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lisabar36
02-08-2008, 03:54 AM
Hi everyone. I had mt gyn surgical consult yesterday. I went to a gyn that was highly recomended and has a great reputation, my dads surgeon told me she is the best. My dads surgeon also is highly recomended so I trusted his opinion. She was so so so sweet and compassionate. She read all my history that I wrote for her and she listened to all my side effects from the Lupron and she said also, it is not advisable for me to have another shot, which is what the company said also. I told her I was extremely worried about my loss of appetite and she said that will come back as the shot wears off. I also told her beside the side effects of the lupron itself, I feel better as far as my bladder and my PFD. So she thinks I for sure have endo, she said it seems to go hand and hand with IC in most cases, she said it is probably inside my uterus, thats what she is thinking. She is doing a total hysterectomy on me because she said bleeding non stop from September until January is just not good for me and the bleeding will start again since I can't tolerate the lupron. She said Lupron is harsh. It has major side effects for most people. She said she will make a bikini line incision as small as possible and also treat endo if she finds it while she is in there. She said I will have a pain pump and she will make sure my pain is well controlled, she is very big on pain control she said. She is putting a rush on my surgery because I am due for my next Lupron shot next week and she said I could start to bleed, but she thinks it will be in my system for a little while longer. I will be in the hosptial 3 days she said assuming all goes well and my pain is controlled. She is hoping to get me scheduled in 2 weeks, but the scheduler has to call me and let me know, 2 to 3 weeks at most she said. She is the first doctor that ever did a pap on me and I had no pain after. She said she wanted to do the pap just to make sure nothing abnormal was going on. So she said that she wanted me to know this could flare my bladder and PFD, she said she needed to be totally honest with me, it could go either way. I may be fine, I may have alot more pain after which will go away in time. She said there are some hormones that are totally safe for me to take even with my moms breast cancer, she said when its very low doses, it is very safe and I have to be on it for bone loss and also to help me with my menapause symptoms. She said that is SO important. So I have to say I am scared, and at the same time I am relieved because my bleeding will stop and no more lupron. I thanked her as I was leaving and she gave me a big hug and said she will take good care of me. She also gave me her email and said she checks it every night and her phone number. My mom was with me and my mom liked her alot also. So, I think my fear is after surgery, whatever hormone she gives me, could make me flare, I know hormones can make peopple flare. So anyone who had a hysto and is on hormone replacement and its working well, I would greatly appreciate ideas that I could discuss with my doctor, I would always discuss it with her. She may even have one that she knows would be ok, I didn't really talk much about that with her. Thank you all and I will let you know the date of my surgery when I find out. :) Lisa

SandyRN
02-08-2008, 04:03 AM
I'm glad you found a great doctor. She sounds wonderful! I think you've won half the battle already. I have not had a hysterectomy (yet) so I'm not any help with the hormones and IC, but did want to wish you luck! I've taken care of a lot of post op hysterectomy women in my days as a GYN nurse and you'll be fine! I really believe getting up to pee that first time is the hardest, and once you get that licked you'll be ok! If you need a shoulder or have any questions about the immediate post op give me a yell. :)

Hugs, Sandy

SharonA
02-08-2008, 04:17 AM
Lisa...I am hoping that this surgery will be the best thing that you can do for yourself. (((Hugs)))

Bessie
02-08-2008, 04:18 AM
I am so glad you found such a wonderful doctor that is going to do your surgery. I know it can make it so much easier to have someone you feel comfortable with to do your surgery. I have had a hysterectomy and I use a hormone patch. It takes a little time to get the right dosage but it does help with the hot flashes. Please let us know how it goes and please know that I will be praying for you :pray:

lisabar36
02-08-2008, 04:20 AM
Thank you all so much. You are all such a blessing and wonderful. :)

tango
02-08-2008, 04:32 AM
Sounds like a wonderful doc!

I hope the procedure goes well, that you have a speedy recovery and feel better afterwards!!!

lisabar36
02-08-2008, 04:37 AM
Thank you. I just want to add something, the surgery is a total abdominal hysterectomy with bilateral salpingo-oopherectomy. I was unaware that its considered more then a total when they take your ovaries and tubes also. If they are going to do surgery on me, I wanted them to take it all. I did my research and my gyn recomended this one also, but did tell me about the others. I have to say I will be glad when its over. I think I am scared. I know as it gets closer I will be more scared but I am strong. So I think I will be ok. :)

leelee88
02-08-2008, 04:55 AM
Lisa sending you big ((((hugs))) and :pray: for you.. I know I will be heading in this same route soon and I have also done research and will have the same surgery as what you have mentioned. I have severe Endo and Cervical Dysplasia. I go at the end of this month for my Biopsy and then will find out what my next steps will be..But it sounds like you are in great hands..Please keep us updated..

Bessie
02-08-2008, 05:02 AM
Just wanted to send you a hug and some support :grouphug:

lisabar36
02-08-2008, 05:03 AM
Thanks Bessie. Thanks Ronda, I will keep you in my prayers also. :pray: I will keep you updated how everything goes. She did say she is almost positive I have endo also, she said she will know when she does the surgery but did you know endo causes sex pain? I was researching it and I didn't know that. The Lupron nurse also told me that. I clearly have endo symptoms, but I did not have the laparoscopy done to confirm. :)

Claredale
02-08-2008, 05:10 AM
I don't have endo, so I have no idea what that is like, even though I have watched friends go through it. But I can say that my flares were so much worse when I ovulated. I begged to have a hysterectomy but since I don't have female problems and a perfectly healthy uterus, my insurance won't pay for it. I was so glad that the depo shot took away all my problems relating to my hormones and flares. I no longer have PMS, nor flares at all. Now that I avoid my triggers and have the depo shot, I feel so normal. I still have some pain issues at night, but life seems to be so close to perfect that it seems strange to finally feel so good.

I pray that your surgery will allow you to feel more like yourself again. I am also glad that you are so happy with your doctor. My wonderful gyno retired, and I never thought I would be lucky again. Since I go to a uro/gyno now, I very seldom see the NP that finally understood why I wanted the depo shot so much. She is a wonderful addition to my gyno's office. I have recommended her to many of my friends.

Please keep us posted and I wish the best for you!

T83

mlzippy7
02-08-2008, 04:47 PM
Lisa
I am glad you found a great doctor. I pray everything goes okay with your surgery!
Take care

dg2901
02-08-2008, 07:08 PM
You might want to check out hystersisters.com. Its an interactive website set up very similar to this one where you can interact with others getting ready to undergo, or have already undergone a hysterectomy. Theres even a forum for IC/bladder patients.

Wishing you well...
D

GriffsMommy
02-09-2008, 02:02 AM
Lisa,
You know how happy I am that your appointment went well. I'm just jealous that you get yours in 2-3 weeks and I have to wait until Apil, lol. I guess that means that I will be there to support you through your recovery and then when I get mine you will be recovered and you can support me.
I'm sure everything will go just fine, your dr sounds great that you found. I know you're scared about the surgery cause I surely an as well but in the end it'll be so great not to have that heavy constant bleeding that you have had to deal with. As always you know I'm here for you. Let me know when you get an actual date. :grouphug:

sandberg4
02-09-2008, 02:16 AM
It's strange but when I had my totaly hysterectomy I can honestly say I
don't remember having any pain. The only problem I had was they had tacked up by bladder at the same time and it took a while for it to calm down. That was the only down side. I felt weak for a while so you hae to watch yourself.
Otherwise I thought the surgery was less painful then the knee and foot surgery I have had.
Good luck
Anne

muxerr012
02-09-2008, 02:32 AM
Hi Lisa,

I am replying to your questions and concerns about using HRT hormone therapy. I have faced this battle as well. Here is the best information I can think to give you:

I have not taken Premarin BUT there is a great doctor interview I read on ICN by Dr Elizabeth Vliet who sounds like one of the smartest docs inthe world to me. She said in her interview about IC that while Premarin is the most popular hormone in this country, she believes it is the worst for us. Here's part of her interview:

<DrVliet> Premarin is a problem in my opinion, especially for IC patients, for several reasons. (1) It contains about 63 different dyes and coatings on the tablet, which are using chemicals that can be quite irritating to the bladder lining and the urethra. (2) It gives high derived estrogens than again can be irritating to the bladder lining as they are metabolized. (3) It does not tend to produce adequate levels of the 17-beta estradiol native to human females and the biologically active form of estrogen for women before menopause. And there is another concern. Since the estrogen amount is high with Premarin, I think that's a concern long term with the breast cancer issue. I know this is the most commonly prescribed estrogen in the US, but in 1998, we now have many better, more natural and more physiologic estrogen options for women. IC patients in particular who want to consider estrogen should be aware of these issues...

<DrVliet> There actually are lots of reasons to use either a cream or patch form of all these hormones, always using a prescription with known amount. I don't recommend the OTC ones because the amounts of active hormones are usually put on the label and it can cause problems. In my book, I have a whole chapter outlining the reasons why it may be wise to use a patch form of hormone delivery. See chapter 15... It may be the type of estrogen causing the flares not the estrogen per se.

Lisa, I was given hormone pills to take twice and flipped out on both of them! I threw them away and swore I'd never take them again! When my GYN began to notice bone deterioration, atrophic vaginitis and other symptoms, he URGED me to try one more. That was the Vivelle DOT patch system and he was RIGHT!! I felt better within a few days-remarkably better!!! The only side effect I noticed was breast tenderness but that goes away after a week or two-I promise!. He started me on the lowest dose patch about the size of a square dime .025, then .0375, and then .05 which is where I will stay. It's the medium dose and is enough to protect you from osteoporosis/ bone loss. I took each dose for 3-4 weeks before I moved up to the next one. He gave me a month's free samples for all of them so it saved me $30 a box which contains a month supply. My insurance isn't the best, so I bet yours will be cheaper. You put on a new patch twice a week. Very gentle and mild in my opinion. NO MORE hot flashes and up and down PMS symptoms! I really hope this information helps you decide what kind to take.. Vivelle rocks in my book and I've been on them for 7+ months. Have a great weekend Lisa and again I am so happy for you!!!!!

lisabar36
02-09-2008, 07:09 AM
Thank you so much for the info. :) I always thought patch form was better because you absorb it differently then pill form. I will for sure talk to my doc about it. :)

kuntrygurl78
02-09-2008, 10:02 AM
I just wanted to wish you good luck! Im sure that you will come thru the surgery just fine.:angel:

snowgirl
02-09-2008, 12:52 PM
You might want to check out hystersisters.com. Its an interactive website set up very similar to this one where you can interact with others getting ready to undergo, or have already undergone a hysterectomy. Theres even a forum for IC/bladder patients.

Wishing you well...
D

Good idea brought forward. Lisa this web site hystersisters.com is excellent. I learned so much when my mom had her vag hyst, cystocele and rectocele repair. A very good source of information on this web site for all going through surgery, lupron, etc.

What movied did you end up seeing last night? 27 dresses YES Vicky

gigisgirl
02-09-2008, 02:43 PM
Hey Lisa,
I had a hysterectomy in 2004, they took everything out. I'm on the Climara patch right now but I'm not sure if that is helping or hindering my IC. I have an appointment on the 27th with a pelvic pain specialist to talk about that. I had endo and polycystic ovary disease and a prolapsed uterus. They also did a rectocele and had to reconstruct my vaginal wall. Anyway, you will do great. they really, really control your pain well with those pain pumps. You can press the button like every 7 minutes and it gives you a dose of morphine or whatever med they have in there. Like Sandy said the first time you pee is going to take your breath away. You'll probably have a cath in for the first day or so at least. Mine was done vaginally and they had me up and walking the next day. I wish you the best and if you need anything let me know. I would for sure checkout hystersisters.com I really got alot of good info before my hysterectomy and the weeks after during recovery.

Jill

lisabar36
02-12-2008, 12:27 PM
I just got the call, my surgery is scheduled for next week, Feb 21st. I am as ready as can be. My boyfriend will be taking his vacation and be off for a week when I get out of the hospital, so that will be great because my mom is very pre occupied with everything going on with my dad. So I am very glad I will have my boyfriend home and I know he will take great care of me. :) I am not to nervous yet, I have been so pre occupied with my dad, I really haven't thought about it much and then I got the call today and it reminded me quick. lol But I am ready. I am starting the nicotene patch within a few days so I can cut back and be ready to quit smoking, I more then ever want to quit now. I was telling my doctor with my family history, it seems like the only people in my family that did not get cancer were the ones who did not smoke, isn't that scary. Its time. :)

GriffsMommy
02-12-2008, 02:50 PM
Lisa,
I can't believe how soon your surgery is. Before you know it, it will be the 21st. I'm so happy that Eric can take the time off of work to take care of you for that first week. I know how much you want this done and know that everything will go just fine, it sounds like you have a great dr. Like I said, I'm still jealous that yours is so soon and mine is so far off. I think I'm going to try to see if I can get the third injection and then do my surgery and not do the fourth. This never ending Lupron headache is getting on my last nerve. Let me know if you need anything. :grouphug:

kuntrygurl78
02-12-2008, 05:48 PM
Im so glad your surgery is so soon. The sooner you have it, the sooner you can heal, the sooner you can feel better. I put on my pocket calendar "Lisa's surgery Pray!". That way I dont forget :hi:

Sending hugs and love and prayers your way!:angel:

icnmgrjill
02-12-2008, 09:46 PM
If you haven't found it yet, there's an awesome hysterectomy support website called hystersisters. Definitely worth visiting and participating in. I model a great part of the ICN on their website and have known the founder for years.

http://www.hystersisters.com

Jill :)

muxerr012
02-13-2008, 12:21 AM
Lisa, WOW, a week from Thursday for your long awaited hysto. That's great news. You've got a great plan going with starting the Nicotine patches a few days ahead-excellent idea! I had wonderful success with Nicoderm for 6 weeks and I still think about going back to the patch! And your boyfriend is staying home with you for a week-that's so awesome! Be a good girl and let him wait on you hand and foot :) Taking it very easy for at least 6-8 weeks is the best thing you can do. But I also remember after mine, that walking (slowly) was very good for my recovery too. I tried to walk a little more everyday down my street the day after I got home from the hospital. I know you'll do great Lisa. We're all here for you and wish you a speedy recovery!!

lisabar36
02-13-2008, 03:26 AM
Thank you all. :) :) I know its right around the corner. I was ready in the summer with them awful painful periods, I could barely walk, they were SO painful, then after bleeding for 5 months off and on, but more on then off, I was really ready. I am so glad no more Lupron, I thought that was aimed to make me feel better and in turn it made me feel so much worse. I know it works for some, but not me. I am more worried about once I get home, what I am going to take for pain thats not going to cause me a pounding headache and make me so nauseous. I will discuss that with her. I am sure they will figure out something. :)

lisabar36
02-13-2008, 03:30 AM
Thanks for the website. :)

ICNDonna
02-13-2008, 03:51 AM
I'll be thinking of you and sending encouraging wishes your way.

:grouphug:
Donna

SharonA
02-13-2008, 05:16 AM
:pray: for a very successful surgery and a quick recovery time. Please let us know on the No Smoking Board when you put the patch on and how it makes you feel. (((Hugs)))

Vicki
02-14-2008, 05:49 PM
I too have endo. Funny thing, a friend from my hometown is a gynecologist in Pennsylvania. That would be serendipitous if it was the same person. I had my last surgery two years ago. I found out it is back so I guess I am off to the OR again! I hate endo. It's all over my bladder. Ugh. Best of luck to you.
-Vicki

TRINKLES
02-15-2008, 04:04 PM
good luck,
you will need all the prayers from your family and this network. I had the same bleeding and symptoms as you. I am currently on my laptop pecking away. Just a little sore. I thought my bladder pain was gone forever but it broke through a couple days ago. My fibroids are gone-thank God. Lisa,
you will need help getting in and out of bed. My sisters flew in to assist me.
My husband is a work acholic and is very stressed with my monthly bladder stretchs, gall bladder surgery gone bad and now this hysterectomy. I am bed bound and hate it. I was approve for SSD without the advice of an attorney. My SS worker said her heart goes out to us. I urinate 26 times a day. It is hard for me to heal from the surgery scar when you have to use the restroom soo much. good luck and God Bless us all.


Trinkles in Texas:toilet::bow:

L. Thomas
02-15-2008, 05:43 PM
I had bilateral salpingo-oopherectomy in 2004. I had repair of prolapse of large instestine, small intestine, bladder,rectum and urteus. I also had a bladder sling placed to correct the cystocele. I used a estrogen patch (vivel dot) during recovery from surgery and now I use a vaginal estrogen slow release ring (femring). I have had no adverse effects.

Good luck. I will be thinking of you.

snowgirl
02-15-2008, 06:40 PM
Hope both of you ARE HEALING WELL. I had a ovarian cyst removed when I was so much younger and in top athletic shape. I bounced back and my MD made me go back to work 3 weeks later. I thought that was a little quick to lift patients and pull carts.

My urologist did a detrusor myectomy back in 2001. Now I am older and out of shape and heavier. I told my father if I ever have to have surgery like that again we are renting a hospital bed. It hurts your abds to get in and out of bed and I don't care if you have a six pack. My bladder capacity is so small. I would just get settled in bed then darnit I would have to get up right then and now to pee. UP and down . UP and down. A heating pad will be nice for your lower back pain. Remember Lisa I told you xanax has relaxation properties . I mean not like a 10mg flexeril but my back hurt from being in bed and a xanax at night would help that sacral ilial you know pain.

VIcky

Your boyfriend is going to be helping you good. As I told you you can't drive for awhile or even lift a laundry basket. My sister's boyfriend helped out with my 94 yo Grandma she had tried to close the curtains and went down on her knees. So 8 days of rest and VNA OT/ PT and a walker now. One day I was on the phone with her and RIck had brought her some lunch . I heard her say Rick hurry back. Oh Rick do you think we could get a bell so I could ring for you. I just about died laughing. My sister's apt is downstairs and all she has to do is hit number 1 on her phone. I did like to tease Rick we need a bell.
Tell your boyfriend that you will be getting or are looking for a bell for at your bedside. Won't he just about laugh?

VIcky

GriffsMommy
02-15-2008, 08:53 PM
Lisa,
You just let me know if Eric needs any help taking care of you. I can come and help him around the house or bring food or whatever. After that first week when you're a little bit more healed then I can bring my little monster for you to meet but I wouldn't want him bouncing off your walls when your first home and still in a lot of pain.

muxerr012
02-16-2008, 01:56 AM
Lisa, I just wanted to say that it will be ok and I know you know that, even though you may be a bit scared or anxious. It is super cool that your boyfriend will be there the first week to cook for you and to wait on you. But you will be able to walk on your own I think. In fact they'll tell you to do that but not to lift or do stairs. I know I didn't have anyone here after my surgical hysterectomy, and I made it to the bathroom and the kitchen just fine during that first week. Others may have had more serious things going on at the same time and may have needed extra care. But Lisa, you are in great shape, you're young, and you have every reason to expect a good outcome directly following your surgery so don't worry ok? BIG hug!!

lisabar36
02-16-2008, 04:10 AM
Thanks everyone. :) You are all wonderful. Trinkles, I hope you recover fast. Keep us posted on how your feeling. I am not to anxious, I think after all the pain I endured, I am more ready then anything, just will be glad when its done. Thanks for the continued support and encouragement. :)

lisabar36
02-18-2008, 05:27 AM
Well everyone, tomorrow is my pre op appointment. I am getting nervous, of course, my nerves have been bad with everything going on in my life but as time gets closer, yes I am scared. My gyn emails me and she is going to call me Wednesday night, she assured me my pain will be well controlled and she is just the most kind caring person, she has the most compassionate personality so I feel safe. :) I even asked her about the vivelle dot patch and she said she loves the vivelle dot patch and she thinks that will be the best for me with IC. So she is very willing to listen to me and my concerns. Last night I had the hot flashes and sweats so bad, they were the worst I ever had them and my gyn said its still from the lupron even though the estrogen is coming back, she said that happens all the time even once you stop the shot, she said it takes months to get things back to normal. So I won't be on much for a while, I have appointments with my dad this week and for myself, I also have to finish up with my online classes before my surgery for the week, my teachers have excused me for as much time as I need which is so great, but I am going to try and keep up and I was able to get a little ahead in my classes which helps alot. I am getting A's so far. :woohoo: Christine (griffsmommy) will be able to fill everyone in how I am doing, I am going to have her and my boyfriend keep in touch and also be in touch with her while I am in the hospital. I will miss you all and I will be on again as soon as I can. Once I get home I will post how I am doing and how my quit smoking is going as well. You are are so wonderful. :angel:

kuntrygurl78
02-18-2008, 05:33 AM
Everything will go well. Just take your time and recover at your own pace. Im sure that we will ALL be thinking of you the next few weeks.

SharonA
02-18-2008, 07:23 AM
Prayers are being said for a smooth surgery and a very quick recovery. :pray::pray::pray:

GriffsMommy
02-18-2008, 11:56 AM
Yup,
I already asked Lisa if Eric would feel more comfortable calling me when she's out of surgery and he knows she's okay or if he would like me to call him. We've never spoken before and you know how men can be, lol. I actually have my surgery consult for my hysterectomy on the same day that Lisa is having her surgery but I won't be able to relax until I hear the word from Eric that Lisa is okay.
As soon as I get that info from Eric I will let everybody know since she was so nice to do that for me while Shane was having his surgery. I'll also give further updates once she's up to getting phone calls.
I'm sure your surgery will go just fine Lisa. I'm so happy for you that you will be done with all of the horrible symptoms you have been having. You know I am here for you and whatever you need, and I mean whatever, you let me know. We're not that far away that I can't hop in the car and bring you lunch or help around the house once Eric goes back to work. I'll talk to you soon! :grouphug:

lisabar36
02-19-2008, 06:39 AM
Your so SWEET!!!!! Thank you. :) I went for my pre op, my nerves, I was sitting there tapping my feet, tapping my hands, lol shaking my foot. A little nervous, YEAH. I told them they need to use a SMALL cath on me. Oh and I was suprised to know that IC was a diagnosis in there computer, its a large hospital but you always hear whats IC? The nurse even knew, so I was glad! The nurse I had today is also a patient of my docs and she said she is GREAT. More reassurance is always good. They said I will see the anesthesiologist first thing Thursday morning when I get there. I said good cause I need Anti nausea meds for the anesthesia and the pain meds, and I already told the doc so she knows to. So thank you!!!!!!! I have so much to do to prepare. I am going to miss my little Miley. Its going to be hard when I get home because she is used to jumping on me and she isn't going to understand so I am not going to be able to let her do that. She is probably going to wonder why she can't be around me much. :( She is used to being with me all the time, everywhere I go. lol My daughter, 13, she is really nervous, I guess its the age, she understands a little, I told her I will be fine and this morning the first thing she said was mommy your surgery is in 2 days. I know its on her mind and I don't want her to worry. She is such a sweetheart and she says, I will help mom, I will clean, and cook for myself, and take care of Miley for you. :angel: And then she said, and I will take care of you for a change. LOL Is that the cutest. She is just so sweet, she always will say mom you look nice. Always full of compliments and great personality. Hope it continues. :) Thanks for the prayers.

SharonA
02-19-2008, 07:41 AM
(((Hugs))) (((Hugs))) (((Hugs))) (((Hugs))) ... :kissing:

SandyRN
02-19-2008, 10:02 AM
Sounds like you have a very sweet, considerate daughter!!! My daughter is very much like that as well. We're 2 of the lucky one's to have teenage daughters who aren't totally hung up on themselves aren't we?!?! My daughter just turned 15 and she's the most considerate, kind kid I could imagine having. I figured uhoh, daughter, teenage daughter, when she turned 13 but she proved me way wrong!! Thank God! LOL

You'll be fine during and after your surgery. I wish I could be there to be your nurse!!! Just make sure to watch the clock and when you are in pain ASK for your pain meds AS SOON AS YOU NEED THEM!! Most post op pain meds are written prn, or as needed so you have to ask for them...they don't just bring them to you every 4 hours, unfortunately. I know you have problems with nausea and wigging out on your meds, so warn the nurse on the floor when you're awake enough, and make sure they give you phenergan with it. Or get your bf to tell the floor nurses.

Like I told you, the hardest thing is getting up that first time to go pee. After that you'll have it made.

Get your bf to write us and let us know how you're doing!! I wanna know how things went for you. I know you've got so much going on in your life right now and things are crazy...just know we're all thinking of you!

Hugs, Sandy

GriffsMommy
02-19-2008, 11:46 AM
Sandy,
I'm going to be in contact with Eric the day of the surgery so I'll sign on and post for everybody how she is doing once I hear.
Lisa,
That is so sweet that your daughter is being so sweet about helping out. I know it's gotta be scary for her. I was 17 I think when my mom had her hysto and I was really scared but back then they thought it was cancer until they got in there and saw it was endo.
I'm so happy that it sounds like everything is going to go smoothly for you in the way of your pain meds, caths and everything else.
I'll be thinking of you from now until I hear from Eric that you're okay. :grouphug: :pray:

Bessie
02-19-2008, 06:26 PM
Lisa,
I will thinking of you and praying for you :pray:

Christine,
Thanks for being such a good friend to Lisa and for keeping us posted. You are so sweet and caring and an awesome friend :)

GriffsMommy
02-19-2008, 10:21 PM
Oh thanks Bessie! Lisa is a great person and I care about her alot. I would want to know about her surgery even if I wasn't going to post it on the boards but she would like everyone to know how she is doing and she posted for me about Shane's surgery throughout the day when I was talking to her on my cellphone at the hospital. I'm happy to do it, I know alot of people care about Lisa.

muxerr012
02-20-2008, 12:03 AM
Hi Lisa!

What a sweet family you have! :) Just wanted to say again how great you're going to do. One tip when you get home Lisa....keep a pillow with you at all times for your tummy. A nice big soft one. Lil Miley will try and jump on you like my dogs did. And family members will want to hug you and not realize they're hurting you, so just keep a pillow over your tummy at all times. It really does help.

My thoughts and prayers are always with you and most especially tomorrow. And thanks GriffsMommy for letting us know how Lisa's doing tomorrow. Can you tell how much love you have on this board, Lisa? I hope so.... :pray:

GriffsMommy
02-20-2008, 01:00 AM
Gina,
That's a great idea, I remember having to do that after I had my c-section and when I had my lap to remove a large ovarian cyst. The pillow really does help. I'm glad you brought that up, I'll probably be needing that pillow when I have my hysto because my 3 year old will be all over me when I get home.

lisabar36
02-20-2008, 03:14 AM
Hi everyone, thank you!!!!!!!!! Christine, thanks so much for keeping everyone updated for me. :angel: All of you thanks for the kind words and encouragement!!!! I had some problems last night, I was on nexium before for an ulcer, I thought it worked GREAT, this was 2 years ago, I also had rectal pain that was hard to describe and it made me go to the ER a few years ago and I didn't link it to the nexium until yesterday. I took the nexium the night before and yesterday morning and I had rectal pain so bad, I could barely walk, I am telling you, its so painful! I can't even describe the pain. Maybe its spasms, but years ago when I went to the ER they did a ct scan and I was fine, they had no idea what it was, thought maybe a fissure, but now I think its the nexium because I started it and then the rectal pain came back, I haven't had this pain for years. I will switch back to my prilosec, and let the doc know, looking on the nexium side effects, theres a ton of rectal and GI side effects so I am pretty sure it is the nexium. I was going to see my GI once I recover anyway because I was having painful bowel movements for a few weeks, but I honestly think the nexium is responsible for the pain I had years ago and the pain that started yesterday, because its the exact same pain I had when on it before. I wanted it to help me with nausea cause I had an ulcer once and it worked GREAT! But the prilosec does not cause that rectal pain so I think I need to stick with that. I am going to tell them about it tomorrow as well. I always wondered what that pain was years ago and it lasted the whole time I was on nexium but I had no idea, until yesterday, and then I could link it to the nexium which is good because now I know I can't take nexium. I remember being in the ER years ago in so much pain! After 2 doses of the nexium, I had the exact same pain and I also started having the runs which I never have! Never. lol I am the reverse all the time, constipated. So it really irritated my bowels but I was the one that asked the doc for it cause it helped me before. :( But now I know! Thank you all for caring so much! :smile tee:

GriffsMommy
02-20-2008, 03:19 AM
OMG Lisa, no wonder I never heard from you yesterday. When it rains it pours doesn't it! I am so sorry that the nexium caused that kind of pain, ouch! I hope that you're feeling better now and the prilosec will work okay for you and give you the relief you need. :grouphug;

lisabar36
02-20-2008, 10:45 AM
I think I am getting a yeast infection. I think I have a little of everything going on cause my nerves. :( I haven't had a yeast infection in years. I have diflucan, my doc gave me them to have on hand, I want to take one but I want to ask the doc first since my surgery is tomorrow, I don't think it could hurt, but who knows. :)

GriffsMommy
02-20-2008, 04:51 PM
Oh lord Lisa, it's always something isn't it! Did your dr call like she said she would to see how you are doing? Did you get a chance to ask her about the diflucan. I hope that's not what it is but of course they'll be able to treat it in the hospital if it is.
Good luck tomorrow sweetie, I'll be anxiously waiting Eric's call! :grouphug: :pray:

lisabar36
02-20-2008, 05:18 PM
Hi, yes she called, told me to take the diflucan, she is SO nice! She said I can call you some in, I said I have one, so she said yes take it now. She said she is going to take a picture of my uterus so I can see whats been causing me so much trouble. lol She then said she ordered me the nicotene patch, she said she needed to know how much I smoke so she knew what dose patch to give me, I said give me the highest dose and 2 if you can, lol I was kidding of course. She said so far from IC patients, she has seen the bladder get very angry from this surgery, so she wants me to be prepared, she said I could go into a huge flare but they will be totally prepared and she said I may not, noone knows, but she thinks I will and just wants me to be aware. I said while your in there, I will just take a new bladder to. I said oh please use a small cath, she said oh don't worry, I already am. She said I will take good care of you and your pain. She was so nice. She got everyones phone number because she wants to call my mom if she isn't there. My dad sometimes gets really tired now after radiation and she takes him right home and stays with him to make sure he is ok and I told her Eric will be there, the doc will call you, you take care of him and you can see me later. Then I know my dads taken care of and I have Eric there so it will be fine. Thank you all, I have to get to bed! Be back on when I get home! Hugs to all of you.

muxerr012
02-21-2008, 12:16 AM
Christine, I'm glad you found the pillow tip helpful. Oh this is a must for you especially with small kiddos around. Never let it leave your side. I DO remember all too well with both my c section and the hysto.

Please keep us posted on how Lisa is doing today ok? I also found some info on the internet about Nexium causing some rectal disorders; and some of them were serious. If you find out that Lisa is still having this problem, you may want to mention it to her boyfriend so he can tell Lisa's doctor to check that while she's in the hospital.

Lisa my thoughts and prayers are with you today. We all care so very much and know things will be ok. Hugs and prayers coming at you!! :pray::grouphug::pray:

SharonA
02-21-2008, 04:39 AM
Praying for you today, Lisa. :pray: :pray: :pray: :pray: :pray:

GriffsMommy
02-21-2008, 08:57 AM
For anyone who doesn't catch it on the prayer thread or Lisa, I just got a message from her boyfriend Eric that she is out of surgery and that everything went great with no complications. I didn't actually get to talk to him cause he called my cell when I was in the bathroom of course.
He said as long as everything goes well in recovery he should get to see her in about two hours. When I know more or hear that she's in her room I'll post when I hear. I know she really appreciates all the prayers and support.

SandyRN
02-22-2008, 08:47 AM
Thanks Christine...I've been thinking about her all day long.

maryla
02-22-2008, 09:28 AM
Thanks Christine for the update!

Here's sending Lisa lots of ((((hugs)))) and prayer for a not so painful recovery! :pray:


And Lisa, I had a hysto at 27 and took the wrong hrt for a long time (i'm 52 now) Last year I read alot about Bio-Identical Hrt and I have been using them for a little over a year now. I have to say they have helped and I feel soooooo much better knowing that I am getting the exact amount for my body, not just heres a pill, hope it works, like every gyn I have ever had tell me that.

If you would like to know more just give me a yell!! Again sending you lots(((hugs)))

God Bless,