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Lari
02-04-2008, 08:05 AM
After ten years of experiencing frequent urination and urgency I was diagnosed a few days ago with the early stages of IC. I was completely convinced that I didn't have IC and that it was mostly in my head after taking Detrol and other similar medications that didn't work. I usually don't experience pain and if I do it's very temporary. I do however have a frequent need to use the bathroom that made sitting through a car trip after 10 minutes extremely unpleasant.
I learned over the years on my own to ignore my bladder when I knew that it felt irrated rather than full. But my ability to do that became difficult once bathrooms weren't easily accessible and I thought people were noticing my frequent bathroom trips. This would last for weeks and the constant attention that my bladder demanded and the thoughts that I might be home bound because of my increased feelings of urgency scared me so much that I would have anxiety attacks. That finally led to depression and when I felt suicidal I sought the help of a psychologist. She told me that I should rule out any medical causes as well as deal with my anxiety. Since then I've been on anti-depressant medication which I would rather not have to take.
Finally after ten years I saw another urologist who ran a lot of tests on me and found that my bladder was slightly inflamed and that my pelvic floor muscle never fully relaxes. She also said that I need to take care of the symptoms now before they get worse. So now I have to go on the IC diet which seems pretty daunting since most foods available have preservatives.
Does anyone else have IC without the pain? And how hard is the diet to follow?

Thanks

dyno
02-04-2008, 08:12 AM
Hi Lari,
Welcome to the ICN. Yes, I do have IC and I rarely have pain, only when I am in a bad flare usually. The stress of not knowing where a bathroom makes me worse and when traveling I have had a horrible time in the past.

Stress and my IC are a big problem. So trying to keep stress to a minimun really helps me.

The IC diet can be a challenge at first because everyone is different. The best thing to do is to keep a food diary. This will help you determine if you have a bad day what may have been your trigger.

If you go to my signature line you will find a link to the IC- Handbook on this website. It will help you a lot and there is a section in there on the diet.

Just go slow take this a step at a time and you will most likely get to a point where your symptoms will be more controlled. It just takes time to get there and find the treatment that works for you.

Again, :welcome:

born2swim
02-04-2008, 03:21 PM
I don't have pain, per say. Now, if I hold my bladder as long as possible, yeah that is uncomfortable... but I wouldn't say "painful". I have to do lamaze breathing, trying to mentally block out the urge, etc... but sometimes it is too severe. So, yeah, I would say I only have urge/frequency. The diet... well I did it for 2 months and it didn't really do much. I added a lot of things back without consequence, but I gave the full diet a try. I limit things with anything artificial when I can. I limit vinigar and citric things as much as I can. I CANNOT have tea, artificial sweeteners, or too much coffee (can handle Starbuck's White Chocolate Mocha, Skin, half-caff. now and then). Carrots, melons, and some other odd things increase the volume of my urine, so that bothers me in a different sense. It ups the frequency without irritating my bladder. The other things irritate my bladder and cause the frequency to up without increasing the volume of each void. It's a learning process! Good luck!

Bea
02-04-2008, 03:40 PM
welcome to the ICN.

I personally suffer with a ton of pain.. always have from IC, but I know many who just have the urgency and frequency part of IC

as far as the diet, everyone is different, and can handle foods that others cant

my best advice with that is to do the elimination diet.. start with the basics, and slowly add back one thing at a time to see what you can and can not handle.. I know it is a slow hard process, but definitely worth it..

good luck to you hon :grouphug: