I quit Elmiron today.

[blue]

I just couldn't stand it. I was so sick to my stomach, my head was killing me, and I had those purple spots on my chest. I called the Urologist's office, but he's out of town. They told me to go ahead and quit taking it. I tried the medicine without the capsule and I was still sick.

[Katrina]

(((((((((hugs)))))))))) I am so very very sorry. With so few meds actually treating IC and only one oral I know that must have been a difficult dicission. I hope you can find relief without it. Best of luck to you.

[peiti]

Blue,

I am sorry that Elmiron gave you hard time, but you are not the only one. I couldn't tolerate it, either. I took it without the capsule and it still irritated my stomach. Besides, I think it irritated my bladder a little bit and increased my frequency.

I hope you can find relief in some other oral medications.

God bless you.

[blue]

My Gyno had me taking Imipramine before. It's a antidepressant. It helped for awhile. He prescribed it for a year before I ended up going to a Urologist. I'm wondering if the Imipramine in a higher dose would help. I used to have alot of leg pain. It was horrible. Well, in January of 2003 they Gyno gave me the Imipramine for frequent urination. Then in February of 2003 I had a hernia repair done. Over time, the leg pain went away. I didn't know if the hernia repair had something to do with it, or if it was the medication. Now, I've been off the Imipramine for about 7 wks and the leg pain is back. I was never diagnosed with anything for the leg pain, but it had me crying daily. So, I'm going to ask the Urologist what he thinks.

[Piddle Girl]

I'm sorry that Elmiron didn't work for you. After taking it for a while, I found that it wasn't working for me. I was doing well with it at first and then one day my stomach was senstive to it and I felt sick all the time. Right now I'm taking prelief with food and that's about it. I need to find a new uro, one who specializes in IC. Anyway. I hope that you are feeling good w/o it and I hope they find something else for you to take.
grouphug

[ICNJess]

Hi Blue,

Sorry about the Elmiron. :( It didn't work for me, but it's still a great med that gives people their lives back. :) Maybe you could tolerate DMSO instills?

About the Imapramine, I think it helped you because antidepressants to provide pain relief for ICers. I think it has to do with interfering with the pain receptors. Maybe a higher dose would be beneficial for you? It's worth talking to the doctor about if it has helped you before. :)

I hope you find something that works, don't give up!

Hugs and love,
Jess grouphug

[peiti]

Hi, Blue

I had been put on imipramine for half year. My urogyno increased my dosage from 25mg-50mg a day. 25mg a day hleped me for a couple of months but suddenly it stopped and then up to 50mg. My frequency was cut down from 16-20 times a day to about 12 a day. However, I had many side effects on 50mg. Didn't gain weight, but had palpitation, constipation, low blood pressure and excessive sweat.

Now I am on 12.5mg Elavil. I can tolerate Elavil better than imipramine.