upset and frustrated

[windchaser]

well my uro's nurse called me today and said that he called in my 30 pain pills again and said that that would be it so to use them sparinly because he doesnt want me to get hooked.. Also she then proseeds to tell me that he has canceled my last two DMSOs and that he said that the elmiron and the DMSOs is all that can be done for me so i am sitting here crying dont know what to do, so frustrated my family isnt helping my bf just told me that he thinks im exagerating and that it isnt that bad and that everyone has some kind of pain they just deal with everyday:cussing: I cant deal with this every day I have been dealing with this since i was 16 just past couple years pain is getting worse...:rant: I pray and beg god everyday to take this pain away:pray:, I just want to be normal, I dont know how much more of this I can take I feel like I am going to have a break down and no one around me would care:rant: I just need help!!

[ICNDonna]

I think it sounds like time to get a second opinion. There are many treatment options for IC.

Donna

[leelee88]

Im with Donna on this about getting another opinion. Have you looked in the IC Patient Handbook at out list of specialist?

Heres the link..

http://www.ic-network.com/handbook/

[karen10]

I'm so sorry you're going through this, and not getting the support you need from your doctor!! Soooo many things you read on pain by pain experts say a person should not have to live in pain. He obviously has no idea what IC pain is like!

I completely agree with Donna, I think it's time to get another opinion and find a doctor who understands and is supportive!

[windchaser]

yes ive looked for the specialists but sadly I have no insurance atm in the process of trying to get SSI or diability this doctor takes payment plans.. which is why I dont know what to do

[SharonA]

This is an article published on the ICN. Take a look at it and see if it might be worth printing and taking to your doctor.

http://www.ic-network.com/handbook/brookoff.pdf

You can find other very good articles here:

http://www.ic-network.com/guestlectures/

It really upsets me when a urologist does not want to continue to try to find the right med/treatment. Do you have an obgyn on your insurance? Sometimes they can be more help that a urologist. Maybe even your PCP could be more help to you.

[ICNDonna]

There are many doctors who will accept payment plans. Just be sure to ask before your first appointment.

Donna

[lisabar36]

I agree with everyone. I would get a second opintion and I would call around and see who takes payment plans. Don't give up, there are some good docs out there! I know you are probably very frustrated and feel like your pain isn't being aknowledged. I am so sorry your going through this. I hope you can find a doc that has a payment plan and will help you. :pray:

[sandramac]

Youv'e been given great advise,I just wanted to add a warm Hug.
Sandra:cat::cat::cat:

[windchaser]

ty every one I am going to try to get in to see John Birzzolara? anyone seen him? He is in the same office as my uro and on the IC network doctors list only one in arkansas... Once again thank you everyone, my bf finnally apologize last night for his comments and told me that he has been stressed I told him and you think im not!!! I begged him to take the pain for 1 day and thats what got to him I think... so maybe he will be better I will pray... :)

[blondie19]

I feel so bad for you because I know how you feel right now. I am 10 weeks pregnant and can't really take much for the pain, so I want to just dig myself into a hole. Before I got pregnant my doctors always gave me grief about pain meds, but they were the ones who kept prescribing them in the first place. I never asked for them. It's so frustrating when they say they don't want you to get addicted. When I take pain meds, I feel normal and can actually get through my day. I don't get high from them. Until my OB did my laparoscopy (I have endometriosis) and my Uro did a cysto at the same time, my OB did not understand. Once he saw the condition of my bladder, he finally "got it". I think that they really just don't know what to do with us sometimes and it's frustrating for them.

Is there a charity hospital system in your area? We have one here (Louisiana) that charges based on income. People who don't make enough money are on Free Care. There are clinics on the hospital grounds with Uros, OBs, etc. You may also want to try your local civic organizations. Sometimes they are able to help with money, even if it's just a little bit. I'll keep you in my prayers.