recalled heparin in my dmso treatment

[jckheck]

Hi am new to this site not to ic I was diagnosed 10 yrs ago. I am at the end of my 6 weeks of dmso treatments. They have not been going well I have had alot of nausea , burning and pain Ihave been complaining to my nurse since Feb 19th. I skipped one treatment cause I knew I couldnt handle the cathater. I went the next week still very painful then l got the email about the recall and I called my dr. they said they didnt know. A few days later I got an email saying they had used the baxter heparin but they wont tell me how many times. I now have a very bad bladder infection and have missed 3 days of work. I talked with my nurse yesterday and she said she doesnt think I have improved because I skipped one treatment they want to start all over with the treatments but Im not sure I should Im confused about what I should do I have an appt next wed so any info would be greatly appreciate it thanks

[NancyB]

Hi -

Just wondered what percentage of DMSO are they using in your instill?

NancyB:)

[harleybluz]

Find another doctor. It was completely irresponsible for them to use recalled med. They should have disposed of it. I wouldn't go back to them if it were me.

[iris2]

I had three instills filled a couple of months ago and used one. After that I read about the Heparin recall and called the pharmacy. They asked if I had used the prescription and of course I had used one of them. They said it was recalled and to through it away. They told me to call my doctor if I had certain symptoms. I cannot remember what symptoms. They never apologized or anything. In my case I really cannot blame the doctor. The pharmacist is the one ultimately responsible for filling recalled medications, I think . Not sure legally.

I was trying to se if heparin was available to use for instills yet from another company. Does anyone know?


tiggy