is this true?

[Dreamlove15]

So i'm sitting here surfing the internet because I can't sleep and I came across an article on IC..and it's freaking me out. It says,
"Causes and Risk Factors of Interstitial Cystitis
The condition occurs most often in women of middle age and may resemble the early stages of cancer of the bladder. The cause of the disease is unknown - possibly a disorder of the immune system, or some kind of allergic reaction."

This is scaring me because when I had my hydro they did a biopsy, but it was all anonymous. So I never got the results. And the Uro I see seems to be not so informed about this disease...just keeps handing me meds or sayin "oh we'll try a interstim if you can get medicaid" which seesm crazy because all IC is MOSTLY PAIN...interstims ARE NOT for pain. im thinkin what if I have cancer and not ic and dont even know it...right now I'm waiting for blood work results because of my positive ANA...and i feel like crap...elmiron wasnt helping...ive been prescribed OAB meds for who knows what reason because all they do is cause retention...the treatment options are dwindling for me...and i just had to go and read article that is scaring me. Thank god i have an appt tomorrow...so i can be like, "what if..." and he'll prolly laugh at me...but it seems im at a loss right now...nothings helping...sorry this post has no focus...more of just me rambling...ive been doing a lot of that lately..lack of sleep?

[ICNDonna]

The way I read that sentence is that the pain of IC can resemble the pain of cancer of the bladder.

If you've had a hydrodistention and biopsies, you shouldn't need to worry. By all means, talk with your doctor about any concerns you have.

Warm hugs,
Donna

[muxerr012]

ALSO, search the home page of this website. It will give you a list of IC doctors in your area. I chose a URO/GYN and he is the BEST doc I have ever been to. He wond doc of the year in 2003 and 2004.

The most important thing to do is to find a URO or a URO/GYN who knows ALOT about IC. There are so many things an experienced URO can do to help you!!! I wish you lucK! :hi:

[SharonA]

I tell most newbies here not to let other posts scare them. You are not so much a newbie any longer, but I'm going to tell you the same thing about articles on the web. Don't let them scare you. I think Donna is correct with her assessment of that article. I have heard that before. Talk with your doctor and see what he says. (((Hugs)))

[traceann]

One more to chime in with the same sentiment on the pain "resembling" that of bladder cancer. And too if you had a biopsy and it was "bad" I am sure you're doc would let you know! Otherwise, what's the point in having one really ;) I also agree with Sharon, it's so easy to read everything and scare yourself silly. I know I did in the beginning when I was first diagnosed, I think that's a trap that's VERY easy to fall into!

Also too, like Donna said - by all means discuss what's on your mind with your doctor, after all that's what they are supposed to be there for, sometimes I know I forget I am PAYING them, ;)

[lisabar36]

I agree with everyone. Some things you research online does not mean they are from a reliable source. I also read it the way Donna did. I would talk to your doctor if you are scared. I learned to write all my questions down and when I go for visit I won't forget anything and I can have them answered. I always keep my list in my handbag and when I think of something I add it to the list of questions. It helps me to remember what I am concerned about or want to discuss. :) Lisa