle Marie

06-11-2003, 02:33 AM

Hello everyone... Well Mom is really being tested here... She is back in the hospital with so many problems... She cannot seem to stop vomiting and no one can figure it out. She is still not able to eat or drink anything. She is losing her steam, I am not sure how much she can take. She has been so strong but when you feel that there is no light at the end of the tunnel how can you possibly keep a positive attitude.... Well anyway just wanted to give you a quick update... Keep those prayers and happy thoughts coming... We need them...

Michelle frown

deborah b.

06-11-2003, 02:56 AM

HI

I WILL KEEP YOU AND YOUR MOM IN MY PRAYERS THAT SHE STARTS FEELING BETTER. DEBORAH kissing

tigger_gal

06-11-2003, 06:02 AM

Hi Michelle,
you and your mom are in my thoughts and prayers.
grouphug kissing hi angel
Brat

peealot

06-11-2003, 09:55 AM

Michelle,

I am so sorry that your mom is suffering the way she is. You and your mother are in my prayers. Please tell her that there are alot of us praying for her. grouphug angel

Kristi

auntiedeb

06-11-2003, 10:04 AM

grouphug grouphug grouphug Michille praying for you and your family and your Mom. I am so sorry to hear that she is back in the hospital. Let us know how she is doing and tell her please that we are praying for her. Angels among us. Hang in there. There's hope. angel angel angel angel

Judith

06-11-2003, 12:00 PM

Oh Boy, she is having a terribly tough time of it! Is it possible that she has a bowel obstruction? It can be very common for that to happen after this type of surgery. I hav had it happen twice and one of the symptoms is non stop vomiting.I really hope they can get to the bottom of her troubles. Have you asked for another opinion? Keep us informed and let mom know we are all pulling for her. Judith

Michelle Marie

06-19-2003, 05:02 AM

Mom is having surgery today... They seem to think that maybe the part of the small intestine that they made the urostomy out of has somehow died and they may need to remove it... She is so sick.. When will all this end someone tell me....I will let you all know more when I know something.... Need prayers again....

Michelle

tigger_gal

06-19-2003, 07:12 AM

Michielle,
You and your mom, and entire family are in my thoughts and prayers, I hope that she recovers quickly and the surgery is a great sucess. you are a wonderful daughter.
may all the angel 's and god be with your mom and you during surgery and always.
Take care of you
Brat

Judith

06-19-2003, 01:18 PM

Michelle, I am holding your mom in my thoughts. Hopefully with the surgery they can find the problem and fix it once and for all so your mom can FINALLY heal and get better. Judith

Teri

06-19-2003, 03:32 PM

{{{{Michelle******** My heart aches for what you and your poor mother are going thru. She is very very lucky to have such a great daughter for support.

Please tell her that ALL of us here are saying special prayers for her and her entire family~
grouphug grouphug

Sending her own special angel

auntiedeb

06-19-2003, 08:48 PM

{{{{{{{{{{Michlle********************{{{{{{{{{BEV********************** You both are in my prayers and thoughts. Hopefully they will find out what is wrong with Mom. In God's time. angels and God watching over you. Gentle hugs. Let us know how you both are doing.

julesb44

06-23-2003, 03:12 PM

I am so sorry to hear your mom is still having problems. Hopefully this new surgery will alleviate her pain. Are they redoing the urostomy? I will keep praying for her. She is lucky to have you with her for so long. She needs your love and support. I know it is hard sitting at the hospital day after day also. I hope you realize how much you mean to her! Take care of yourselves.
Julie grouphug grouphug

Dixiefireball

06-24-2003, 10:02 AM

Your mom and your family is in my prayers she has been threw so much and so have you. keep staying strong for her she needs you. what a wonderful daughter you are and thank you so much for keeping us updated. kissing grouphug

Yvonne47

06-28-2003, 02:24 PM

Hello Michelle:

Sending prayers your way, I hope your mom is improving. My heart goes out to you and your family.

Hugs to you and Bev, grouphug kissing angel

Michelle Marie

07-21-2003, 06:27 AM

Hi everyone.. Sorry that I have been so lax with posting about Mom. Believe it or not she is still in the hospital 115 days today. This has been absolutely ridiculous. She has fought so hard to get better but I am not so sure just exactly what the doctors have done to her. Shw now has a ileostomy. She has not been able to eat and keep anything done in over 3 months. We really need all your prayers and thoughts. I just want my mom back... I want her home and healthy and happy, she deserves only this...

Michelle

dyno

07-21-2003, 06:54 AM

Bless your hearts. I am definatly praying. I do hope things turn around fast.

Jolene grouphug grouphug

Teri

07-21-2003, 06:57 AM

My heart felt prayers for your Mom. You have been a rock for her and she is truly blessed to have you in her life.....

Now, may God take this over and let the healing begin~

auntiedeb

07-21-2003, 07:59 AM

Thankyou for updating us. Prayers for you and your Mom. and also gentle hugs to you all too. angels are watching over all of you. grouphug grouphug grouphug angel angel

gwyn

07-21-2003, 08:27 AM

i will be praying for you and your mum.. grouphug

Judith

07-28-2003, 08:07 AM

MichelleMarie,
So does your mom now have two ostomies? Are things starting to get better? Do they have any answers as to why all this happened? I really hope that soon your mom will be able to come home once and for good! A wonderful website for both of you is www.ostomates.org (http://www.ostomates.org) It is for people with all types of ostomies- very supportive. There you will find answers to many questions you may have. Good luck, Judith bunny

Michelle Marie

08-07-2003, 06:37 AM

Well I think that Mom is finally on the mend. She has moved from UMass hospital to Hubbard Rehab Hospital. She is doing so much better. She still has the vomiting but I just think that it is from all of the medicine she was on for the past four months. I think that her body is just trying to re-adjust to being on its own again without all the drugs telling it what to do. I am so grateful for all of you, this has been a horribly long ordeal since April 9th and I cannot wait until things are back to a somewhat normal state. All of the prayers, email and flowers have really helped. This has taken such a toll on not only my mom but my dad and the rest of the family. I think that once she is home everyone will probably sleep for about 3 weeks just to make up for all the sleep lost. Mom is doing her rehab. real well. They walk her to the gym and she does her exercises and then she walks back. This does make her quite tired though. But she is not far from coming home for good. I cannot wait for that day to come.....

Thanks again,
Michelle Bayer

ICNDonna

08-07-2003, 06:40 AM

Please give her a gentle hug for me.

Thank you so much for keeping us informed.

kissing
Donna

Teri

08-07-2003, 07:01 AM

Michelle~you are truly an angel and a blessing in your mother's life.

sending kissing and huge hugs to you and your Mom~

Kathi

08-07-2003, 07:01 AM

Tell Mom her cheering section will be waiting for her. Hugs, Kathi grouphug

Iris

08-07-2003, 08:12 AM

Hi Michelle, I am so glad to hear that your Mum is on the mend, I know you will be so happy when she is finally home, I must say she has one great daughter in you, take care and give your mum a hug from me, all the best to you and your family, Iris hi grouphug

auntiedeb

08-07-2003, 09:17 AM

Michelle that is great news to hear about your Mom. I am so glad that she is on the mend and that she will be able to come home soon. What an angel you are. Prayers still being lifted up. Please give her gentle hug from me to her and one to you too. Keep us posted. We are here for you and Mom.

lotsofgirls

08-07-2003, 01:37 PM

Michelle,
I just read thru all four pages of your mother's story, and I wanted to tell you how moving it is to see the courage of your mother. I am so inspired by her determination and I hope she is home soon and able to recover with her family.

Your love for Beverly shines thru all of this, and I am sure has kept her going,

we can hardly wait to have her back, prayers for Bev and her family,
Cath

Judith

08-08-2003, 12:45 PM

Michelle, I am thrilled that things are FINALLY looking positive. I was really worried about her. I do hope that from here on in only good things happen. Judith bunny

icnmgrjill

08-09-2003, 05:56 PM

Michelle,
I'm glad that she received our flowers. I really hope that it did make a difference and let her know that her friends from the ICN continue to send her lots of love and encouragement. I swear, you and she could write a book about your experiences. It has been so hard, but you've all risen to the occasion. Love is a wonderful force for healing. I think that she's very luck to have you for her daughter.

Big hugs and keep us posted!!

Jill :)

dyno

08-10-2003, 04:16 AM

Hugs grouphug to all of you. I am glad she is doing better.

Jolene :)

Michelle Marie

08-11-2003, 08:18 AM

Mom is home.... I cannot believe it and she is feeling so much better. No more nausea or vomiting. I am headed back up there on Wedneday so I will let you all know how she is... Thanks again to every single one of you...

Michelle blink

auntiedeb

08-11-2003, 08:32 AM

Praise the Lord that your Mom is home. I have been praying for that. I am so glad that she is home and is feeling pretty good. Please keep us posted on how she is doing. Tell her we miss her and give her some gentle hugs from me to her. Here is a hug for you too Michelle. grouphug grouphug grouphug grouphug grouphug angel angel

Teri

08-11-2003, 10:10 AM

:D :D :D :D :D

Iris

08-11-2003, 01:13 PM

Great news Michelle, I am so glad your mum is home and doing so much better, guardian angels were watching over her, hugs to your Mum and yourself for being such a loving, caring daughter. GREAT NEWS. Take care both of you, Iris kissing angel grouphug

julesb44

08-14-2003, 01:39 PM

That's awesome news Michelle! Your family has been through a lot. Sometimes you wonder, but God is always there, watching over you. Hopefully your family will be getting back to normal soon now. Best wishes!
Take care, Julie :D

Michelle Marie

09-17-2003, 06:08 AM

Just a quick update. I am so sorry that it has been so long since I have updated you. I got back about 1 week ago from being with Mom for 3 1/2 weeks. The trip went well she got stronger and stronger by the day. Then on August 21 she had a small bowel obstruction ( for the 5th time ) and it landed her a 4 day stay at the hospital. She is doing much better now, but unfortunatley it does continue to slow down or obstruct again at least once a week. But the difference is that she stays home and fights the vomitting and nausea at the house. She has come such a long way though. She is a strong and amazing person. I have no idea how one person can go through every thing she has been through and not become depressed or even want to continue. She is sure my hero. I admire her for this. Thanks again for all your prayers and thoughts I know that myself and my entire family especially my mom has benefited from you all... thanks and take care..

Michelle Bayer angel

Iris

09-17-2003, 07:30 AM

Hi, your mum is surely one strong lady, and I do hope that she progresses well, it is amazing sometimes isn't it, how our mums are really such strong women, I know I lost mine but I remember how she never let anything get her down even when she was ill. I must say your mum is very lucky to have such a caring and loving daughter, take care Michelle and lots of prayers for your mum, all the best to you both, hugs Iris grouphug grouphug

auntiedeb

09-17-2003, 08:01 AM

Hi Michelle, thankyou for the update. So sorry to hear that Mom is struggling again and fighting with the bowel obstruction. I will keep praying for her. What awonderful daughter you are. Sending many hugs to you and your mom. grouphug grouphug grouphug grouphug

darlene

09-17-2003, 10:15 AM

Michelle, I am so sorry your mother has gone through such a horrible experience. There isn't much I can say that others haven't already said, but when I read about her numerous bowel obstructions, I wonder if the doctors have considered that she may have Crohn's disease. Crohn's causes bowel obstructions from the chronic inflammation. It's just like having IC in the gastrointestinal tract. I have both diseases, so I know it does happen. I don't want to distress you or your mother, but I would feel terrible , if that turned out to be the reason, and I said nothing. It might be a good time to ask a gastroenterologist for an opinion. I sincerely hope your mother gets better every day.

Teri

09-17-2003, 02:30 PM

{{{{{Michelle**********It's amazing how much your mother's body has been able to tolerate. As a mother of an adult child I know how much it hurts when daughters are just too busy help out. My daughter is an RN but she says she gets paid to wipe other people clean, not me:(
YOU my child are responsible for the strength your mother has found to fight this horrible stuff that's been shoved on your plate. You could have run and hid weeks ago but you didn't. You stayed and that is something you will always have and no one will be able to take it from you or your mother.
Bottom line is NOT what we leave this world with but what we do while we are here and you are a true angel May God bless you many many times over~

lotsofgirls

09-18-2003, 03:59 AM

Has anyone heard how Beverly is doing?

Cath

beverly

10-31-2003, 03:50 AM

Hi everyone, I've been home since August and now just getting to the computer. I thank you all for your prayers during my long ordeal. After 6 months I just started driving again. I doing much better, eating anything and everything, still have a long way to go. I do hate the bag for my bowels and can't wait for the reversal of that. They say 6 months so i think December will be the time, but the thought of another operation sort of has me scared. thank you also for the flowers they were greatly appreciated. I just read all the post that where placed during my ordeal and have seen all the prayers you all have sent my way thank you. I still get nutrietion at night i still have a pic-line in my arm. Be glad when things get somewhat back to normal.
well must go rest now, thank you again.

Bev

auntiedeb

10-31-2003, 06:07 AM

grouphug grouphug grouphug Bev it is so good to hear from you. I am glad that you are doing better. Hang in there.

SelenaandAj'smommy

10-31-2003, 12:32 PM

hi Hello Bev! I am so glad that you are better! Our prayers were certainly with you throug your ordeal. It s nice to see you back. grouphug christine

Dixiefireball

11-02-2003, 02:44 PM

we are so glad you are at home and doing better take it easy tho. if you need us you know we are here for you we will do anything in our power to help you stay stong but i believe you have already proven you are a very stong lady. So glad to have you back! grouphug

mayray518

11-02-2003, 11:29 PM

I am so glad your mom is finally pain free. I can remember laying in bed all those years undiagnosed and just wanting to sleep and not wake up until things got better. I pray that this is the solution and that your mom's life can go back to normal. Hope everything continues to go well.

Judith

11-03-2003, 02:38 PM

:) Bev, it is so great to see you post. I hope now things continue to go well for you. If you have an questions, I am just an email away! Judith

Kara

11-24-2003, 06:12 AM

I am praying for pain free times ahead Bev and Michelle!!!

angel angel

MARY K.

11-25-2003, 06:08 AM

:confused:
HI EVERYONE,
I HAVE CIS FOR YEARS NOW. I HAVE TRIED EVERY MEDICATION UNDER THE SUN. I HAVE HAD MANY DMSO TREATMENTS, WITH NO SUCCESS. TOMORROW I SEE MY UROLOGIST TO ASK IF I CAN HAVE THE BLADDER REMOVAL SURGERY. AFTER READING ABOUT THE OTHER LADY'S PAINFULL SURGERY , I'M NOT SO SURE NOW WHAT TO DO??? ALWAYS IN TERRIBLE PAIN AND VERY TIRED ALL THE TIME. REALLY DEPRESSED. FEEL LIKE GIVING UP. I KNOW I'M NOT THE ONLY IN PAIN OUT THERE. I'M NOT LOOKING FOR SYMPATHY. DIDN'T REALIZE THERE ARE SO MANY PEOPLE WITH THIS PROBLEM OUT THERE.

MARY K.