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rant
01-17-2008, 05:23 AM
Hello,

I've had IC for a few years, a rather mild case, I would think. But a few days ago, I began to experience horrible, burning pain in the suprapubic region and I went to the doc. He did not do any urine culture, but put me on a prescription of Cirpo based on symptoms alone.. 500mg/day for 3 days. I've taken 2 of the 3 pills and the burning has stopped, but the tenderness is still extreme and excruciating.

I am (I hope, illogically) terrified that this UTI has somehow made my IC worse, forever. Will this extreme sensitivity last? Is the dose of Cipro enough to kill the UTI? I only ask because the burning subsided but the pain of IC has worsened.

Has anyone experienced this?

loraleena
01-17-2008, 06:39 AM
YOur doc should have checked. You could have been having a flare. Also if it was a UTI both the infection and the antibiotics can worsen IC. Mine started after a UTI and worsened after a second. Get checked for a UTI. Also, while your bladder is recovering stick to the IC diet and take it easy. After a while things may settle down again.

rant
01-17-2008, 06:43 AM
Thank you, loraleena. I really appreciate your advice. So after your second UTI, your IC worsened permanently?

dancemomof2
01-17-2008, 11:23 AM
My thoughts are that if this is a UTI and it was not cultured the cipro may not be the right antibiotic to kick th bug. It may be enough to relieve a little but just not the exact one. I would suggest when this one is out of your system and and your symptoms continue or worse make them do a u/a and culture to get the exact antibiotic for the UTI if that is what it is. Hope you feel better soon.:angel:

SharonA
01-17-2008, 12:25 PM
I agree. If your symptoms do not get better after finishing the Cipro, I think going back to the doctor is probably wise. Ask them to check your urine and culture it.

It is normal to worry that an infection could make your symptoms stay around for longer than the infection. I have had a few and, once the infection is gone, so are the infection symptoms. Any time I have a flare, I wonder if things are going to go back to where they were before the flare. They do and then I don't think about it until the next time.

I hope you start to feel better very soon. :) :) :)

rant
01-18-2008, 12:57 AM
Thank you Sharon! However, I went back to the doc last night, and he did a dip test of my urine and said there was nothing to indicate infection, much less IC. He doesn't believe I have IC (even though I was diagnosed with it by a urologist following a cystoscopy) because there was "no blood in the urine". When I begged his pardon and asked if that symptom wasn't usually exclusive to ulcerative IC, he just shrugged it off and told me to take muscle relaxers.

So now I don't know what to do. Pain like I've never had before, and no evidence of infection on the dip test.

And my doc doesn't believe me.

sandberg4
01-18-2008, 01:26 AM
Hi,
I had the same thing happen to me after the last uti I had. It was a different kind of pain than normal and it scared the heck out of me. I took the antibiotics and was sure the infection hadn't gone away, but it had. My urgency was worse, the only thing that helped was over the counter azo. My GP said they thought it was a potassium burn from the uti. I felt like I was peeing glass for a while.
It went away probably after a month. And it made my bladder symptoms worse and very sensitive for a while. Needless to say, I'm really frightened to have another one.
Hope you feel better soon.

rant
01-18-2008, 01:48 AM
Thanks for sharing that... I feel more hopeful now. What is azo, so I can try some?

sandberg4
01-18-2008, 02:28 AM
It's just over the counter. I think it's with the feminine products, like midol. There's different kinds and they state they help with urinary burning.

traceann
01-18-2008, 02:38 AM
I've used AZO and Uristat - both over the counter. ;) If it was an infection, it can take an IC bladder longer to bounce back from it than a "normal" bladder since it's already "compromised". I am sure you'll start feeling better, just maybe it might take a little longer :)

ICNDonna
01-18-2008, 02:46 AM
I hve read that antibiotics have anti-inflammatory qualities, which is why we can feel better within hours of taking them. It's been years since I had an infection, but it did take several days to get rid of it, even with antibiotics.

Azo is a low dose of pyridium; it will turn your urine a beautiful orange color. It stains clothing so you may want to wear a panty liner while taking it.

If you don't feel better after ten days or so without antibiotics, my suggestion is to go back to your doctor and ask them to culture your urine to be certain there's no infection left.

Are you following an IC diet? That can also be important.

Warm healing thoughts,
Donna

loraleena
01-18-2008, 07:39 AM
Rant - I had UTI's for years, cleared no problems. In late 04 I got a UTI and needed two rounds of antibiotics. The UTI feeling would not leave. No UTI anymore though. This went on for a month. Luckily I was diagnosed with IC quickly. You do not have to have blood in urine for IC! Some docs don't believe in it and you should find another doc. After being diagnosed I told my doc no to drugs. He gave me lots of info on the IC diet. I followed in strictly and in a week felt great. Within 2 months I added stuff back and for 2 years could eat and drink anything but citrus and tomatoes. Fast forward to Jan. 07. Out of the blue pain came back after holding it to long one night. I could not stop peeing! Went to doc and had another UTI. Did antibiotics. Cleared up but discomfort continued. Went back on diet and was good again in 3 weeks. Slowly added a lot back. Good till may and it started again, but no UTI this time. I think it was from a anticanida product I was trying. Since then have been on and off in flares, but doing better the last couple months with a big flare over x-mas do to dietary idulgance. Personally I believe mine is caused by candida overgrowth do to tons of antibiotics I have had over my life. I believe the UTI and the subsequent Cipro I was on really agrevated this. I am not saying this is yours or any other persons reason for IC, just what I believe. UTI can def. cause you to feel worse for a while, but there is no reason to think it won't get better if you nurse your bladder for a while. Stick to the diet til things calm down.
I use a homeopathic remedy called cantharsis 30c dosage 5 pills three times a day that really helps with frequency. I also take Cysta q twice a day and 3 prelief before everything I eat.

rant
01-18-2008, 04:50 PM
Loraleena,

Yikes. Reading your story really shut me up. Thank you for sharing it with me. I can't believe what you had to go through, with all those UTIs. I am going to stick to the IC diet as best as I can and hopefully will be able to weather the storm. Thank you so much for your advice, and words of encouragement. My bladder does feel better after taking a bit of sodium bicarbonate in water, and I've just been very careful to not eat anything that might cause the bladder to start to burn. It's nowhere near what it was, but it's definately getting better.

GriffsMommy
01-19-2008, 02:15 AM
I don't get UTI's so I really don't have much experience in that department. I did want to say that I have read other members say that if they get a UTI even after it is gone their bladder can still be more irritated because it takes an IC bladder longer to heal from a UTI. I hope you start to feel better soon. :grouphug:
If the dr you are seeing is saying they don't believe you have IC but previously got a diagnois then I would suggest looking for another dr. You are never going to get the help you need from a dr who doesn't believe you have IC.

elamar
01-19-2008, 06:29 AM
I had a uti last nov. and the burning sensation just doesn't want to go away. I saw my doctor yesterday and so far the dip stick test at her office did not indicate any infection. She prescribed me pyrelle, which she says is a stronger version of urelle. It supposedly has some barbituate in it which should help with the burning pain. Unfortunately my pharmacy won't get it in until monday. I don't know how it works yet. Just might be an option for you to ask your doctor for, I just plan on using it for a short time. Just to get the burning to stop. Hope this helps.

sphinx
01-19-2008, 07:41 AM
Wow, I'm not so happy with the experience you had with your doc on this! First, a culture should have been done. It's one thing to start on an antibiotic like Cipro while waiting until the results of the culture comes back...then at that time, the doc should see the results, and if there is an infection, the lab runs a sensitivity test to see what antibiotic works best. While Cipro is a good drug, sometimes it is not the right one! If Cipro shows not being the right drug for the job, a new antibiotic would then be started...

Then, I think a 3 day course is too short for Cipro. Should be at *least* 5, sometimes 7 days. There are other antibiotics that you take for only 3 days, but Cipro isn't one of them. If you have kidney disease, your doc may be being cautious, but other wise I can't imagine why he'd give you such a short course of antibiotics.

However, the 3 days course would be long enough to kill a pretty large amount of bacteria....which could be why your urine dip looked normal. However, there could still be bacteria lurking around in there, causing problems and pain, and waiting to rear their ugly heads. That's why you are always told to take all your antibiotics, and not to stop when you start to feel better.

I am also shocked that he is saying he doesn't think you have IC because you don't have blood in your urine! Last I knew, that wasn't a definitive criteria! Sheesh! The cystocope you had previously would have shown for sure the inside of your bladder and if you had glomerulations/ulcers, then I'd say that yup, you have IC! Honestly? I'd try hard to find a new doctor.....I know it's a pain, but this guy doesn't seem really informed.

I also agree with the others, try the Azo over the counter, and test out the IC diet. I personally only have a handful of diet triggers, but for others, it makes a HUGE difference!

Good luck and hope you are feeling better sooooon!

joeyshadow
01-19-2008, 08:35 AM
You May Be On A Ic Flare You Should Go See Your Uro. Good Luck

loraleena
01-19-2008, 12:54 PM
Also take 2-3 prelief before meals. It takes the acid out of foods. Really helps me!

rebekahpoet
04-30-2009, 03:56 PM
Dear Friends,
:cat::cussing::toilet::bow:
I am new to the site.
I did a post in another category, (the newbie category) about a month ago.
I feel depressed (on the verge of suicide almost b/c of the pain) and I feel defeated and deflated. It takes a lot to get me this way, since I am survivor of horrendous abuse as a child, but because of the chronic pain I have been suffering in the manner of pelvic pain and constant burning during urination, I am being brough to my knees.
I am not sure what to do.
On the one hand, I am trying to understand IC and to grasp it. On the other hand, I am still not entirely sure what is causing my pain.:cussing:
After over a month of going to doctors, being diagnosed with a bladder infection twice (the first one was amoxicyllin and only after I demanded they culture it did they find an infection, and then the amoxicyllin did not help) and having had a ruptured cyst, another cyst (which they did not find on two ultrasounds and ct scans, but found on an MRI) on my right ovary, a second infection that will not go away recently with CIPRO and having gotten conflicting information from doctors...I am really not sure what is happening to me.
Something is going on. I just do not know how much longer I can go in this type of pain.
I finally have my first Cystoscopy scheduled May 11th. I am praying that there will be some answers from that. If not, then I am not sure what i am going to do next in regards to the bladder symptoms. Then, my gyn suggests doing a laparascopy (But told me that having it could interefere with my fertility) and still, that would not help me with the severe bladder pain that will not go away.
I am at my wit's end. I had one Urologist tell me that it is very presumptuous of me to think that I have IC and he would not even check my bladder, saying I had to wait over a month until June 3rd to see a Pelvic Pain Specialist. The Urologist I saw the other day told me that I should get these "crazy ideas about IC" out of my mind. And you know what I told him? I said, "Well, what else am I supposed to do when I am not getting any answers and when my pain is not going away?" And he said that IC is not a diagnosis I want and to not go out"looking for it" and I told him I was not, but I am an educated person trying to come to my own conclusions since doctors are not really helping me. He also told me that I did not have an infection even though he was not willing to culture it. When I told my family doctor that the CIPRO was not working, they have me on another antiobiotic that I pray will work.
I am really wondering what is happening and why nobody seems to care (I sent an email to family and friends about this) about the chronic pain I am in.
I already knew it was a lonely world from fibromyalgia, but lord, not even a response.
I am wondering what you all can share with me and tell me about what you deal with and suffer every day and what you all are going through.

I am asking for help though.
You can also e mail me at: seattlepoet@gmail.com.

Thanks for your support.
Please share with me anything any of you have gone through and I send you all love and health, wellness and prosperity.
:pray:
Rebekah