CloverGirl
02-05-2008, 01:56 PM
I had a dream one night that I went to the doctor for something, and they said I had five days to live. Then, 5 days after that, I was diagnosed with IC, January 15, this year by my GYN. I was going doctor to doctor, in and out of useless visit after useless visit, had a laprascopy for my pain, tests, but never the PST until this new doctor a few friends from work were raving about. He scheduled me for the PST test, I took it, and tested positive. He walked into the room, said, 'Well, ya flunked your test,' and handed me a handout on Elmiron, on the back of which was a list of all my favorite things I couldn't enjoy anymore. Sounded like my normal life that I had known was in a sense over, at least for a while! 5 days to 'live'... kind of sick, I think! I've found this all really overwhelming. I feel like such a wuss though, reading about what some people have gone through and still are. My doctor believes my case is mild, and thinks there is a possibility for my case to be over in 3 months with my first bottle of Elmiron. Is that even possible? It sounds so much like this disease is usually pretty lengthy in having.
I've had it for over a year now, that I know of. In the past few years, I'd noticed I had to pee, a lot, a lot more than anyone else. Then the pain started a little over a year ago, and got so bad I would be at work and cry in the bathroom because I couldn't stand it. It was horrible. The doctor I was seeing was pretty terrible--he put me in surgery before trying the PST. Then on pain meds, and said, well, there's nothing more I can do for you and sent me on my way. It went away gradually shortly after, for a month or so after I'd had my laprascopy, then came back with a vengeance, and now the pain is pretty consistent. I always knew it was getting worse when I would start to have throbbing pain at night (and of course the constant trips to the john every time I'd turn over) and wake aching in the morning, when just sitting at work was miserable and my heating pad was my best friend.
A lot of the time it's the pain and then a lot of pressure, it feels like my bladder is pushing its way out. Or like a gnome is dancing on it, or something... And that part of my abdomen bloats...is that normal IC stuff?
I get kind of concerned sometimes that my doctor so far has just been my GYN. I don't know if he is waiting to see how the symptoms go with the Elmiron to hand me over to a Uro, or what. I've heard nothing but great things about him, and he had helped me greatly thus far.
I've had it for over a year now, that I know of. In the past few years, I'd noticed I had to pee, a lot, a lot more than anyone else. Then the pain started a little over a year ago, and got so bad I would be at work and cry in the bathroom because I couldn't stand it. It was horrible. The doctor I was seeing was pretty terrible--he put me in surgery before trying the PST. Then on pain meds, and said, well, there's nothing more I can do for you and sent me on my way. It went away gradually shortly after, for a month or so after I'd had my laprascopy, then came back with a vengeance, and now the pain is pretty consistent. I always knew it was getting worse when I would start to have throbbing pain at night (and of course the constant trips to the john every time I'd turn over) and wake aching in the morning, when just sitting at work was miserable and my heating pad was my best friend.
A lot of the time it's the pain and then a lot of pressure, it feels like my bladder is pushing its way out. Or like a gnome is dancing on it, or something... And that part of my abdomen bloats...is that normal IC stuff?
I get kind of concerned sometimes that my doctor so far has just been my GYN. I don't know if he is waiting to see how the symptoms go with the Elmiron to hand me over to a Uro, or what. I've heard nothing but great things about him, and he had helped me greatly thus far.