3rd botox treatment -1st time in the dr. office

[IC/IBS Hopeful]

I had my 3rd botox treatment. This was the first time without hydrodistention and the first time in the Dr. office. My God it was very painful. no pain meds. I had alot of pain with the injections in the sides of the bladder. I also had increased pain as the bladder filled with water as he did the injections. I had 30 injections in all. It has been only 4 days and I am still healing. I took a week off from work thank God I don't think I would of been worth much at work. I have had a lot of pain in the bladder. I can not pee on my own and have to cath. this makes the bladder much more sensitive when I stick the catheter in. I have lots of blood clots and it hurts when the catheter touches the sides of the bladder which causes more pain. Has anyone had this expericence?
Lynn

[charmedx3]

Hi Lynn, Just wondering how the Botox helped since you first had it done? Did it help with just urge/frequency or has it helped with any pain? I just had it mentioned to me as a possibility so just researching it a little bit more. thanks!

[Dianne]

I did it in the office and almost fainted it was so painful but it wasn't the injections I felt, it was the twirling and manipulating of the scope I think that hurt so badly. I had retention of 200cc for almost 10 mos. I learned how to crede out the rest (like kneading bread) so I only cathed once. I still crede to get out up to 50cc more for extra relief. I'm so happy for those botox helped but it was a nightmare for me and the worst thing to date that I have tried. Never again. I didn't bleed after the first day and no clots.

[wolfaleena]

my doc has suggested botox for pelvic floor injections? is that where you got the injections? Sorry it was so awful for you. i am trying to research it and get input from others. any input will be helpful thanks.

[Dianne]

No I was injected through a cystoscope into the wall of the bladder.

[IC/IBS Hopeful]

didn't realize there were replys.
The first time it helped for 4 months went from peeing 30 times a day to 8 to 10 and urge, frequency and pain was much better. I was very happy. Then we did it again 6 months after the first. That one put me in retention. I had to cath all the time. It did help with urge & Frequency and pain inbetween having to go pee and it did bring be back down to 8 to 10 a day. This time only lasted 3 months.
I was in alot of pain and we did it again to try to get the spasms to stop. this is where I am now it took 1 1/2 weeks to stop hurting from having it done in the office and for healing. I am doing bett except for the last 4 days I have had pain again. not sure why.
So I guess it is different for everyone.
Lynn

[wolfaleena]

lynn Sorry to hear that you are having pain from the botox. Did you get it in the bladder or pelvic floor thanks

[IC/IBS Hopeful]

I get it just in the bladder. He has not injected my pelvic floor yet.
Lynn