Hello Everyone...

[icacure]

Where do I start?? Thank you Tracey for helping me with getting on here and everyone else who made it possible for me to join this group. Reading the messages on Dr. Phil gave me some hope that I'm not alone nor am I crazy. IC has become my life and I absolutely hate it. I'm so tired of not feeling "normal" and not being able to function on a normal basis. As you all seen on TV, my fiance is not the most supportive person with my IC and it has become a huge strain on our relationship. Although Dr. Phil did not help me with my IC on this show, I have not given up. I have been on the phone with the producers and with the Sr. Producer who will be airing a new show on Dr. Phil featuring the "Dr.'s" I am praying that I get another chance to make this right and do a whole show featuring IC...how great would that be?!?
Thank you all for giving me such an opportunity to meet such nice people who actually understand what i'm going through.

Best,
Robin

[traceann]

YAY!!! Glad to see you!!! And no thanks are necessary! ;) I do look forward to seeing you around the boards!!!

Hugs,
Tracey :)

[SharonA]

Welcome Robin...I am so glad to meet you.

It would be wonderful if there is a whole program devoted to IC. It is something that everyone here has wanted for a long time. National attention to this dreadful disease can only be good for all of us who suffer with it.

(((Hugs)))...

[ICNDonna]

:welcome: to the IC Network.

Donna

[leelee88]

:welcome:Robin.. I am Leron that you chatted with over there on the dr phil boards.. I am SO glad to see you here!! I know how alone I felt when I was first Dx. This is an awesome support group.. I have learned so much from these boards.
I hope that one day that IC will be recognized all over and we will start getting the acknowledgement we all deserve. Thank you for having the courage to go on TV and talk about what So many are affraid to.. You are a true inspiration..

[snowgirl]

:welcome:Robin

There are so many nice people on this board who will help you out with questions, information and just listen if you are having a bad day.
We are all in different stages of IC on this board so we all can help someone just like us or what we have been through.

Thanks for any help in getting IC media coverage for the future. I am currently working with my local newspaper to do their weekly health section on IC. More MD's in my town need to know about it. Vicky

[VickiB]

Hi Robin and :welcome: to the ICN!

IC is tough for others to comprehend, -Its not like we have a dangling limb or blood gushing, so I think it can be easy for them to dismiss what we go through. Especially hard when it's one's own family! But I don't have to tell you that.

Anyway, glad to have you join us!

Vicki

[dyno]

I wanted to add my welcome!:hi:

[Katrina]

:welcome: It is great to see you here! You are most definatly not alone! I Pray you get that shot!!! I am a patient that had symtoms 10 years before diagnosis ....a correct diagnosis years ago would surely have made a big difference so awareness not only could get better treatment available for us but also prevent some of us from getting to this point.


I don't know if it is possible to express to you how thankful we all are that you are taking this step with Dr.Phil! :woohoo: happy dance time! I don't know how much you will accomplish but I thank you from the bottom of my heart for trying!!! :) I agree with Ronda you are inspiring. I hope we can do as much for you as you are doig for us!
:grouphug: Thanks again!

[Bessie]

:welcome:

[mlzippy7]

Hi Robin :welcome:!! Glad you are here!

[justice4j]

Robin,

You are so courageous! Thank you for being able to voice such an intimate health problem.

[Annie2]

Hi Robin! So glad you made it to this site and have joined our "family". We're all thrilled to have you here. You are our hero for speaking out and going on national television to help, not only yourself, but all of us who suffer this vile disease. Thank you!

So what can we do to help you in your quest to get Dr. Phil to air a full show on IC? If there is anything you can think of, rest assured we will do our best to help....letters, emails, phone calls, camp on Dr. Phil's doorstep (with porta pottys, of course...lol!)? As you have observed, we are a tightly-knit group and are here, not only for ourselves, but also to help one another.

I am so sorry you have felt so alone for so long. Well, no more do you need to feel that way. We're here for you and look forward to getting to know you!

:grouphug: And again, THANK YOU!!!

[VSBY]

:angel::angel::angel:

Hi, Welcome, you are with a great group of supporters. Keep your chin up and your fingers typing. Ask away..when I was diagnosed two months ago..I felt so alone..and then I met people on here and other sites as well.

I found support, encouragement and hope. I took Elmiron for 2 months, followed the IC diet..it is very easy!!! totally..found the books at the library..and I have to say I have been symptom free already for 2.5 weeks.

It can happen....Follow the diet...it really helps...

susie:smile tee:hi::hi::hi::hi::hi: