Any luck with Cystoprotek???

[KAS]

I was diagnosed with IC a few years ago and told by my Dr. that there was nothing that could really be done to help – basically just live with it and stay on the diet. He gave me brochures on Elminron, and told me to search the net for more info. Upon my next flare up I called in to see about getting on Elminron and found out that his office stopped taking my Medical Ins – and he wouldn’t be of any further assistance. So after “living” with this for the last few years (surviving on pain pills on an as need basis) – I want a better solution.

I’m leery of Elminron – but VERY interested in Cystoprotek. Has anyone had any real luck with this?? I’m reading the forums and see some encouraging news – but are Cystoprotek users sticking strictly to the diets (which I find impossible to remain on). Is there any real chance of a normal life, is Cystoprotek really working??

Any info would be GREATLY appreciated!!!
:pray:

[waterflow]

What a stinky doctor he is. Can you find another one? The cystoprotek helped me a lot just from the first pill. I took it for 2 years but had to stop due to I couldn't afford it anymore. The IC diet never helped me except for chocolate and coffee is a big no no. The cystoprotek didn't cure me or stop the pain/frequency but it helped it out. If I could afford it I would still be taking it.

Oh, and welcome to the boards! :welcome:

[KAS]

Hi Mary - Wow thanks for the quick reply!!!

Yeah – my Dr. turned in to a complete jerk – which really does not help me because I’m on Medical and my choices are less than limited. I spoke to my current Dr who looked at me like I was completely crazy when I mentioned I needed help – they test me for a UTI – which they are never UTI’s, always just a flare up. Feel like it’s up to me to find a solution – Medical Dr seem to care less.

So it helps – but not for a long term. I’m glad to hear that I’m not the only one that can’t follow the diet. I have to stay away from my beloved coffee, soda and also cocktails. During flare ups I basically go on a water diet and bland foods.

Have you tried Elminron – or what are you on now – how are you surviving?

[ouch_a_lot]

I have mild IC. I started Cystoprotek a month ago. I havent noticed any difference yet but will keep going for 3-6 months and then re-asses.

Good luck.