Scared that my daughter has IC

[Melly]

Hi all,

It has been a while since I last posted. Fortunately I have been able to control my IC with Elmiron and Elavil. However, my daughter has started to show some signs that she may have IC. She is six years old and has been experiencing frequent urination. She has the increased frequency during the day where she is going about every 5 - 10 minutes. She doesn't have it at night. She is not having any pain or discomfort, just the urge to go. I took her to the pediatrician about 2 weeks ago and he said that she was having bladder spasms, that they're fairly common in children, and usually last a couple of weeks to a couple months. Could these possibly be the precursor to IC. I really don't want her to have to deal with this, but at least if she does, I will be able to help. Any advice on this would be greatly appreciated.

Melly

[SharonA]

This is such a sad thing to read. I do hope what she is experiencing is not IC.

Try the IC Diet with her. It could help. http://www.ic-network.com/handbook/diet.html

It might be a good idea to get her in to see a Pediatric Urologist. Maybe your Pediatrician can recommend someone.

[sickofmybladder]

:grouphug: - I really hope this is not what it is - but at least you know the signs to look out for - keep an eye on it and I guess time will tell.

My 20yr old daughter is showing signs and it has been so much harder seeing her in pain then when I am - I can only imagine if she was 6yrs - but your daughter is very lucky to have such a strong advocate on her team :bow:

[Sally939]

I hope neither of your daughters have IC. But if they do I am glad they have you. I am 29 now, but I remeber when I was 7 having some bladder issues. For example if I drank a fountain coke I would have to pee every ten to twenty minutes for about two hours. It was strange because I would pee a good amount each time. I really could not hold it because I would feel like I was going to bust. At the time I felt very embarrassed by it and would try to hide it and control it. I did not want to tell my parents because of their reaction. They were really just worried about me but I took it as them being mad. So try to help your little girl to not feel ashammed about it.

[ICNDonna]

Hopefully your doctor is right and this will go away fairly quickly. If she's taking tub baths, you might consider teaching her how to shower, and especially don't use any of those bubble things that are used for children's baths. It could be she has some irritation from clothing; you might consider changing laundry soap and double rinsing her clothing.

I just hope this passes quickly.

Donna

[mom_in_ma]

My eight year old has bladder spasms and does NOT have ic. He actually overdeveloped his bladder muscles (we think it's related to some sensory issues he has) and was OAB meds when he was smaller. He's still on a very small (almost tiny) dose and it's just enough to help him. He still not dry at night, but the pediatric urologist is pretty confident he'll outgrow the problem.

If you are concerned, be sure to get a referral to a pediatric urologist. We see one in Boston about once a year.

By the way, I'm so sorry for both you and your little girl. It's scary for you and uncomfortable for her. Poor kiddo. I know I hurt for my little guy.

[Melly]

Thanks to everyone who has responded to my post. My daughter is currently with her father up in CT visiting her grandparents. She seems to be feeling okay. I have a call into our pediatrician and when she gets home I am going to try some of the other suggestions mentioned in the threads. I am still so scared for her -- I try not to show it and to be positive around her, but it has me very worried. I will keep everyone posted and see what the coming days bring. My husband says if she is distracted, she is fine and can go several hours without using the restroom. We'll just have to see what the doctor says.

Thanks again,

Melly