PDA

View Full Version : Instills and Elmiron....not working??


Leah78
02-22-2008, 09:00 AM
Hi,

I have been on Elmiron and Vistaril for about a month and a half and just started with the home instills(marcaine and heparin) 2 weeks ago. I was told to do daily as needed. The first few I had done (dr office and 1st at home) seemed to help quite a bit. Except for the one after the PST(that didn't get better for days). Now they seem to not be helping at all. I almost seem to be worse after.

I am just wondering if I will ever feel any better, how long will it take to feel some relief, and is it common to not get relief from the instills if they initially helped??

I am so confused about all this. I have tried/continue to try the diet and can't really tell what flares me and what doesn't because I am constantly in pain(varies).

I am just so tired of constant pain in my pelvic area, back, upper thighs, the burning, stabbing pain up inside, not being able to sit at work without burning etc, and this bloated up belly.:cussing:

If you have gotten through this pity party bless you and I am open to any answers or opinions or words of encouragement that it does get better.

JenAZ07
02-22-2008, 09:21 AM
Sorry I don't have any advice for you...I just wanted to say that I am sorry you aren't feeling any better. I started Elmiron at the beginning of the month, took it for two weeks, but stopped b/c my hair was falling out by the handfuls. I am seeing a pelvic pain specialist next week and hoping to start some instills then. So....I guess I am at the same stage you are.

Hope you get some answers. :angel: