stupid people mess it up for us

[windchaser]

I was just recently diagnosed with IC I also have endo,IBS,anxiety,carprul tunnel and athsma. My uro started me on elmiron and DMSO treatments immediatly and gave me pyridium for the pain, My pain was extremely bad, nothing seemed to work. He then wanted to try me on ultracet which I can not take because i get an allergic reaction to it i start itching and get a rash, well he was very hesitent to give me anything else and gave me 5 hydrocodone, well two weeks later i was still having uncontrolable pain I didnt want to move. I was supposed to be going for just a DMSO and wasnt supposed to see my uro but I was in so much pain i beg to see him, I almost decided to try a different uro, but then he came in and saw how much pain i was in and told me that he knew i was in horrible pain, and that he and I would make an agreement between us that he would give me 30 hydrocodone but it had to last me the whole month, I was happy he gave me more then 5, then he procceded to tell me why he couldnt do more, I guess a couple of his patients were getting pain meds from him then going to another doctor for more pain meds and then selling them... I was so mad i thought to myself who do these people think they are to do something like that when there are people really in agonizing pain that have such a hard time getting something for it..:cussing: I wish I could run across one of those people an give them a what for:rant::cussing::mad: anyways I had to get that out somehow ive been so worried about taking my meds for pain which has been about a 7 constantly , so i dont want to take more then 1 a day as fear that i will run out and it is hell especially trying to take care of a 3 year old boy that is a handful...:loco: anyways thank you for listening just went on a little rant im over it hehe Christa

[kuntrygurl78]

:grouphug:

[leelee88]

I can truly understand. I am glad your Dr agreed to give you some pain meds. My URO would not even give me Ultram.

[ltlmiss]

I could not live without my pain meds. If your doctor wont prescribe you more and you really need them then try seeing another doctor. If 30 is getting you through than thats great, less is always better. IC is painful, there is no doubt about it!! I also have a 3 year old and a 10 year old so I know what you mean, its hard to take care of your kids when you are hurting, pain medication has been my one and only savior, nothing else has ever made a difference.

[ICNDonna]

If you aren't getting enough pain meds to last through the month, I suggest you ask for a referral to a pain management specialist.

Warm hugs,
Donna

[windchaser]

thats the problem I have no insurance so what ever doctor i see i have to pay out of pocket for and also for the pain specialist i am filing for diability to try and help but this doctor is the only yro that will work with me on payments so i kinda have no other choice and i know the 30 wont last a month and he even said when he gave it to me that he knew it wouldnt but there was nothing else he could do, im wondering now if maybe is is being watched with the pain meds cuz of what his other paitients were doing what do you think? he is a very good doctor but tried telling my mom that its hard for him to treat me because he has never seen IC in someone as young as me and all i can say is look at the people on this site and ive had this pain since i was 15. I just dont know what to do and our agreement was i wouldnt go to another doctor for pain meds...

[GriffsMommy]

I'm so sorry you're having such a hard time. As Ronda said though a lot of uro's won't give pain meds at all. My uro would give me 20 vicoden when I would call and say I was in so much pain but that was all he would give me. I would always try to make them last as long as I could and back then I could make them last about a month. Which now I could never do. I'm pretty much taking my pain meds every 4 hours now which is the most often I'm allowed to take them.
I finally mentioned to my uro that I felt he didn't seem comfortable giving me pain meds but I was in pain every day. He said he wasn't and he would rather have my GP handle my pain managment. When I went to my GP and told him this he was very understanding. He pretty much told me that every specialist out there does not want to deal with pain and sends their patients back to their GP's for the pain control. He of course as any dr wanted to give me the least amount I needed to get by but he was willing to listen to me.
He even told me he would be willing to put me on long acting pain meds if we felt the vicoden wasn't cutting it anymore. We have pain management dr's where I live but none in my county and I can't afford the gas to go to a pain management dr that's an hour away once a month and pay ANOTHER copay that I can't afford either.
I didn't see where you live but even though you don't have insurance there are some great dr's out there so I would look at the list of dr's you can find here on the ICN. My dr is listed there and is a pelvic pain specialist. He is a gyn but he is dealing with my IC, endo, PFD, VV, and pudendal nerve issues. He is very willing to work with me on pain managment and actually had me sign a pain management contract that I wouldn't get my pain meds from any other dr. That's fine with me. He has been changing my pain meds as I have found that the current meds aren't working as well. He really does listen to me and try to help me.
You are right though, it is horrible that we have to suffer with all of these increased messures and securities because other people are abusing the meds or selling them. Lord, I don't want to abuse or sell, I just want to feel better!!
I can also relate to the three year old. Griffin will be 3 1/2 on feb 2nd. Luckily for the MOST part when it's just me and him he is pretty mellow and I can put on cartoons for him and he will let me rest if I don't feel well. He is turning out to be a very sweet and caring little boy.

[Sarojini]

I'm so sorry... it really does stink when such a thing happens. Things like this really are why many doctors will not treat pain with opiates at all. In fact, you may be right - the DEA may be watching your uro at this point because of those patients - I know of a situation where a prescription pad was stolen from a doctor and used to write narcotic scripts, and that doctor was watched like a hawk by the DEA for a while even though it was not said doctor's fault at all. It is very, very unfortunate that doctors and true pain patients must take the heat as well.

I am glad that he is giving you some medication to help at least sometimes. Do try to ask for a referral to a pain clinic anyway. First of all, nearly all of the clinics that I know of in my area take Medicare/Medicaid, so if you do get disability that will help. I also know that my pain clinic does work with patients to set up payments when their insurance is not enough or if they are uninsured, so you may get lucky and find that yours does too.

:grouphug:

[windchaser]

I guess i can try to ask about the pain management or maybe even my gp cuz she is way closer then the uro i drive an hour to see him and gas is getting to expensive to be got to him especially with the DMSO treatments everyweek. My gp sent me to the uro cuz she said that endo wouldnt cauz that much pain she was giving me pain meds but wanted a better diagnoses. anyways ill figure something out i dont see him til mid next month. ty all for your replys

[Babs RN]

Amazing what people will do these days and then ruin it for those who are really in need. I would see if you can find a pain guy that might work out a payment plan with you--there are alot who are self pay docs and Medicare and if you can't afford the self pay prices they will work out plans for you.

Hang in there,
Barb:hi:

[Berkshire Road]

Just recently, they busted a major drug ring here in New Jersey; there were actually doctors, pharmacists, and college students involved, getting these prescriptions, filling them, and selling them on campus. Unbelievable. I was furious -- not that they were busted, but just what you said: Now it will probably be harder for the people who need pain meds to get them.

Please try your GP, maybe she'll be understanding if you tell her the whole story. I'm so sorry that you are in this situation, and it makes me so angry also.

You're in my thoughts.

[glassd18]

Can he prescribe Urised, Elavil or even Ultram? The urised might help until the Elavil would kick in. Maybe it would help, and it's not an abused substance (although Ultram can still be abused). Does regular Tylenol help? My uro would prescribe pain meds like darvocet, and vicodin, but only 1 month at a time, but more than one a day.

I'm very chemical sensitive so I have trouble with all sorts of meds even the ones that are suppose to help.

Anyhow it's too bad that some people are able to exploit the system and ruin it for those of us who really and honestly need it.

[ICNJess]

It is so frustrating!! Can you get on a state assisted medical program while you are filing for disability?

[karen10]

A lot of drug companies have programs called patient assistant program (PAP) where they will send the meds to you (with a valid script and proof of income) for a very reduced fee or no fee at all. You should look into that. Good luck!

[BBB]

I am sorry for your situation.

It is amazing to me that anyone would want to take pain meds, much less pay gobs of money for them when they aren't sick! Yuck!!!:confused:

[windchaser]

ty everone for replying i was on medicaid about a year and a half ago but i had to cancel because even though my sons father was giving me money they wanted me to go after him for child support so i canceled it because then my son would lose his insurance and he has problems he needs his,so i would rather him have his then mine. I am going in today at 11 for my 3rd round of DMSO and then at 3:30 to see my gp for these darn migraines and pain. so we will see what she does pray she understands. ty all i so needed this support. :)