Found out I have IC during my hysterectomy..

[spinson]

On Nov. 5th 2007 I went in for a hysterectomy due to endometrosis, during surgery they found that I also had ic. Back in June I started having symtoms of a uti and back pain, nausea, bladder pressure. I went to the er and sure enough the told me I had a severe uti. I was put on IV antibotics and oral antibotics and lortab and sent home. They told me to follow up with a gastro dr. so I did that. I had the light run down my throat and I had gastritis and esoughgitis ( I know I didn't spell that right ) . I was put on prevacid and was told also 2 years prior that I had IBS. My Gasto dr. told me to come in for a gallbladder ultrasound in 2 weeks. Well, the morning of the ultrasound I ended up in the er at 2am I was in so much pain. I was told it was another uti and they done a hida scan and said that my gallbladder wasn't functioning. I didn't have any stones. I was given demerol and more antibotics. I had my gallbladder removed Aug 14th 2007. I have always had frequency and urgency for as long as I can remember but never pressure and pain, that started after my last uti. From then on I have been a mess. I went for my yearly pap in Sept. and told her about the problems that I was having . She told me that I had a prolapsed uterus and bladder and I needed a parsial hysterectomy. I do have painful sex at times. During this time my bladder pain was getting worse and the pelvic and back pain was unbearable. I went and got a second opion. My new gyno also told me that my uterus and bladder had dropped but she thought I had alot more going on. So I had a pelvic ultrasound , vaginal ultrasound, urodianamics, . The uro showed that I had mixed incontince and could only hold 200cc. It may have been less. She told me that she was 95% positive that I also had endometrosis. Anyway we decided on a hysterectomy and a bladder tack. Well, while doing the bladder tack filling up the bladder thats when she discovered the ic. My gyno told me that I also have the hunners ulcers. Keep in mind I am only 29 years old and now in menopause due to the hysterectomy. I had never even heard of this disease. She put me on elmiron 2caps twice daily and I had my second dmso treatment today. I am continuing to have bladder spasms and left flank pain which my urologist doesn't think is related to the ic. I don't think I am gonna like him. He makes me feel like I am stupid and I am imagining the pain in my back . Thanks for listening to me and my long story....

[Lally]

Hi Spinson,

Wow, you have had so much going on in the last year. Just know that you are not alone anymore. I have had IC for 8 years now and am now 30 years old. At the beginning the info can be overwhelming. I had back pain for the first two years. You are not stupid. You know your own body. I too am on Elmiron and it has saved my life. It took nine months to kick in but has put me in remission. I tried the dmso treatments and they did not work for me. If you have any questions just let me know.

Take care,

Lally

[spinson]

Thanks, do you take anything else besides elmiron? He gave me a prescription for mobic today for the inflamation, because I can't take motrin. Do you have all the other thing like migraines, ibs , fibromilgia. I read that these all kind of go together. Which is weird because before I knew I had ic I was diag. with migraines 2 yrs ago and ibs 2 yrs, and endo which I read somewhere that they also seem to think that somehow is linked with ic too. I have spent countless hours reading about this disease and trying to understand it. This website has been such a blessing for me seeing that I am not the only person who is going thru this.

[Lally]

Hi Spinson,

I am on a cocktail of drugs for my IC that works for me. We're all so different. I take Elavil 20mg at bedtime ( so I don't pee all night) and Ditropan XL 10mg also. For the Elmiron I take 100 mgs 3 times a day. I also have IBS and fibromyalgia, Acid Reflux and Vulvodynia. I am tested for Endometreosis every year at my annual exam because it is associated with IC and is hereditary and my Mom had it and had a full historectomy at 40.

Hope this helps.

Lally

[leelee88]

Hello and :welcome: To the ICN

Yes it sounds like yo have been through alot. Here is a link to the Patient Handbook you might find some helpful things in there. And if you need anything please just ask.

http://www.ic-network.com/handbook/

[kuntrygurl78]

I am also 29. I was diagnosed about a year and a half ago. You sound like you have been thru a lot in the last year. Like you said, this website is a blessing! The people here are wonderful.

I would read up on the handbook, and order the IC Survival Guide. Its very helpful. I would also check out the diet. It helped me quite a bit. I found I only have a few triggers, but knowing them has saved me a lot of pain.

I hope you get to feeling better soon! PM me if you need ANYTHING:hi:

[sickofmybladder]

:welcome: - I just wanted to let you know - I was diagnosed in August of this year and for the last two years (while they were trying to find out what was wrong with me) my main symptom was left flank pain - I also still have the lower back pain (even though my bladder is somewhat calmer now).

Please check out the handbook -

Becky